Talked to my specialist at last!!!

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dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/14/2008 3:14 PM (GMT -7)   
I saw my CD doc today. As you know I've been waiting to see someone with regard to my ANA levels. Well, he's getting my DNA checked,
it's called a double stranded DNA antibodies study, plus other blood work. He's determined to get me back onto Humira, as my disease is
too severe to leave unchecked or untreated. His words not mine. I'm still too leary about Lupus to want to go back on it!!! But he assures me
that if these bloods come back negative I should be fine to continue treatment.
I asked for promises, but he couldn't give me any. Even if the tests are clear this time I can still develop drug induced lupus at a later date.
He's also doing another test called anti-histone antibodies, this should tell him if I have drug related lupus and not the full blown.
So no meds for me as yet, but at least something is being done.... Not before time!!!LOL
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/14/2008 3:57 PM (GMT -7)   
Vicky Glad your Dr. is getting on the ball here. Are you doing low roughage diet. My report for CT came back no inflamation just thinking it might help till you can get some med help . How are you doing with your CD right now? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/14/2008 4:08 PM (GMT -7)   
Hi Gail, not so bad right now, but I'm beginning to get cramping pains back, and feeling pretty nauseated every afternoon...
So far though I'm keeping my bm's down to between 3 & 5 a day. So much better than 15+.
I tend to stay on a low residue and low roughage diet, been doing that now for many years!!

Thanks for getting back LOL
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts

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