I heard that I've been missed!

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soccergirl
Veteran Member


Date Joined Mar 2003
Total Posts : 607
   Posted 10/14/2008 5:19 PM (GMT -7)   
Hi all,
I heard from Randynoguts that I was mentioned in a missing you post, so I thought maybe I'd give you all a little update. 
 
Let's see, where to begin....I had a bowel resection in February 2007, then a nasty nasty abdominal infection.  I was all set to go back into surgery when it was called off.  My surgeon consulted a Crohn's expert who told him that she didn't think I would recover very well from surgery because I was so weakened.  So, I had tons of IV antibiotics.  I even went home with a picc line to do my own IV's.  I was finally healed enough to get off antibiotics, but I was left with horrible pain in my upper right quadrant, right under my ribs.  I went to several doctors, but no one could tell me what it was or if it would go away. 
 
So, fast forward to today...I've been on Fenanyl patches, but I am pain patch and more importantly...pain free.  Ok, I still have pain, but it's totally something I can deal with.  The good news is getting off the pain meds.  That, by far, has been the hardest thing I have ever done.  The withdrawals are so hard to deal with.  I'm on the tail end of my last withdrawal.  By this time next week, I hope to be back to my regular, non drugged up, non withdrawal self. 
 
I'm sorry to have been gone for so long, but this last year and a half or longer has been difficult, to say the least.  Oh, I forgot to mention that I had to quit my job last October, so we've also been trying to live on one income. 
 
Thanks for missing me.  It's so nice to know people care! 
Hugs,
Clara
 
Dx in 1984 with Crohn's Disease.  In 1988 my terminal Ileum was removed due to inflamation that caused it to rupture.  I had surgery in February 2007 to remove more of my intestines due to scar tissue.  I then developed a very bad abdominal infection and was on IV antibiotics until June 2007.  I am left with chronic pain in my URQ which the doctors can't Dx or fix.  I'm on a Fentanyl patch 24/7.  UPDATE***I have slowly been tappering off of the Fentanyl patch.  I am going thru my last withdrawal as I type this.  It's the most difficult withdrawal of them all!!!


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/14/2008 5:40 PM (GMT -7)   
Hi good to see you and hope your going to get much improved. Sounds like you been having quite a go of it. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/15/2008 6:50 AM (GMT -7)   
Hugs Clara and welcome back. I too was once on Fentanyl patches and I have since told my doctors to never put me on it again. The withdrawals were horrendous. Glad to hear you are doing better.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


soccergirl
Veteran Member


Date Joined Mar 2003
Total Posts : 607
   Posted 10/15/2008 1:55 PM (GMT -7)   
Thanks for your comments. Yes, I have been having quit a go of it and I agree the withdrawals are horrendous! It's been over a week now that I've been off of them, but I still am not feeling like myself yet. I feel really angry and I have no patience whats so ever! I wish I could fall asleep and wake up next week feeling just great. Oh well, one day at a time, I guess.

It's so nice hearing from you two!
Hugs,
Clara
 
Dx in 1984 with Crohn's Disease.  In 1988 my terminal Ileum was removed due to inflamation that caused it to rupture.  I had surgery in February 2007 to remove more of my intestines due to scar tissue.  I then developed a very bad abdominal infection and was on IV antibiotics until June 2007.  I am left with chronic pain in my URQ which the doctors can't Dx or fix.  I'm on a Fentanyl patch 24/7.  UPDATE***I have slowly been tappering off of the Fentanyl patch.  I am going thru my last withdrawal as I type this.  It's the most difficult withdrawal of them all!!!


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 10/15/2008 7:58 PM (GMT -7)   
hey ! maybe try some morphine to get you through! hahahaa! glad your doing better, i would have stopped to see ya a couple weeks ago, but did not get in touch :0(... i was in the eugene, cottage grove area for 3 days. isnt that close to you?
randynoguts 



     http://www.geocities.com/randynogutsweb/


soccergirl
Veteran Member


Date Joined Mar 2003
Total Posts : 607
   Posted 10/16/2008 12:58 PM (GMT -7)   
You always make me laugh! That's better then morphine!

You would pass by me on I-5 or I-205 on your way to Eugene, but I live closer to Portland. I would have loved to see you again! Next time, ok?
Hugs,
Clara
 
Dx in 1984 with Crohn's Disease.  In 1988 my terminal Ileum was removed due to inflamation that caused it to rupture.  I had surgery in February 2007 to remove more of my intestines due to scar tissue.  I then developed a very bad abdominal infection and was on IV antibiotics until June 2007.  I am left with chronic pain in my URQ which the doctors can't Dx or fix.  I'm on a Fentanyl patch 24/7.  UPDATE***I have slowly been tappering off of the Fentanyl patch.  I am going thru my last withdrawal as I type this.  It's the most difficult withdrawal of them all!!!

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