i found a diet to alleviate symptoms!

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angannette
Regular Member


Date Joined Apr 2005
Total Posts : 38
   Posted 10/16/2008 9:35 AM (GMT -7)   
 
i was very excited when i read this article.  when i was having a lot of symptoms last year i started a pretty strict elimination diet.  i omitted gluten, sugar, high fructose corn syrup, preservatives and high fiber foods.  it helped a lot.  i was to the point where high doses of prednisone weren't even able to get me in remission and i had just started remicade.  anyways, i could tell immediately that the diet helped.  i stayed on it for about 6 months and then added foods back.  luckily i've had success w/ remicade.  i still get crampy and gassy pretty often though and have been thinking about starting the diet again.  i came across this article the other day which seem to show scientifically that many of the foods that i chose to avoid can cause problems.  check it out.  i highly recommend it.
 

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/16/2008 12:02 PM (GMT -7)   
I ran across that FODMAP diet idea recently, but I discounted it because I can eat about half the things on it, but not some of the other things there. I have no trouble from apples or honey, but I can't tolerate milk or wheat. Plums were a large part of my diet for a while when the trees in our yard were producing and I had no ill effects from that. I admit that when I was first researching Crohn's, I had the idea that fiber could account for the problems. Fiber is digested by gut bacteria and can result in overgrowth. However, I found that fiber is usually tolerated by most of the people here at HealingWell, so I put that idea on hold. Fiber does seem to cause more trouble for people with IBS and some here have both IBS and Crohn's, so this may help them.

d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 10/17/2008 10:11 AM (GMT -7)   
I cannot tolerate any fiber over 3g. I can only do that amount once in awhile though. Were I to do it everyday, I would flare badly. I can only eat a couple of fruits, and then only sometimes. Veggies too are rare and must be cooked to death. No wheat or anything, with the exception of white bread. I am basically a white food person.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/17/2008 11:08 AM (GMT -7)   
Sad thing about that is the white food is the killer for your overall health...what happens if you have more than 3g of fibre? Do you get all gassy and bloated? If so, that's completely normal even for healthy people, it's simply your system adjusting to it, and if you took fibre every single day then all your bloating issues would be gone and your gas would be cut way down...took 3 months for my system to adjust, I had gas and bloat issues before my GI told me to take fibre supplements daily and indefinitely and when I started with them it made my gas and bloat issues even worse but after 3 months, all bloating gone, very little gas, formed stools, no mucus, I can eat fibreous foods (popcorn, all fruits and veggies, ect) without getting all gassy and bloated.

Although of course if you have stricturing issues then you have to tread carefully with fibre.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


klsygal
Regular Member


Date Joined Jun 2006
Total Posts : 115
   Posted 10/17/2008 11:57 AM (GMT -7)   
Hi there:
How do you do with soy?  I ask because I also eat gluten free and recently found Tofu Shirataki pasta and it is delicious.  Women benefit from the soy and it is low in carbs and gluten free.  It comes in various forms and quickly blends with the flavors of whatever sauce you are using.  I love it.  To find it in your area - check out Hungrygirl.com.  It is ususally in the refrigerated pasta section or sometimes wherever the tofu is stashed.
Yogaprof - good to see your post; all is well.
idea  
klsygal
 
Concerned friend of a Crohnie.  Trying to support him in his life and treatment.
 
"Our doubts are traitors, and make us lose the good we oft might win by fearing to attempt."
Shakespeare - Measure for Measure
 
Love is not love which alters when it alteration finds, nor bends with the remover to remove; oh no, it is an ever fixed mark, that looks on tempests and is never shaken...
Shakepeare - Sonnet CXVI


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 10/17/2008 2:46 PM (GMT -7)   
Hi klsygal, glat all is well!
on the fiber talk, I couldn't eat any nonsoluable fiber a year ago without horrible "broken glass" pain. now without gluten, fiber is fine and I eat eveything. amazing to me, but great.
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


downunda
New Member


Date Joined May 2008
Total Posts : 19
   Posted 10/18/2008 3:36 AM (GMT -7)   
It looks like an interesting article angannette.
Has anyone had tests for these type of intolerances (like lactulose, fructose, glucose etc?) A clinic near me has opened offering testing for these (link below) and I have been considering going along. If anyone has been tested it would be great to hear about the tests and if they were useful etc. 
 
http://www.digestivehealthservices.co.nz/rates.html
26F, Crohn's for 8 years, currently on 6MP and pentasa. Have previously tried remicade, iron, pred and entocort.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/18/2008 6:48 AM (GMT -7)   
Hi Good post .I was reading alot last night on diet and see that now they are doing studies on it. It's a big part of our lives and good to see some info coming on here about it. They were saying that they beleave that certain foods can trigger problems .I'am all for that belief as I stay on low roughage. I find it interesting reading about how different people manage there food intake and what is working for them. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 10/18/2008 10:13 AM (GMT -7)   
Interesting! The foods you mentioned are ones I've cut out through my own trial and error (though I have been able to have unrefined sugar as of late). I'll definitely have to read that when I get a chance. Fortunately I can tolerate some fruit, but have to stay away from many high fiber foods, particularly raw vegetables/salad. I limit my intake to about 2-3x a week. Since starting my restricted diet (about 5 mo ago) my BM have been as normal as ever and only a few instances of bleeding (all within the last week....so may start Humira again).
19, College Student, diagnosed June 2007. Asacol made me worse, Prednisone made me crazy, Remicade for 1 year, Now controlling disease with diet (wheat-free, low dairy, low sugar) and considering Humira. Had to scrap semester abroad plans due to disease, but doing well day to day.


klsygal
Regular Member


Date Joined Jun 2006
Total Posts : 115
   Posted 10/20/2008 10:46 AM (GMT -7)   

Hey all,

I hope you will check out the soy pasta.  It is delicious.  Yogaprof; do you know of any problems with soy relative to thyroid issues?  Someone told me that it causes problems - this is news to me.

Spill girl!  Glad to be back in touch.  My friend has pushed me away again - whatever.

Klsygal turn


 
Concerned friend of a Crohnie.  Trying to support him in his life and treatment.
 
"Our doubts are traitors, and make us lose the good we oft might win by fearing to attempt."
Shakespeare - Measure for Measure
 
Love is not love which alters when it alteration finds, nor bends with the remover to remove; oh no, it is an ever fixed mark, that looks on tempests and is never shaken...
Shakepeare - Sonnet CXVI


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 10/20/2008 11:20 AM (GMT -7)   
I don't have any problem with soy, but I don't do TONS of it. the very best GF pasta I have used is Tinkyada (sp?) and I think it is made from quinoa, but can't be sure.

downunda
New Member


Date Joined May 2008
Total Posts : 19
   Posted 10/23/2008 1:06 AM (GMT -7)   
This diet has also been discussed on the UC forum http://www.healingwell.com/community/default.aspx?f=38&m=998680
26F, Crohn's for 8 years, currently on 6MP and pentasa. Have previously tried remicade, iron, pred and entocort.

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