How Do you Describe Your Pain?

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angelcockatoo
New Member


Date Joined Nov 2007
Total Posts : 8
   Posted 10/16/2008 10:15 AM (GMT -7)   
So, recently I found out that most people do not experience the kind of pain that I do when having D. Most people just have an urgency to go and they sit on the toilet and there it goes. I get severe cramps...they feel like gas pains only 10 times worse...and they often start below my ribcage and all the way down to my colon area and around my back. I get spasms that are so severe, it takes my breath away at times. I will get these pains up to 30 minutes before the actual episode occurs. Does anyone else get pain like this? How would you describe it? It's not a "stomach ache." It's pain in my GUTS...but, it's bad and really crippling. Thanks.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/16/2008 10:36 AM (GMT -7)   
Crohnswise my pain is really bad cramps. Very spasm or labor pain like. I also get bad rectal pain/spasms. But right now my Crohns seems to be behaving, so not having that problem right now. Otherwise my main pain complaints right now are my joints. Owwwwwww!!! Mostly my hands and feet.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


kyle Nelson
Regular Member


Date Joined Sep 2008
Total Posts : 28
   Posted 10/16/2008 10:39 AM (GMT -7)   
radiant, brilliant spasms. during obstruction it just feels like my intestines are being digested by flesh eating bacteria - really disgusting, "hollow" type feeling, i dont know if that makes sense.

Jeny
Regular Member


Date Joined Feb 2004
Total Posts : 437
   Posted 10/16/2008 12:24 PM (GMT -7)   
agonizing! I have the same thing and the then when I do go....i get the rectal pain/spasms. it's sooo aweful! is there anything that we can take for this? muscle relaxer or anything? my guts feel like they are eating themselves right now!

ERANJO
Regular Member


Date Joined Apr 2008
Total Posts : 60
   Posted 10/16/2008 2:37 PM (GMT -7)   
I have that same kind of pain.... SEVERE cramps...rectal pain...worse than labor pains. I had an Ileocecectomy in July, and it has been like that ever since then...I should probably call my GI but I am already scheduled to him in November...I guess whats a few more weeks...

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/16/2008 4:32 PM (GMT -7)   
You're not alone, Angel.

I think it depends on where your disease is most severe. If you have horrible perianal disease, for instance, it's going to be torture using the toilet.
Co-Moderator Crohn's Forum.


Cookie's Wife
Regular Member


Date Joined Aug 2005
Total Posts : 299
   Posted 10/16/2008 5:25 PM (GMT -7)   
Hi Angel...you are SO not alone.
 
I describe my pain as cramping and sometimes it feels like someone is squeezing my colon...
 
I also get the spasms.  I take Hyomax for my cramping.  I put a pill under my tongue before meals and at bedtime.  I also take one if I feel the cramping/urgency coming on.  It really helps!
 
Kyle... that makes complete sense!  I get that feeling too and never knew how to describe.  Thanks!
~april
 

 



princessjo
Regular Member


Date Joined Oct 2008
Total Posts : 20
   Posted 10/16/2008 5:42 PM (GMT -7)   

I get exactly the same type of pain: lots and lots of spasms: mine are usually just under my rib-cage and just above my right hip (my flares occur in the join between my large/small intestine: which is the exact area for the latter location).

I have always had back problems, but I have found that Crohn's make them 100 times worse. My back constantly feels under pressure: and to make things worse, my hips are already 'out' so when I have a flare, they go really 'out'.....Painful!

So thats where I am at!

 

Jo


Who will tell whether one happy moment of love or the joy of breathing or walking on a bright morning and smelling the fresh air, is not worth all the suffering and effort which life implies.  ~Erich Fromm
 
discussing Crohn's Disease, infertility, fostering, fundamentalists, my family, and my babies with fur :)!


kimmy2
Regular Member


Date Joined Sep 2008
Total Posts : 91
   Posted 10/16/2008 6:56 PM (GMT -7)   
I have the spasms alot with d and even when every other part of my disease is under control I still always have d. I take pamine forte for the spasms and it sometimes helps. There's another med my insurance won't cover, but seems to work better called NuLev. It dissolves under your tongue. THese medicines tend to suck all the moisture out of your body, so I keep eye drops and plenty of drink handy. Hope this helps!!
diagnosed CD '03 after suffering for 10 yrs.
 
re-section surgery '05, Chronic Pancreas problems, joint and muscle issues (from Remicade)
 
meds been on-Asacol, Pentasa, Lialda, Remicade, Humira, 6-MP, Methotrexate, Rowasa, Prednisone, to many pain meds to list
 
Currently on-Cimzia, Cymbalta, and Klonopin(RLS)


d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 10/17/2008 9:57 AM (GMT -7)   
Whenever I flare the pain is so intense it is all-consuming. If you've ever seen Braveheart; it feels like being disemboweled, and someone wringing out the intestines like a wet towel. I get 2 types of pain. One is constant, burning pain. Then I get waves of intense deep pain on top of that. It is so bad that when I feel the wave rising I just whimper in prayer for God to give me the strength to endure it.

I also get sharp, terrible rectal pains. I have had 2 children. I was in labor with one of them for 39 hours. I would rather have albor apins. Especially because you know they will end eventually.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 10/17/2008 10:13 AM (GMT -7)   
I call it being flayed beneath the skin in the guts. The "movement" or whatever of my back seems to spread from my hips so I tend to think of it as spreading agony. Since I can't explain accurately to anyone how much fun it feels like. Sorry for your pain and you should talk to your doctor.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)

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