My ANA levels have increased not decreased!!

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dunny2
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Date Joined Jan 2007
Total Posts : 3200
   Posted 10/17/2008 5:19 PM (GMT -7)   
I've not had Humira now for 8 weeks, and we were kinda hoping that my ANA levels would drop, but they've gone up.

What does this all mean? Does anyone knows what Lupus is all about? I've researched, but I still haven't fully grasped
things.

Who else here has been dx with Lupus, and how does it affect your life?

Worried....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 10/17/2008 6:00 PM (GMT -7)   
I have a very hard time moving Ides discribed it as like walking thru chest deep snow.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


gachrons
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Date Joined Mar 2007
Total Posts : 4527
   Posted 10/17/2008 6:27 PM (GMT -7)   
Hi Vicky I read some but it doesn't make a lot of sense as there are other things that can make the rate go up. Have you spoken to your Dr. yet about it. Wish I could be more helpful but I am sure others will come on that can be, lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/17/2008 6:45 PM (GMT -7)   
Hopefully, Always Rosie will come on here she is a lupus mod who was also dx with crohns. However in the meantime I would suggest looking at our lupus resource directory.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/17/2008 6:46 PM (GMT -7)   
The nurse told me the result, so I haven't seen the doc yet. I still have the DNA and a couple of other things to come back as yet.

Navy, I don't have so much trouble moving as such. Getting to a stand position proves to be painful. The most over whelming thing
I have right now is fatigue, and strangely enough nausea... Sleep or lack of it it is a pain, even though I'm so worn out. Go figure!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/17/2008 6:49 PM (GMT -7)   
http://www.lupus.org/webmodules/webarticlesnet/templates/new_aboutintroduction.aspx?articleid=75&zoneid=9

http://www.healingwell.com/community/default.aspx?f=29&m=184347&g=348924#m348924
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/17/2008 6:50 PM (GMT -7)   
Thanks Navy.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 10/17/2008 9:29 PM (GMT -7)   
Hi Vicky,
 
I'm sorry to hear that you are experiencing Lupus like symptoms.  I was diagnosed with Remicade induced Lupus, and it took 1 1/2 years for my ANA, DNA and ENA to return to normal.  I am now on Humira and hoping the Lupus doesn't return, but after 6 months, my hands and upper arms are starting to hurt.  Does your pain jump around from one spot oneday to another spot the next?  It hurt to walk, sit down, get up, get in and out of the bathtub, pour water into the coffee maker, etc..  My advice is to please see a rhuemy as well as your GI.  Lupus is becoming more known amongst GI's now that prescribe Humira.  Apparently Cimza only has a 9% chance of giving you lupus.  I would be on it, but I live in Canada and it hasn't been approved by the FDA here.  Please keep us posted, and I really hope you do not have Lupus. 
 
Julia
 

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/18/2008 5:34 AM (GMT -7)   

It is so bad that it interferes with your ability to walk (let alone run), sleep, and perform daily functions is inhibited.


Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 10/18/2008 6:55:01 AM (GMT-6)


wanthealth
Regular Member


Date Joined Feb 2008
Total Posts : 78
   Posted 10/18/2008 5:51 AM (GMT -7)   
Dunny,
I have no experience with lupus, but I do with a rare side effect of Humira--- psoriasis. A rheumy told me that Humira remains in the body for over 50 days after you stop taking it. I found with psoriasis I was still getting new lesions many more than 50 days- can't remember how much longer, but it finally did stop. With a great deal of therapy most of the psoriasis is gone----hopefully not to return.
I hope you have the same good luck with lupus.
Moodlidigo.

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/18/2008 7:25 AM (GMT -7)   
Thank you all so much for your posts. I guess what I have to do now, is wait on the remaining tests and take it from there.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/18/2008 8:15 AM (GMT -7)   
I changed my signature, this change was prompted by my youngest son Bless him. So I though I'd share...
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis
B12 Shots bi-weekl

Positivity, while not a cure, is positively far better than negativity.
"Mental attitude can move mountains" A message from my son.

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