soo confused now!!!

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mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 10/18/2008 7:02 AM (GMT -7)   
Hello again,
its me lol
So i went to the doctor, and he said that because all of my tests, which was the small bowel follow through and the colonoscopy, that i definetly dont have crohns but is still sending me to a bowel specialist, would this be a gi? or does anyone know the name of it? I guess he is sending me just to reassure me, i dunno.
So I told him about the pelvic pain that I have been having, and he said that he is sending me to a gynecologist, because he thinks I may have endometriosis.
He said then that the gynecologist will proabably want to do a laparascopy.
Not entirely sure, I sure just wish that i could find out whats really wrong, once and for all.
He said that the symptoms of the endometriosis might not be too strong for me because I have a mirena iud in, and they are suppose to prevent the strong symptoms, or to lighten them I guess you could say,
just looking for some insights, or even some advice again, seems like lately that it is the story of my life eyes
thanks again in advance
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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Ne Ne
Regular Member


Date Joined Apr 2008
Total Posts : 243
   Posted 10/18/2008 8:56 AM (GMT -7)   
Hello mom1978,
yes going to a GI is a gastroenteritis. And to tell you the truth my regular did a colonscopy, and ran a lot of different stool,& blood tests and the GI found the crohn,s. I've had four colonosocpys,one by a surgeon, one by my regular DR, they said everything was fine. went to two different GI DRs, and they both found cronh's in my colon. They can find crohn's by doing a CT scan. I have also done the camera pill. with that they found three sections of my small intestines that are infected.

I was so confused because it seemed like I kept getting the run around. But when I found my GI I started to feel a lot better. rolleyes


So I wish you the best and good luck yeah



Dawn turn turn
49 Female
Dx June 07 Crohn's take asacol 2x3 a day ,lotrel for HBP , omeprezole for stomach , potassium , one a day crohn's & colitis therapy , calcium & Vit D , lomotil for lose stools , tramadol for pain , started humira in Feb 08 , vit-B shots ,
Dx Bipolar May 08


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/18/2008 9:04 AM (GMT -7)   
Unfortunately crohns and female problems go together. Endo is very common for female crohnies
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 10/19/2008 6:34 AM (GMT -7)   
Thanks guys for everything, i will let you know what the gyno says, shouldnt be too long.......
Why is it that crohns causes female problems, or that they are linked?
There is lots I dont understand about this disease....
take care, and hope everyone is well
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 10/19/2008 4:07 PM (GMT -7)   
I see on your signature "possible celiac." where are you with that? have you tried to give up gluten (I am a crazed convert to the no-gluten life)
I was diagnosed and undiagnosed with crohns, and ended with a "hmm, I guess you had it and now you don't" diagnosis. I do my best to not worry about whether I have it or not and just focus on symptoms, which are now gone due to my diet change.
as for girl-stuff, I had PCOD 30 years ago, multiple surgeries for that and a hysterctomy 20 years ago. now I battle adhesions from the surgeries, which seemed to be the cause of my intestinal problems. this stuff gets very complex! take care, yp
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 10/19/2008 5:20 PM (GMT -7)   
Hi there, yogaprof, I think thats your name........
I have yet to exclude all gluten from my diet, i was told at once to exclude, milk, sugar, yeast, wheat and one other thing from my diet, all at the same time.....
I have not tried this yet, tried to do it for about a day or two, but it was extremely hard....
thanks again for all of the advice,
take care
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 10/19/2008 5:46 PM (GMT -7)   
yes, that many dietary changes would be really hard! maybe if you tried one or two it would help. when I was very ill for most of '06 and '07 I got so tired of people's advice to do something about food, when my GI said diet wouldn't matter, I lost all kinds of weight, and was too sick to deal with it; however, dietary changes have made me so much healthier I am shocked. I am eating lots more, gained weight, feel super, and my pain is so moderate I rarely notice it.
there is lots of support for the idea that many people have bad effects in their GI tract from gluten, so even if you don't have celiac, it is often helpful.
ok, enough soapbox. I am sorry you are going thru this and hope we can be of some help to you here.
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.

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