Battle between brain & body...Do I allow my brain to win?

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dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/18/2008 10:54 AM (GMT -7)   
I'm so unhappy & confused right now. I have things to do in preparation for my vacation in 2 weeks. I really should do these things.
However I feel so weak, I cant get up to do them.

Do I do as my body is telling me, or should I push myself (positive thinking)? I cant help feeling I'm lazy, and thats not helping, because
thats what the huge battle in my head is all about.

How do you all conquer this???

Feeling this ill sucks!!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis
B12 Shots bi-weekl

Positivity, while not a cure, is positively far better than negativity.
"Mental attitude can move mountains" A message from my son.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/18/2008 11:22 AM (GMT -7)   
I absolutely believe in positive thinking, but not to the point of punishing yourself (like by calling yourself lazy). If your body is telling you something you might need to listen...speaking as a woman who has pushed herself to the point of ending up in the hospital (alot) by her "can do" attitude.
This is a judgement call.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/18/2008 12:02 PM (GMT -7)   
Your mind will likely always be able to comprehend better what things need to get done, your body on the other hand dealing with a chronic illness will not likely comprehend it as much, don't over do things, it's just not worth it.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/18/2008 12:10 PM (GMT -7)   
Hi Vicky is there somethings you could do in bed? Perhaps make a list and do one or two things a day. Are you just feeling tired or are you having body pain and weakness. .Give us your list and keep tract with us what needs doing. Certainly interested in what you need to do. Ha Ha. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/18/2008 12:41 PM (GMT -7)   
Well actually, all I really need to do is, get in my sewing room and alter the things that I bought and needs adjusting. So simple... BUT I
get to that room and turn around and leave. I love to sew. I use to reupholster furniture for goodness sake. This is so small.
I also have to go shopping for gifts for my grand kids, I want to, but cant...

I feel weak, listless, I ache, rather like flu with no end. My head is so fuzzy, I'm not sleeping so well..... I'm not sure if some of this is down
to worrying about lupus, or I'm actually fighting the disease that seems to be raging in my body.

I also have a probable kidney stone, that's not helping, but believe it or not. my crohns seems to be behaving, thats something to be grateful for.

Having said all that, I do still vacuum, and do the laundry, but that wears me out.

Oh I forgot to say, nausea & headaches seem to be the order of every day. "What's that all about"??

I'm so sorry you guys, I feel terrible crying on your shoulders, just another out of character thing, but I'm so pleased you are there, but I wish
you were here, as long as you don't need to eat! LOL to all of you.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis
B12 Shots bi-weekl

Positivity, while not a cure, is positively far better than negativity.
"Mental attitude can move mountains" A message from my son.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/18/2008 1:46 PM (GMT -7)   
"I feel weak, listless, I ache, rather like flu with no end. My head is so fuzzy, I'm not sleeping so well....." and "nausea & headaches seem to be the order of every day. " are all Crohn's not behaving. Just because you're not bleeding and in pain doesn't mean that you are not having effects from Crohn's. Try doing whatever helps your Crohn's. I had that kind of stuff happening but it went away when I was doing the colonoscopy prep and fast for a couple of days.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/18/2008 1:47 PM (GMT -7)   
Dunny,
This happens to most of us. Please vent all you want, because we do understand how you feel. You want to do something so bad, but it is just like all the "stuffing" got taken out of you.
As to the gifts order online (don't waste your precious energy going shopping, as much as I certainly enjoy it). I have gotten to the point that I have had to get a cleaning service to come in once a week for about an hour for me. They do my house chores (like laundry, sweeping, dusting, and laundry) because I can no longer do them without needing a day to recover. Completely worth the 30 bucks (small 1 bedroom apt) I pay a week, so I have the energy to do the things that I enjoy.
Tc,
Navy
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/18/2008 3:12 PM (GMT -7)   
... Also, it can sometimes help to be very stern with oneself and realistically distinguish between the things that HAVE to get done, and the things that one would simply PREFER to get done. For instance, does the altering absolutely have to get done? Could you wear the clothes unaltered, even if they are a bit big and wouldn't look as good as they ordinarily would? Could you pay someone else to alter them? Or are there other clothes you could wear instead? There are no right or wrong answers here; you will have to work out your own answers to these questions; but in thinking this way, it's sometimes possible to come to new, and easier, solutions for problems.

Another technique that works for me is to break big jobs into tiny steps and try to do just five minutes at a time. I also try to work months ahead of schedule so I never have to scramble when I'm feeling terrible - I keep a stockpile of food in the pantry and the freezer, I start packing days or weeks before I have to go anywhere, I start thinking about Christmas in June or July, etc. It sounds to me as if you're doing this already, so congratulations!

Another thing that I do to help me cope is to divide my activities into "mobile" and "immobile" passtimes. For instance, I tend to read, write letters, do craft, watch movies etc when I am too ill to move around or concentrate much, and only push myself to do errands, large slabs of heavy housework, etc on the rare days that I do actually have some energy and mobility. By having jobs and hobbies that I save for when I'm ill, I'm less likely to feel that I'm just losing time, falling behind and slacking when I'm housebound.

Finally, I try to do a little bit of cleaning and gardening every day. I can't always manage it, but I do it enough that the house never looks completely revolting, even if it's rarely as sparkly as I'd like it to be.

Would it help to join us in the pacting thread? You'd be very welcome.

I'm sorry you're feeling so terrible. You're right about how bad it is to feel sick all the time.

Ivy.
Co-Moderator Crohn's Forum.


survivor49
Regular Member


Date Joined Oct 2007
Total Posts : 241
   Posted 10/18/2008 3:46 PM (GMT -7)   
Vicky
I can only say that you are not alone. We are our harshest critics.

Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 10/18/2008 4:00 PM (GMT -7)   
(((Vicky))) I just wanted to let you know you're not alone. Be proud of the things that you are able to accomplish. Sending big hugs your way. Blessings, Julie
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 8mg/kg every 6 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/18/2008 5:26 PM (GMT -7)   
What can I say, with big tears in my eyes I say thank you one & all. I don't often cry, so I guess it's something else to go my my list.

I'm truly glad to call you family LOL x
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis
B12 Shots bi-weekl

Positivity, while not a cure, is positively far better than negativity.
"Mental attitude can move mountains" A message from my son.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/18/2008 5:52 PM (GMT -7)   
Aw dunny big (((((((((((((((HUGS))))))))))))))), let it all out it's good for ya!

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 10/18/2008 9:59 PM (GMT -7)   
MMMNAVY said...
Dunny,
This happens to most of us. Please vent all you want, because we do understand how you feel. You want to do something so bad, but it is just like all the "stuffing" got taken out of you.
As to the gifts order online (don't waste your precious energy going shopping, as much as I certainly enjoy it). I have gotten to the point that I have had to get a cleaning service to come in once a week for about an hour for me. They do my house chores (like laundry, sweeping, dusting, and laundry) because I can no longer do them without needing a day to recover. Completely worth the 30 bucks (small 1 bedroom apt) I pay a week, so I have the energy to do the things that I enjoy.
Tc,
Navy


I have also given in, and I'm going to get someone to clean every 2 weeks. I feel somewhat guilty about it, even though both my wife and I work full-time. I find that often I have a choice on the weekend between getting the cleaning chores done, or going for a walk, or going to the golf range, and cleaning always wins because I HAVE to get it done. I don't have the energy to do both, at least without making my legs shake from fatigue afterwards.

Navy, you said laundry twice, heehee. Have lots do you? :)
Dx'ed in 1999. No surgeries.

Current meds: 100 mg 6MP. Just finished prednisone taper. Udo's Choice Probiotics (30 billion).
 
Betaine, digestive enzymes, Candicin (oil of oregano capsules), Beta Sitosterol.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/19/2008 5:37 AM (GMT -7)   
Hi Vicky sounds nice getting some new things to wear, didn't know you loved sewing, Broomhilda is a sewer too are you making a Halloween costume? Had to get that in there ha ha .Weakness as in spirit of things can be gotten behind you now the body that's a whole different thing I would think Sniper would have a good fix for that but do we dare ask another giggle here. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 10/19/2008 8:10 AM (GMT -7)   
Most gifts, I buy from right here at the computer. You can open a gift and Christmas account, with a check card and use that if you are afraid or can't use credit cards. I deposit only what I can afford to spend and shop away...less stress, and the little ones are always shopping ads and circling things when they come to Gammy's house.
Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
 
                                              Margie11


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/19/2008 9:21 AM (GMT -7)   
Awww Dunny I am so sorry you are feeling so bad. Never feel bad about venting here, that's what we are all here for. I think you have been given some really good advice. Maybe getting someone to come in even every 2 weeks and clean some for you might be a big help, and the idea about shopping for the gifts online are a great idea. Do what you can and maybe ask hubby or other family members to help out some too. Sure hope you get feeling better and are able to enjoy your vacation.

(((GIANT HUGS TO YOU)))

Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/19/2008 10:39 AM (GMT -7)   
That is so funny cause the first time I wrote it I said dishes twice...which I hate way more cause I don't have a dishwasher.  But oh well I am loving my painkillers right now.


Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 10/19/2008 2:14:09 PM (GMT-6)


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/20/2008 4:16 PM (GMT -7)   
Here's a site for you, from the Crohn's Resources section.
Co-Moderator Crohn's Forum.

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