Been told I need surgery, would you agree to this?

New Topic Post Reply Printable Version
34 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

BuzyBum
Regular Member


Date Joined Feb 2004
Total Posts : 122
   Posted 10/18/2008 4:36 PM (GMT -7)   
I've just spent 16 days in hospital due to not being able to keep anything down, had a constant cough where if I ate anything I just coughed it all back up again. Also I was getting chest pain. Then it got to the stage where I couldn't even keep liquid down so I had to go in. My crohns is flaring quite badly as well, but that wasn't the reason I went to hospital.

As usual they hear the word 'Crohns' and then totally forget about everything else, just concentrate on that. They were convinced that was the reason I'd admitted myself, it wasn't.

Anyway once my cough and chest pain was under control, he gave me a sigmoidoscopy and told me my bowels were a mess and I need total removal of my large instestine and a bag fitting. He was adamant that if I didn't have it done now I would be back in there in 5-6 weeks time undergoing emergency surgery for a perforated bowel.

Now I'm 37 years old, single and not ready for that sort of life changing decision to just be thrown at me and be expected to make a decision. Also I don't think I have exhausted all my options like he seems to think I have. I've had crohns since 95 and in that time I've been on Asacol and azathioprine (since being diagnosed) and I've had Remicade which I responded well to, and went into remission but they took me off it when it was still working (because of the cost I am assuming, I live in the uk). I've just tried Humira for two months but that just made me really ill, I had constant fevers and chills, nausea, blackouts and I think that's why I got the cough and chest pain. It didn't do me any good either I don't think. Even after I came off it, I was still really ill getting fevers so he took me off the Azathoprine as well due to low white cell count.

That's the only drugs I've actually tried (apart from pred) and I'm pretty sure there's loads more out there that I can try before he just rips out half of my bowel and fits me with an irreversible bag.

I'm now on the elemental 028 extra diet. Gotta be on it for 6 weeks I think. I'm finding it really hard because I'm also on 40mg of pred at the moment, so got the munchies really bad.

My weight has gone down to 7st4 from 9st and they've only got me on 1400 calories a day (7 cartons of drink). Surely I should be on more to get my weight up?

I can drink black tea and coffee but I don't like either really, so it's not much fun. I am really trying to stick to it though but it's proving impossible for me. I keep wanting to eat but if I cheat I just have a tiny bit of fish to stop me pigging out on a KFC. I really want to stick to it. Anyone got any tips for warding off the munchies?

I'm not sure if I should be drinking herbals teas or not, I bought some and I had some peppermint tea and some fennel tea but I've had really bad stomach ache today, so not sure if they are having a detrimental effect on me? or whether it's just the pain from needing the toilet and being constipated from the Tramadol.

Anyway back to my original question, would you just agree to this surgery and trust what your GI tells you? Or would you want to try every other option that was available to you, knowing that in the meantime he might be right and your bowel could rupture at any moment? I don't know if I am making a big mistake in waiting, but I wouldn't want to do and regret it afterwards thinking I could have got better from some other drug.

Sorry this is long but any answers to any of my questions would be very much appreciated thankyou
:-)

Ps I am now back on the Remicade, had one dose and so far so good, no allergic reaction so far. Got my second one on Tuesday, so fingers crossed that one goes ok too, because I feel it's my only hope now.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 10/18/2008 4:41 PM (GMT -7)   
any way to get a second opinion? i know they ration your care over there, but surely they can send you to a new clinic to be seen for another check. its a big step for sure..
randynoguts 



     http://www.geocities.com/randynogutsweb/


BuzyBum
Regular Member


Date Joined Feb 2004
Total Posts : 122
   Posted 10/18/2008 4:49 PM (GMT -7)   
Hi Randy, thanks for your reply.

I spoke to the surgeon that would be doing the surgery if I went ahead and he told me from the sigmoidoscopy pics that my bowels were in a bad way and he would recommend the surgery, but at the end of the day it was my decision (my consultant made me feel like it was his decision and I had to agree to it or die). That's the only sort of second opinion I've had. I don't really know where I would get a second opinion, or how to. I just feel like it's a massive thing to throw at me with no warning and tell me theres no other options when I've not really tried that many drugs. Also I feel bad, but I've felt worse in the past and he never mentioned surgery then. I just don't feel like I am as bad as he is saying I am, but he's seen the pics and so have I. They didn't look healthy but then they didn't look any worse than the last colonoscopy pics I had done.

It's just hard to know whether to trust his judgement of how bad it is and how likely it is to perforate. I live on my own and I'm worried about what would happen if they did perforate, would I have chance to ring for an ambulance or would I just pass out and die?


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/18/2008 5:27 PM (GMT -7)   
Hi I see you live alone and was wandering if you have a family member you can talk this over with .I am hoping you will come to a decision about it soon though. Your right it seems they are not giving you alot of time to think about. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


BuzyBum
Regular Member


Date Joined Feb 2004
Total Posts : 122
   Posted 10/18/2008 5:40 PM (GMT -7)   
Hi Gail, I don't really have any family, My mum and dad have both passed away and I have one sister who I don't really speak to. I have a daughter who is almost 18 but she's moved out now and is living 300 miles away.

I have a couple of male friends, one an ex bf of 8 years, who helped me out alot when I was in hospital looking after my cat etc. I speak to him mainly and another friend who I can only speak to on the phone as he lives 250 miles away, but it has helped talking it over with them. Ranting etc. They both at first asked me if it would be wiser to take my GI's decision and have it done saying I would feel better etc. but it's easy for someone else to say, it's me that's gotta live with it. I may feel better physically after having it done, but I am worried what it would do to me mentally. I'm not sure I can disfigure my body just like that and live with the thought that I might be on my own forever. I find it hard enough to find a man with just my Crohns, so I imagine that wouldn't work in my favour either ;) not that finding a man is the be all and end all of my life, infact its the last thing on my mind at the moment but eventually I would like to find someone.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/18/2008 7:16 PM (GMT -7)   
Why don't you try posting on the ostomy forum and get some advice from others that have a bag. You might find some encouragement there that it is easier to live with than imagined.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/18/2008 7:52 PM (GMT -7)   
I would get a second/third opinion first...try chamomile tea, it's a natural anti-inflammatory and is great for aiding gut cramps, it's very helpful (for me at least) it's also good for menstrual cramps too...have you tried any other natural anti-inflammatories? I have crohn's colitis as well and have been benefiting from bee propolis, omegas 3-6-9, fibre supplements (as strongly suggested by my GI), probiotics, vitamins A, C-Calcium ascorbate and B12 of course...I altered my diet completely cutting out junky foods/beverages...I went from having bloody D/mush with lots of mucus and severe lower back pain to 5 bm's/day, formed, no blood, mucus, pain...I also exercise regularly (which I doubt you're in any shape to start doing right now, totally understandable)...I know that what works for one doesn't necessarily work for others and often each has to find their own combination of naturals but probiotics are essential, daily and indefinitely, fibre supplements too unless you're a stricturing crohnie or have issues with obstructions and such.

I hope you find relief soon without having to get the surgery but if all else fails and you get that second/3rd opinion and it still points towards surgery I wish you the best of luck and there's a good chance of you getting a big part of your life back with surgery too...of course this kind of decision has to come from within.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/19/2008 4:33 AM (GMT -7)   
Hi Glad you had someone who knows you talk to you and I know it is a scarry thought, and one most of us have had to think about at one time or other. Is your whole large bowel in bad shape ? What exactly did they find ? I guess the important thing here is making a decision that will keep you living and from what they are saying it might be best. Did they give you any opionions as to the surgery or do they think it all should be removed? I know there are things like a J pouch some people have a temperary ostomy and are able to give the bowels a rest while the meds kick in and then get reconnected. How long has your Bowel been in bad shape? How you doing with the elemental drinks? Hope some sleep has given your mind a bit of a rest and things look a little better today. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


BuzyBum
Regular Member


Date Joined Feb 2004
Total Posts : 122
   Posted 10/19/2008 6:21 AM (GMT -7)   
Thanks for all your replies, I'll try and answer as best I can although I'm quite tired so might miss some things.

FitzyK23 - Hi thanks for your reply, I've spoken to the stoma nurses at the hospital and they've talked me through it and shown me the bags, dvds, etc and she was more or less telling me I had to face up to surgery because she seemed to think it was innevitable it was going to happen. How does she know? She doesn't know me from adam. She told me I was spending most of my life in hospital, not true, I spent 4 days in hospital in July and 16 days just now, and that's the first hospitalisations I've had in 4 years. I was well for 3 years from the remicade and had a good quality of life. It's only really the last 6 months my crohns has been gradually getting worse, and it's no worse to me than any other flare up I've had when I've managed to get it under control. So I just feel like I should be given the chance to get it under control again before they just tell me it's beyond help and needs whipping out. They've asked me if I want to talk to people who have a bag and I have agreed to that, so hopefully I will see someone soon.

pb4 - Hi, thanks for replying, I bought some chamomile tea and had a cup lastnight, no adverse affects from that yet. I've bought fennel tea and peppermint tea but the peppermint tea I'm just not sure whether I should be taking because doesn't it stimulate your bowel? and I'm supposed to be resting my bowel on this elemental diet, and I think it gave me cramps, but I can't be sure it was that. I've tried Aloe vera juice ages ago and that had me doubled up in pain so I didn't use that again. I've tried accidophilis tablets and yakult and actimel. Obviously at the moment I can't take them, I'm trying to stick to this diet but it's really hard as I said. I have alot of mucus at the moment and I think taking any yogurt type drinks would make that worse? If I end up having to have surgery I think I will accept it eventually, but I think it might take a while for me to mentally come round to it.

gachrons - Hi again, from what I know (they don't tend to tell me much, I have to find out for myself by looking at my discharge notes and things). On my last colonoscopy report (in july) it said that I had severe crohns colitis to 35cms, above this normal. So I am assuming it's still the same area that's affected. So if that's the case I might only lose half the large bowel and have a colostomy, but I think it was the stoma nurse that said if the area after the first bit was affected in any way they would probably remove the whole thing. When I saw the surgeon he did try and explain the J pouch thing to me, but to be honest I was so tired I couldn't take in much of what he was telling me. From what I can remember though, he seemed to think it was a waste of time and not much point doing. I'm tollerating the elemental drinks, I quite like them, but I am finding it really hard not to nibble on something in the evening which defeats the object of it really, but I'm finding it virtually impossible on these darn streroids. I suppose I'm still resting my bowel because I'm hardly eating anything at all, but I do need to put weight on. At least I am getting some nutrition from the drinks though. Just wish I could stick to it better. I think I need more drinks, I don't think they've got me on enough calories.

loobylou, hello fellow uk'er :-) thanks for your reply. My doctor is pretty much useless, I should really get a new one, but the surgery is litterally a couple of minutes from my house and makes picking up prescriptions etc so much easier if I'm ill, so I don't really want to change, and also every doctor I've ever had up and down the country has been pretty much useless, so I don't hold out much hope of finding a better one that easy. If they do try and force me into the surgery again, I might put it to him and see what he says though, he might surprise me and do something about it.

The reason he gave me a sigmoidcope and not a colonoscopy is because I told him that the last colonoscopy I had made me ill. But I don't think it was the colonoscopy itself it was the picolax, it always makes me ill. I told him this, but instead he just gave me an enema (excruciating!!!) and a sigmoidscope instead.

I have to see my consultant again in a month, and hopefully by that time the remicade might be having some effect and the steroids and diet might have done some good, then he might stop going on that I'm going to die if I don't have surgery. I so want to prove him wrong that it wasn't the decision to take so drastically without trying anything else first. I just hope I'm right and he's wrong.

Incidently, has anyone gone back on Remicade after having good results the first time, and continued to have good results a second time? I'm obviously worried about the risk of a reaction going on it again, but that's the chance I'm willing to take because it worked so well for me the first time before they took me off it.

Thanks again for all your replies.


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 10/19/2008 7:08 AM (GMT -7)   
What are the Doctor's saying about the remicade?  Are they giving it a chance to help you?  Is it a colorectal surgeon that will perform your operation?  I am assuming that you have extensive periannal crohns and that is why they are talking about a bag.  I hope you can make your decision without further complications occurring.  Keep us posted.
 
Take care,
Julia
 

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/19/2008 11:15 AM (GMT -7)   
Buzy Bum :)

I've heard fennel is great for aiding in digestion but I've never had fennel tea, I use chamomile everyday...maybe you could take probiotics in form of pill rather than yogurt drinks? The one I use is called Primadophilus Reuteri made by natures way, it has guaranteed intestinal release, aids with high cholesterol, lactose intolerance and for women vaginal health...it's affordable and only one/day is needed.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


BuzyBum
Regular Member


Date Joined Feb 2004
Total Posts : 122
   Posted 10/19/2008 1:08 PM (GMT -7)   
Hi Julia, thanks for your reply, my consultant was reluctant to put me back on the remicade because I haven't been on it for over 2 years, so the risk of reaction is higher. But when I was on it I was doing so well and they just stopped it with no explanation but I am assuming it was because of the cost and I was doing ok. I think I had about 12 infusions altogether, possibly more. I've had one infusion 2 weeks ago in the hospital, and he just stood there saying he was really worried about it, and really didn't want me to have it, but I said I wanted to take the risk as I'm not ready to have my bowel removed without exhausting all my other options first, and I know other people have gone back on Remicade after a break but not too sure how successful it's been a second time. I'm just hoping my second one goes as well as the first one. There has been a couple of time that I've had a pain in my chest since, but I've put that down to the tramadol. I don't want to think it's the Remicade because I want to see if it works for me again. The pain is like a sharp pain in my chest not so much a chest tightening, and I go abit hot, but it wears off after about 10 mins, so don't think it's anything to worry about (hopefully).

Hi Looby loo, thanks for your reply, I had a CT scan while I was in hospital, not sure if that's what you mean or if a CT colonoscopy is different? I didn't actually get told any results from it. I really should ask them more questions, but to be honest trying to get info out of them if like trying to get blood out of a stone, I never seem to get any, or at least not the answer to the question I've asked.

PB4, hi again, I quite like the fennel tea, and I thought the chamomile was ok, but not as nice as the fennel. I will try another cup tonight because it went abit cold lastnight by the time I remembered it. The only probiotic I've tried in pill form is the Acidophillus. I always forget to take it though as it's kept in the fridge. I keep meaning to take it, as I have some in there, infact I'm going to get it now while I'm thinking about it. Is this Primadophilus Reuteri the same sort of thing or completely different?


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/19/2008 2:48 PM (GMT -7)   
Hi Just wandering if you had the chest pain when yo took Rem. before? Hope they go away is it a side effect of one of the meds? Hope your drinks are going down good are you feeling any better yet? You know we will all be here to see how your doing. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


BuzyBum
Regular Member


Date Joined Feb 2004
Total Posts : 122
   Posted 10/19/2008 3:40 PM (GMT -7)   
I didn't get any side effects or reactions from the Remicade the first time I had it, apart from maybe a gammy belly button that never seemed to clear up for ages no matter what I put on it, but that's gone now. I do get chest pains when I take codiene though so I can't take that now, because it really is excruciating pain. The pain I am getting now is not as bad as that or the same, but I do seem to have got it after I've taken Tramadol. But I haven't had it everytime so I don't know. I want to mention it to them on Tuesday but at the same time I don't want them to tell me I can't have the Remicade incase it's not that causing it. They didn't want me to have it in the first place so I don't want to give them any excuse to take me off it. It's not like my chest tightening or anything, and it does wear off quite quick so I think I might just see how this next infusion goes and then tell them afterwards ;) if I'm still alive to tell them.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/19/2008 5:40 PM (GMT -7)   
Hi I had what I called killer heartburn when I was on pred and it was just between the bretst almost used to floor me. What 's with the gammy belly button was it herniated? I think you should tell them about it it might releave your mind if that's not what is causing it .Hopefully if anyone else has had chest pain from Rem. they will jump in. You could start a thread asking them. Hope you have a better night .Certainly hope you will be alive to tell them if you get the least bit worse go to emerg. will be thinking about you and don't want you to feel alone . lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


BuzyBum
Regular Member


Date Joined Feb 2004
Total Posts : 122
   Posted 10/20/2008 12:26 PM (GMT -7)   
Hi Gail how are you today? :)

The pain is on the left and just like a sharp pain, not an ache. I don't feel it's like a chest tightness. Hopefully it's heartburn from the pred, never thought of that, basically I'm just hoping it's anything else causing it apart from the remicade. I really don't want to mention it though incase they tell me I can't have the remicade tomorrow. I know I should but I feel that's my last hope now to make me well, and as the pain doesn't last long and doesn't feel like a tight chest (so hopefully not likely to stop me breathing) I'm hoping it's just something or nothing.

As for the belly button, it was apparently a yeast infection according to the doctor, which he gave me Fucidine ointment for, so I could only put it on at night cause otherwise it ruined my clothes. It used to clear it up for a few days then it would just come back. it was like that for about a couple of years. It eventually went when I came off the remicade but not straight away. It's been fine eversince, it was a small price to pay though for being in remission for 3 years :) I also had iodine for it, which didn't really work and was also bad for ruining clothes. It would go all dry and then the skin would crack and then it would be all weepy, then it would clear up, then start drying up again.

I've done really well on my diet today, not had the munchies much, but I took my steroids at 12am lastnight for today hoping to sleep through the munchies. I had abit of a sweat on, but apart from that I slept through, I haven't had any problems sleeping on them yet (touch wood). I'm going to do the same tonight. I have kept myself busy today though, but watched a particularly yummy version of a food programme today which almost made me give in, but I didn't lol. I should really steer clear of food programmes but they're my favourtite programmes so it's a nightmare!

Thankyou for the kind thoughts Gail, they're much appreciated :) I'll let you know how I get on tomorrow.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/20/2008 12:33 PM (GMT -7)   
I have heard that many folks who have been on Remicade and go off and then restart usually have to take some pre meds first. Such as Tylenol and Benedryl. Maybe they could try that before your next infusion. I hope the Remicade brings you some healing and relief and hope you avoid the surgery if all possible.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


BuzyBum
Regular Member


Date Joined Feb 2004
Total Posts : 122
   Posted 10/20/2008 2:37 PM (GMT -7)   
When I had my first insfusion again I asked if they would give me any premeds first and they didn't bother, they just said we'll give you something if something happens.

Also does everybody have a filter on their tube while it's going in? I read on the remicade leaflet that you should always have this on to make a reaction less likely but I always have to tell them to put one on and it takes me ages to get them to put one on, but I always insist on it. They usually put one on in the end before they give it to me, but I don't know why they don't always use one to start with. I have some zirtek tablets so I've taken one of them tonight and will take another tomorrow, just incase it might help.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/20/2008 2:42 PM (GMT -7)   
Hi Busy I'am doing good I went shopping today was tired but got it done. So glad to hear you got some sleep and that you stuck to your diet way to go. Thanks for telling me about your belly hope it don't act up this time and I"ll be waiting to see how you do tomorrow, Lots of Love gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


BuzyBum
Regular Member


Date Joined Feb 2004
Total Posts : 122
   Posted 10/21/2008 6:20 PM (GMT -7)   
Hi, glad you got your shopping done Gail :P

Well I survived my second infusion :) No problems so far.

The only thing that did concern me is that they are doing it differently at the hospital now. I used to be there all day and be waiting around forever, then I used to get a bed, and they used to check me every 20 mins. Now today I went in at half 9am, sat in a side room, I had the needle in my arm by 10am, and the Remicade was in by 10.30am. Then nothing. They left me for 2 hours. No obs nothing. She came in once to restart the drip as it was bleeping and just asked if I felt ok. I didn't have a bleeper incase anything went wrong. I was infront of the nurse station but they weren't always there.

Is it normal not to have any obs taken at all? I didn't get any pre meds either, unless hydrocotisone is a pre med? and they let me go after an hour, it's usually two. I'll be mentioning it to my consultant when I see him next just to make sure. I also heard them saying they couldn't find my notes (pretty sure they were talking about mine) then they were talking about what the side effects could be, about one and a half hours into the infusion (bit late by then eh?)

So all in all, although I'm all for getting out of there quicker, I'm abit worried that they weren't doing what they were supposed to be doing.

Post Edited (BuzyBum) : 10/21/2008 7:26:39 PM (GMT-6)


EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 10/21/2008 7:04 PM (GMT -7)   

HI! 

I have Crohn's and I had an emergency surgery 4 years ago which removed my entire colon when I was 32 years old. I strongly recommend that if you are going to go into surgery that it's done you are as healthy as possible because your recovery time is much shorter.  Since I was in extremely poor condition I was not a candidate for laporscopic  surgery and my incessions for an open procedure are much bigger, more painful, and have left larger scars.

BUT I am so happy now...yes it took time to learn to live with a bag and I have had my ups and downs.  I am in surgical remission and I am off all drugs.  Now I work at the hospital and for my doctors.  I have spoken to many patients who are also considering surgery. Please let me know if you have any questions about living with a bag.  I will log in tomorrow at work because I have some links on my work computer that may be useful to you.  I am actually working on a website for our hospital just for IBD patients so I have been doing a lot of research!

Erica

 

 

 


Erica
Crohn's and Ostomy in 2004


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/22/2008 5:31 AM (GMT -7)   
Hi Yes that is the med they gave me for pre meds .Glad you got your treatment in .How are things going now? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


lil-momma
Regular Member


Date Joined Feb 2008
Total Posts : 132
   Posted 10/22/2008 6:24 AM (GMT -7)   
What an awful position you are in! I'm sorry that you are facing this decision. I can't offer you advice as we haven't faced such a situation. I do however send you much love and hope that you come to a decision that is best for you. I hope you are feeling better soon!
Dx w/UC in 2001 - controlled by diet.
Mother to 15 yr old daughter dx w/CD 9/07-  she had surgery for abcesses 11/07.  She is taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa  500mg-x5, prednisone 10mg-x6, 6 mp 50mg-x3, Flagyl 250mg-x3


BuzyBum
Regular Member


Date Joined Feb 2004
Total Posts : 122
   Posted 10/23/2008 5:11 AM (GMT -7)   
Hi Erica, thanks for your reply. I was told I wouldn't be able to have the op done by keyhole anyway, whatever state I was in :( So I'm assuming I would have a massive scar down my belly as well?

I'm glad your life is much improved now from the op and that you are able to live with it happily. If the time ever comes for me to have it done, which hopefully wont be for a long time yet, I hope I get as much relief and am eventually able to come to terms with it.

At the moment the problem I have is that I don't think I have exhausted all my other options, so I don't feel ready for surgery just because my consultant tells me I need it. I don't feel bad enough (as in any worse than I have felt in past flares, where I have eventually gone into remission again) so it's a big step for me to agree to just like that.

I'd appreciate any links you have though if it's not too much trouble thankyou :) I need to be prepared just incase, and I know I have to face up to surgery just incase it happens, so any info is valuble to me.

Hope you continue to do well :)

HI Gail, I was absolutely wiped out yesterday so didn't post. Woke up with my face all puffed out and just felt drained all day. Also had abit of blood, which I don't tend to get much of, it's mainly mucus I get. Seems to have stopped today though. I have stomach ache at the moment but I am trying to hold off taking the Tramadol today. Need to go out to the docs soon to pick up my drinks prescription, then put it in the chemist, then wait overnight for them to order them in, it's such a pain, he only gives me 28 at a time, I feel like I'm in there every day. How are you today?

Lil-momma, hi, thanks for the support :) I've read a few of your posts about your daughter, glad you've got her home now and I hope she does well. Sending best wishes to you and your family.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/23/2008 12:16 PM (GMT -7)   
Hi I been a bit tired lately sleeping alot and just a little lazy I guess .Glad to see you on today and your right it is good to find out what you can about things. Sounds like you got a busy day ahead of you going to the drug store and all. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

New Topic Post Reply Printable Version
34 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Friday, December 09, 2016 2:56 AM (GMT -7)
There are a total of 2,735,216 posts in 301,284 threads.
View Active Threads


Who's Online
This forum has 151388 registered members. Please welcome our newest member, ebinease.
178 Guest(s), 2 Registered Member(s) are currently online.  Details
clo2014, NiceCupOfTea


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer