Has anyone had problems with Asacol

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Dree514
New Member


Date Joined Oct 2008
Total Posts : 11
   Posted 10/20/2008 9:52 AM (GMT -7)   
So when I was first diagnosed, they started me on Entocort and Asacol...and they apparently didn't work because I ended up in the hospital anyway.  I did tons of research on all of the possible medications and never found anything that said that I would lose hair from any of my treatments.  I lost a third of my hair from the Asacol, without even knowing that was what was causing it...so I called my GI and they told me that was what was causing it.  My question is, has anyone else run into this?

Dree514
New Member


Date Joined Oct 2008
Total Posts : 11
   Posted 10/20/2008 10:03 AM (GMT -7)   
Do you have any other suggestions for dietary things I should try to stay away from? other that corn and some of the other things that we don't really digest well anyway?

Dree514
New Member


Date Joined Oct 2008
Total Posts : 11
   Posted 10/20/2008 10:11 AM (GMT -7)   

thank you thank you

dree


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 10/20/2008 10:33 AM (GMT -7)   
I have not noticed any abnormal hair loss (thank God) from Asacol. I've been on it since 2001
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


mj8dokken
Regular Member


Date Joined Dec 2006
Total Posts : 149
   Posted 10/20/2008 11:28 AM (GMT -7)   
I did have some hair loss at first, but after being on it for awhile that stopped.

Bad flare May '06 resulted in CD diagnosis
 
Asacol: 2400 mg/day; Prednisone: 1.25 mg/day; Entocort: 9mg/day; Metronidazol
Started seeing a Naturopath-Castor Oil Packs, Liquid B Complex, Floragen, Ribes Nigrum, Herbal GI, Chlorella
 
"Life isn't about how to survive the storm, but how to dance in the rain"


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/20/2008 11:35 AM (GMT -7)   
I like mj8dokken have been on it for years. I never had any hairloss until this past 6-8 mos or so. But my GI feels its more from me being anemic than the Asacol. And my hairloss has not been that bad. Also the steroid (Entocort) can cause hairloss too. So maybe being on them both at the same time caused the increase in hairloss.

Many folks add extra Folic Acid and some also add Biotin to help with the hairloss. Biotin didn't like my tummy too much, but some have had great luck with it.

Also, I don't think I have had the pleasure of welcoming you to Healingwell, so welcome. There are alot really friendly and supportive folks on this board, I look forward to hearing more from you.

Good Luck,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


WildGoldn2
New Member


Date Joined Sep 2008
Total Posts : 17
   Posted 10/20/2008 12:19 PM (GMT -7)   
Hi,

I have been on Lialda for almost 8 months now. 3 months ago I started losing my hair. I'm not sure if it's from the Lialda or major stress from this disease and other health issues but it sucks either way. I'm certain my Christmas I will need a wig ... so depressing! :-\

Did you start losing your hair right away on the Asacol? Or did it take a few months after you started it? Some doctors tell me when you start losing hair you have to look at what was going on 3 months earlier in your life and that will tell you the reason why your hair is falling out. I don't know if it's true or not but that's what I've heard. I'm still hoping my hair loss is from stress and it will stop ASAP. I really don't want to switch to another drug.

Tami

mj8dokken
Regular Member


Date Joined Dec 2006
Total Posts : 149
   Posted 10/20/2008 12:39 PM (GMT -7)   

Hi Tami,

I think my hairloss started shortly after I started asacol, but it stopped probably within 3-6 months. Give asacol a chance, it's one of the less harsh drugs so if you can benefit from it it's better than moving up to drugs with more serious side effects. I know it's hard, but hang in there. smilewinkgrin


Bad flare May '06 resulted in CD diagnosis
 
Asacol: 2400 mg/day; Prednisone: 1.25 mg/day; Entocort: 9mg/day; Metronidazol
Started seeing a Naturopath-Castor Oil Packs, Liquid B Complex, Floragen, Ribes Nigrum, Herbal GI, Chlorella
 
"Life isn't about how to survive the storm, but how to dance in the rain"


WildGoldn2
New Member


Date Joined Sep 2008
Total Posts : 17
   Posted 10/20/2008 5:27 PM (GMT -7)   
I was on Asacol for a week when I was first diagnosed. It didn't help me at all. Lialda is basically the same as Asacol but it's a once a day pill. I sure hope my hair loss stops soon. It's really scaring me. I'm afraid to wash my hair and brush it. :-( I only wash it 3 days a week. On the days I don't wash it I don't lose so much.

Cookie's Wife
Regular Member


Date Joined Aug 2005
Total Posts : 299
   Posted 10/20/2008 6:47 PM (GMT -7)   
I've noticed no hair loss from Asacol.  I lost a lot of my hair when I was flaring and also while on prednisone.  My GI told me that it can take 3-4 months for the Asacol to kick in and to begin to feel any benefits from it.  It took me about 3 to notice a change.  I know it seems like forever but hang in there!
 
~april
 

 



FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/20/2008 7:37 PM (GMT -7)   
My hair loss started during my third year on pentasa. I now use rogaine.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

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