Pill endoscopy, LDN, Humira, and ME!!

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redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 10/21/2008 5:48 PM (GMT -7)   
Little Update here.
 
1. had a reaction to Humira and was taken off the drug by my MD. Last injection was Oct 1
2. Finally off Pred!!!!!!!!!!!!!!!!!!!!Been off since the end of sept. I flared quickly afterwards but used flagyl and cipro and have been feeling good since.
 
3. Since I was off the Humira, Pred, and antibiotics I gave LDN another shot.
Day 1 pain went from 8 to 3
Day 2 no pain and stools became semi formed.
Day 3 1 formed stool. 100% asymptomatic.
Day 4 I actually had to take a stool softner
Day 5 feeling great with tons of energy.
My GI was pissed off when I told him about the LDN, he just said its probabaly a placebo effect. So what if it is I said??
 
tomorrow I go for a pill endo just because it was already scheduled. No dummy pill just the real thing. If  it gets stuck I go to surgery. Either way if there is a stricture its gotta be fixed sometime.
 
 
Ill let you know how it goes. 
 
 
29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 10/21/2008 7:08 PM (GMT -7)   
Good Luck tomorrow Redspot!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/22/2008 5:26 AM (GMT -7)   
Hi Hoping things go good for you . Keep us posted. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/22/2008 6:37 AM (GMT -7)   
Will definetly keep you in my thoughts. I hope everything goes well for you.

Hugs,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 10/22/2008 7:02 AM (GMT -7)   
Good luck mate and I am really pleased you are getting on top of this.

redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 10/22/2008 6:50 PM (GMT -7)   
Had the endo today. WOW was that easy!!

It took 2 mins to strap on the hardware and swallow the pill. I came back 8 hours later and they removed everything.

I only had to be NPO from 12 noon to 12 noon. Not bad at all. I still have no pain and had 2 bm's today. I didnt see the camera, but didnt really go looking for it!

Well see what happens. Thanks for the support.
29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 10/22/2008 11:16 PM (GMT -7)   
I swallowed the pill cam on a Thursday. I had D at least 5 times a day starting Thursday afternoon but the pill cam didn't come out until late on Sunday. I don't know where it was for three days but there were no strictures or blockages.

redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 11/12/2008 8:07 PM (GMT -7)   
UPDATE!!!
 
-I had a Capsule Endo on the 22nd.
 
-After the endo I felt like I was having more obstructions than usual but the pain was still at   bay thank god for LDN.
 
-No more daily D or daily pain ,just pain during obstructions. I continued to stay on liquids for the most part because solid foods would block me up.
 
 
RESULTS!!!!!!!!
 
Today I had 3 appointments. MRI for Lumbar spine, Capsule Endo results GI, and B12 injection. Busy day.
 
MRI. - I layed in the scanner to start the test and the tech came running in "you have metal in you somewhere" I knew then the camera was still in me~!
 
Had an xray - showed 1.1cm x 1.3 cm object in small bowel!!
 
Went to GI - He says its my decesion. Next wee I can have surgery or he can try to retreve it with a colonoscope..   
 
What would you do? If the camera is stuck there is a stricture that needs to be removed right?
 
Until the big decesion next week Im trying 80mg PRED for 3 days to see if it will pass..
 
 
29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 11/12/2008 8:30 PM (GMT -7)   
Good grief Redspot. Im not sure what I would do in your situation after only having had a resection 9 months ago, I would be a bit reluctant for more, but I guess you have to do what the Dr.s think is best. Good luck with your decision and keep us posted.
Jo

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/13/2008 7:02 AM (GMT -7)   
Hi Redspot I would be going threw the poo with a fine tooth comb. I don't know but if you are obstructing I guess it makes your decision a little harder. What are you leaning towards here. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail

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