Hospital Crohn's Patient Cart

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EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 10/21/2008 7:21 PM (GMT -7)   
Okay everyone I need your help!  I have Crohn's, I have an ostomy, and now I work for my doctor and surgeon and I have a fun project to do-A hospital patient cart of goodies.
 
Basically they used to have an ice cream cart that woud go around in the afternoon and offer ice cream or frozen juice cups to the patients then it disappeared (probably funding or something like that).
 
Now they want to bring it back in fill it with items IBD patients (both Crohn's and ulcerative colitis) might want.  So far I have come up with soft toilet paper since the stuff at the hospital feels like tissue paper, air freshner, we are going to create our own videos on the diseases and surgical options so I will have our own IBD library on DVD to offer, and our internal newspaper which will include informaiton on local IBD groups such as CCFA and support groups.
 
What else would you recommend for my IBD patient cart?
 
Thank you!
Erica
Erica
Crohn's and Ostomy in 2004


irish63
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 10/21/2008 7:35 PM (GMT -7)   

That is so awesome!  What a really cool thing to do, you must work for some really caring docs.  How about adding some books that deal with "having a chronic illness/living with one", and the info on "this website"!  Also, maybe some suggestions or even referral info to dietitians at the hospital. 

That's really all I've come up with now (certainly not much) but I really wanted to say how cool I think what you're doing really is!  Good luck!!!!


Dx: 10/04 Crohn's, GERD, IBS,Osteporosis, Depression, Hypokelemia, "Crohn's" Arthritis, Migranes,
Meds: Asacol, Protonix, Lexapro, Celebrex,Potassium, Remecaide,Entocort, B12 injections wkly, Magnesium, Calcium, Phosphorus 
 


EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 10/21/2008 7:41 PM (GMT -7)   
Thanks! I'm really enjoying it and feel very blessed with the opportunity. When the website is up I will post it!
Erica
Crohn's and Ostomy in 2004


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 10/21/2008 7:48 PM (GMT -7)   
Hard candies, Boost, bottled water, hand sanitizer, Tucks wipes, "Got Guts" Gear from CCFA, resource guides for organic foods, recommeded dietary supplements, Yogurt....mmmm...I'm sure there is more....come on guys help out here....this is a fantastic opportunity!  Just remember that you can't put actual samples of drugs or supplements on the cart cause most hopitals will not allow you to do that, however, you can give them resource suggestions!


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 10/21/2008 8:18 PM (GMT -7)   
The main thing I can think of is bottled water. I know we can never get enough water...especially if we're in the hospital.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/21/2008 8:26 PM (GMT -7)   
That is really cool...

Seems like we IBDers don't want for much eh...just quick and easy access to a toilet, soft TP, soothing wet wipes for those fissure times and water....the probiotic samples are an excellent idea along with the yogurt, same with the referrals list and basic resources....maybe some samples of "Depends".

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/21/2008 9:45 PM (GMT -7)   
Chocolate, desserts and other high energy foods that are low-residue and either gluten free or dairy free.

I don't know what the hospital food is like there, but here the meals aren't big enough to give us the energy we need, and there are no high-energy options for people with food intolerances.

And yes, soft toilet paper. Maybe some squirty bottles for rinsing bottoms too.

Oh, and perhaps some samples of different supplement and meal replacement drinks.

This is such a good idea, Erica. I hope it succeeds and is embraced by the hospital, as it should.

Ivy.
Co-Moderator Crohn's Forum.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 10/21/2008 9:54 PM (GMT -7)   
what they said .... but ill be mean and say popcorn , salad and fruit. a corn cob for wiping :-) just kidding!
randynoguts 



     http://www.geocities.com/randynogutsweb/


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 10/21/2008 10:09 PM (GMT -7)   
lol Randy! What a great opportunity Erica! I go with all of the above and a definite must is the yoghurt, as mentioned. I know my first long walk in hospital is to buy some yoghurt from the shop in the lobby.
Jo

eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 10/22/2008 1:06 AM (GMT -7)   
crohns friendly cup of soups (while in public they gave me a soup wit curry in it???),marshmellows,assortment of lollie pops or hard boiled candy,book of bathroom jokes,
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/22/2008 1:24 AM (GMT -7)   
Soups - good idea, eva.
Co-Moderator Crohn's Forum.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/22/2008 1:24 AM (GMT -7)   
And what about some HW information or merchandise?
Co-Moderator Crohn's Forum.


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 10/22/2008 2:41 AM (GMT -7)   
Good idea on the cart for IBD.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/22/2008 4:27 AM (GMT -7)   
Hi Personal ithems sometimes people come in as a emerg. Tooth brushes and deordorant and shampoos and conditioner.Razors and slippers. socks and underware ha ha .Perhaps some carrying cases and some reading books and magazines.All I can think of for now. Good luck lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/22/2008 4:42 AM (GMT -7)   
Love the idea. I don't have much to add ... maybe apple sauce and jello but I'm sure you get plenty of that from the nurses. Pedialyte? Banannas?
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


taadaa
Regular Member


Date Joined Sep 2008
Total Posts : 20
   Posted 10/22/2008 4:54 AM (GMT -7)   
Great idea. I love it! How about some soothing music cds? Cds of relaxation and inspiration???
I would have enjoyed many of everyones great ideas during my last hospital stay!

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 10/22/2008 5:17 AM (GMT -7)   
How about popsicles and G2?  I am always dehydrated and popsicles are a great treat.

Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/22/2008 6:17 AM (GMT -7)   
audiobooks with some sort of player
cream for you burning booty (the stuff with the pain killer in it)


Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 10/23/2008 7:39:44 AM (GMT-6)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/22/2008 6:25 AM (GMT -7)   
heating pad!!!
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/22/2008 8:52 AM (GMT -7)   
Magnifying glasses incase they forget there glasses home or don't have time to pick them up ,writing paper and pen .I enjoyed a single rose when I was in. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


mj8dokken
Regular Member


Date Joined Dec 2006
Total Posts : 149
   Posted 10/22/2008 9:27 AM (GMT -7)   
Maybe some lotion? My skin gets kind of dry when I'm sick and dehydrated. Or little bottles of olive oil for soothing fissures (I'm hooked on this thanks to pb4 smilewinkgrin )
Bad flare May '06 resulted in CD diagnosis
 
Asacol: 2400 mg/day; Prednisone: 1.25 mg/day; Entocort: 9mg/day; Metronidazol
Started seeing a Naturopath-Castor Oil Packs, Liquid B Complex, Floragen, Ribes Nigrum, Herbal GI, Chlorella
 
"Life isn't about how to survive the storm, but how to dance in the rain"


EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 10/22/2008 11:01 AM (GMT -7)   
Thank you all what great suggestions and I will take it into my meeting today and let you all know how it goes!
Erica
Crohn's and Ostomy in 2004


EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 10/22/2008 5:40 PM (GMT -7)   
I had my meeting with my doctors and they loved the list of items-so the next step is to make it work!

Thank you!
Erica
Crohn's and Ostomy in 2004


mj8dokken
Regular Member


Date Joined Dec 2006
Total Posts : 149
   Posted 10/23/2008 7:28 AM (GMT -7)   
That's great Erica! What a wonderful place you work for!

Bad flare May '06 resulted in CD diagnosis
 
Asacol: 2400 mg/day; Prednisone: 1.25 mg/day; Entocort: 9mg/day; Metronidazol
Started seeing a Naturopath-Castor Oil Packs, Liquid B Complex, Floragen, Ribes Nigrum, Herbal GI, Chlorella
 
"Life isn't about how to survive the storm, but how to dance in the rain"


BuzyBum
Regular Member


Date Joined Feb 2004
Total Posts : 122
   Posted 10/23/2008 8:07 AM (GMT -7)   
I second the personal items. I bought a toothbrush as I got thrush in my mouth and thought a new toothbrush might be a good idea once it had cleared up. Deoderant for the night sweats. Definitely the underwear, I had to get my friend to buy me two lots of 5 pairs when I was in because I didn't want my male friend who was looking after my cat rooting through my underwear drawer to bring me more in :P Pen and paper to keep track of the tablets they were giving me, because if I didn't they didn't. Also to keep track on how I was feeling. Magazines. Moisturiser for face and body, preferably one with a gradual fake tanner in it, makes them think you're getting better as you get more colour in your face (worked for me haha) and they let you home quicker. I used Nivea, it's cheap and it works. Also I've never been so moisturised after spending 16 days in hospital with nothing better to do than rub cream all over me. Sanitary towels, took me about 10 mins to get a sanitary towel out of the nurse one day because she was foriegn and didn't know what I was on about even though I felt like I was on "give us a clue".

I know they've all been mentioned but I thought I would point out why they were important to me.

Also nightdresses, I used the hospital ones the whole time I was there because I was sweating everynight, but it would have been nice to have had my own once in a while.

As I was on a liquid diet I couldn't buy any sweets off the trolley :( but I would have been buying them out of stuff if I could have done. Mini cheddars and fruit gums...mmmmmmmmmm.

Good luck with your project.

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