Trying to Chin Up

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New Member

Date Joined Oct 2008
Total Posts : 19
   Posted 10/21/2008 10:36 PM (GMT -6)   
HI there, I want to say that this site is amazing, like a breath of fresh air I have felt so alone. Where to begin all this I guess started last September when I was having sever pains after eating, and diarrhea. Finally one of the docs said it's my gall bladder malfunctioning and jus constantly contracting. So I had it removed, but after that the diarrhea never really went away nor did the stomach pains. So back and forth to the docs, can I mention that I do not have health insurance? So while the bills raked up I wasn't getting better. So I was fet up with doc and put myself on a low fat, no gluten diet and it seemed to work until August when I would rectal blee, vomit blood, diarrhea and pass out due to abdominal pains. I went to the ER twice and they put me on Bentle and told me to go see a gastro. Not really helpful .I finally have a great Gastro and I'm on Asacol 3 tablets three times a day. I keeping up with the same diet.  But the pains are back right where my gall bladder use to be, it stabbs to my spine and is there about 18 hours a day. I get aweful hot flasses, sweats that can soak through any outfit its almost embarrassing but seeing as I've vomited all over floor at work and pooped myself i can deal with sweats. But I've just about had it. The doc gave me Tramadol but it doesnt totally help just makes me dizzy. I've never been a negative person, but I find that sometimes I cannot stop from crying and hating my life. As of Nov I have health insurance and get to have a whole slue of tests. But I just feel so alone, and helpless. I can't seem to find the words to explain it to my family and boyfriend, they think I have a diagnosis I'm better.  I'm not terrified of a worse diagnosis at this point I'm scared to death of never feeling better. Is this normal?
PS Sorry about the spelling it's late and I haven't really slept  well in two days
26 year old felmale

Regular Member

Date Joined Jan 2007
Total Posts : 184
   Posted 10/21/2008 11:00 PM (GMT -6)   
Hi Brie! Welcome to HealingWell! I was your age 10 years ago when my troubles started and had very similar feelings. I'm now involved with a local youth group of crohn's and ulcerative colitis patients, although I'm one of the elders now, and it really help me out. When I'm feeling a bit down they are therre for me and other times I am there to lift people up. The message boards are great but they are no substitue to human interaction. If you are interested see if your local CCFA (crohn's and colitis foundation) has a junior group.

Are you near a large city? I recommend seeking out one of the top institutions for an opinion and treatment options. Many hospitals like Mayo, University of Chicago, Cleveland clinic will design a thereapy that for you that can then be maintained by you local GI. Also CCFa has a list of doctors on their website too.
Crohn's and Ostomy in 2004

Veteran Member

Date Joined Aug 2007
Total Posts : 990
   Posted 10/21/2008 11:03 PM (GMT -6)   
Hi broach and welcome. Sorry you have to be here, but there are wonderful, supportive people here to share your feelings and thoughts with. Hope you feel better really soon!
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more SCD recipes, too! (cooking challenged)

Regular Member

Date Joined Oct 2008
Total Posts : 376
   Posted 10/21/2008 11:03 PM (GMT -6)   
My family thought I was handling really well. But I was also avoiding reading anything about the disease, etc. Then I just read some stuff and felt cracked. I don't cry much. Every time I ever have, its 'cause of severe pain (emotional pain counted). Its weird for folks to see me cry, but after I read all about what I could look forward to, I cried around my folks. Then I ignored things again until I could deal with it. Sounds like avoidance but really, it keeps me sane. Most of the time, when the pain's bad, I hear myself saying, "It can't hurt when you're dead." I'm not suicidal. I just think of the future. It's hard to explain that. That's the best explanation I give myself. Meaning: at some point, maybe they'll figure out a way to make it stop hurting/go away/whatever; and I hope its in my lifetime. It's never easy from what I've lived. I'm actually borrowing a book from the library that covers that first year after diagnosis of Crohns. I'm hoping that it could help me get a better handle on things. I don't have insurance either. I'm going to have to go bankrupt when I can afford a blasted lawyer.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 10/22/2008 7:14 AM (GMT -6)   
Hi and welcome .It is not unusual for you to get a littlte depressed or feel alone being here helps us with that. On the up though it's great your insurance will be kicking in. A person learns to deal with things and we get through the hard spots . Most of the test that we get done are worth it to find out what is going on. Glad you are here with us .Things will get better. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still gail

Regular Member

Date Joined Feb 2008
Total Posts : 132
   Posted 10/22/2008 8:09 AM (GMT -6)   
Welcome! You have come to the right place! This forum consists of people who know exactly how you feel and they always bring me so much comfort. Our families love us and try to comfort us but they just don't understand this disease or what it does to our life's. I hope you feel the same comfort from here and know that you can come here any time day or night, no body is too busy or sick of hearing about crohn's. I hope you get feeling better real soon! Much love and laughter to you! I will add you to my prayer list!
Dx w/UC in 2001 - controlled by diet.
Mother to 15 yr old daughter dx w/CD 9/07-  she had surgery for abcesses 11/07.  She is taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa  500mg-x5, prednisone 10mg-x6, 6 mp 50mg-x3, Flagyl 250mg-x3

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