new chronie. lots of blood

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basil
Regular Member


Date Joined Oct 2008
Total Posts : 78
   Posted 10/22/2008 7:48 PM (GMT -7)   
I was just diagnosed a few weeks ago with Crohn's. My main symptoms are diarrhea (with lots of blood) and cramping. The bleeding is really the thing that scares me the most, especially because in my research this doesn't seem to be a completely common symptom-- is that right?
What has helped anyone else who has problems with bleeding?
The first drug i tried was Lialda, and that made the bleeding worse.
I've eliminated gluten from my diet for a couple months-- helped to minimize bloating and stomach pain but no help for the diarrhea and bleeding. I recently started the SCD, no relief yet but it's been less than a week.
I'm so glad to have found this place, it's so nice to have a supportive community!

Basil

potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 10/22/2008 8:01 PM (GMT -7)   

Hi basil and welcome.  I am glad you found this site too.  Sorry you have to be here though.  You will get lots of great information though.

As for the bleeding, for me that was the first and most persistent symptom I had.  I just bled, bled, bled for about 15 years solid.  Occasionally prednisone would stop if briefly, but not until I started Humira (over 2 years ago now) did the bleeding stop.  It seemed that most people suffered from d the worst, but for me the most disturbing part was all that blood.  Many times I would just go blood.  Typically the whole toilet bowl was completely red and that is all you could see.  After a while I just got used to seeing it.  I would get weak and very tired.  For me, changing my diet did not improve my symptoms.  I hope it helps with you and that you can get the right medications to control your symptoms soon.  Good luck. 

 

 

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/22/2008 8:07 PM (GMT -7)   
Every day most stools. But my question is what color is blood in your stool? and could it be from all the d? I am bleeding much more now, because I got an infection. Funny thing is one of the meds they gave me is like neospiron with topical numbing stuff for my booty burn.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
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All suggestions/options/opinions are caveated with please consult with your local health care provider...


basil
Regular Member


Date Joined Oct 2008
Total Posts : 78
   Posted 10/22/2008 8:12 PM (GMT -7)   
The blood is bright red. I don't think it's from the D because when the bleeding first started, i was having normal BMs. The D started after the blood showed up. Strangely, the last couple days (actually since I started the SCD) i feel like the blood is a bit darker than usual. I'm seeing my GI on Friday, so I'll ask him.
The one thing that helped (i forgot about this) was Canasa.

Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 10/23/2008 2:33 PM (GMT -7)   
Bleeding was alarming for me, too. I don't think it's at all uncommon.

Bright red means it's coming from low in the digestive tract- pretty common with Crohn's. So, yes- it's distressing, but it's not unusual.

Good luck with the SCD; I went from blood at least once a week to less than once a month. It's been over 6 weeks for me now. Keep the starch out of the diet, drop your consumption of sugars- all of them- and (if you've lost weight) don't sweat the calories. Fat and protein are your friends for at least the next three months once the D stops.

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 10/23/2008 2:46 PM (GMT -7)   
Bleeding is actually very common. Most places that list the symptoms for Crohn's will list bloody stool.
If you are losing a lot then I would definitely suggest seeing a doctor as soon as possible.
As for the bleeding being exacerbated by your medicine, this is possible but it may not necessarily be a bad thing. This happened to me when I initially began taking pentasa and alina but after a hospital visit and prolonged use my symptoms actually got better and I am virtually symptom free at the moment.
In any case, best of luck with this...I know it can be very frightening! Just don't hesitate to see a doctor if it continues or gets worse.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 10/23/2008 7:09 PM (GMT -7)   
Just wanted to say welcome Basil. I haven't experienced visible blood in the stool so I can't answer your question. Just wanted to welcome you to our family and say stop by anytime!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


broach
New Member


Date Joined Oct 2008
Total Posts : 19
   Posted 10/23/2008 7:32 PM (GMT -7)   
Hi Basil! I just joined the site a couple days ago myself, and it truly my savior. I too bleed a lot with normal stools and DT. I have GI appointment next week my he said that there could be a fisure, or tare. He also said that red blood is common to see in Crohn's its from the inflammation in the colon. When it's dark black lookig its from some where else like the stomach. Keep your fluids up, I do pedialyte. Probably be tested for anemia. I'm anemic but can't be on iron until all my tests are run apparently they can mess up results. Good luck at the doc!

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 10/23/2008 7:36 PM (GMT -7)   
I had a serious bleed, where I was hospitalized and they went in and fixed the bleeding ulcer.

Be careful with generalizations about blood color. Mine was bright red, coming from the TI. Way up there. It was just coming out so fast it didn't have time to turn dark! I don't pay attention to color as much as I do HOW much blood there is.

I think bleeding is more common then what a lot of people think with Crohn's.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!


basil
Regular Member


Date Joined Oct 2008
Total Posts : 78
   Posted 10/23/2008 7:40 PM (GMT -7)   
Thanks for all the replies! I feel better knowing that bleeding is more common that I had thought. How things change...I used to freak out at the smallest drop of blood on toilet paper, now that would be a relief!

Laslow
Regular Member


Date Joined Oct 2008
Total Posts : 25
   Posted 10/24/2008 5:07 PM (GMT -7)   

I've been diagnosed with Crohns for 20 yrs and have bleeding when my crohns is active. One thing to keep in mind is that other things

can cause cramping and bloody stools. I bled for a yr and thought it was just my crohns. It turned out to be diverticultis which was causing all the blood. A simple blood test showed inactive crohns so they did a cat scan which showed my other problem. In short, 1 1/2 of bleeding ended with a sigmoid colectomy. Don't assume it is always your crohns!!!

 

Jay


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 10/24/2008 5:59 PM (GMT -7)   
i remeber the first time i bleed,i was quite young 15 or something it was late at night and i thort i had bowel cancer lol so mum took me to the after hours GP and he sed it was normal.......didnt think to check for crohns.....but anyway my gi sed its normal for crohns and just to watch out for dark blood or tarry stools,great fun aye.
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 10/25/2008 2:30 AM (GMT -7)   
Hi Friend,

I know all about the bleeding. It is the worst feeling in the world and the fear it puts in ya is unreal. You have defo found the best place for advise here. Really good people going through the same as you. Take care and cut out the sugers. If you are having really bad problems with the weight, eat eat eat.

God bless and let us know how your get on with the GI.

basil
Regular Member


Date Joined Oct 2008
Total Posts : 78
   Posted 10/25/2008 9:31 AM (GMT -7)   
I went to the GI yesterday and he wants me to start Prednisone due to the weight loss and bleeding. I'm scared of starting it due to the side effects, and I guess it seems little drastic as I've only tried 1 other medication so far. I don't know that much about it, but the idea of taking a steroid just scares me.
So, I told him I'd think about it over the weekend. In the mean time, he prescribed Colazal, so I'm crossing my fingers that will help. I took my first dose last night, and I did have less bleeding this morning! I hate my insurance company though-- while they say the cover the Colazal, it was still over $200 a month supply! I just sucked it up and paid for it though, and will deal with battling it out with them if the Colazal ends up working.

Laslow
Regular Member


Date Joined Oct 2008
Total Posts : 25
   Posted 10/25/2008 12:43 PM (GMT -7)   
Prednisone has some bad side effects but it works really well. I found the weight gain the biggest problem. I guess getting better
is the most important thing.

Jay
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