Frustrated with SCD

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basil
Regular Member


Date Joined Oct 2008
Total Posts : 78
   Posted 10/23/2008 7:36 PM (GMT -7)   
I feel guilty because I cheated on the SCD tonight by having some brown rice pasta. I had only been on the diet for one week so I didn't last long without giving in to a craving. I was getting so miserable eating the introductory diet of fish, chicken soup, yogurt and eggs. I am still having D so my understanding is that i'm not supposed to start introducing other legal foods yet.
I was thin to begin with but started getting scary skinny just in a week on the diet. Plus, I haven't seen any improvement yet. I know I didn't give it much time to work, but I was starting to get nauseous just thinking about having more chicken soup or yogurt (things I normally love!). So I cheated.... I feel fine so far.
Any words of encouragement to get me back on the diet?? How long did it take before people starting seeing less D, and less blood? I know rice is bad, but is it that bad???? ;)

Basil

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 10/23/2008 7:51 PM (GMT -7)   
It's my understanding that rice is just as bad as potato or sugar (according to this particular diet anyway). Myself, I eat brown rice pasta often. There are others more experienced with scd though.

I am skinny like you and started losing even more weight on scd, plus I started to bleed. Good luck though.
Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. Udo's Choice Probiotics (30 billion).


Betaine, digestive enzymes, Candicin (oil of oregano capsules), Beta Sitosterol.

Tried SCD, didn't work, now avoiding gluten and dairy.


basil
Regular Member


Date Joined Oct 2008
Total Posts : 78
   Posted 10/23/2008 7:58 PM (GMT -7)   
Rider Fan,
How long did you try SCD?

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 10/23/2008 8:02 PM (GMT -7)   
Three weeks. I had to stop because I was so weak I couldn't even work for a week and ended up needing a blood transfusion from the bleeding.
Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. Udo's Choice Probiotics (30 billion).


Betaine, digestive enzymes, Candicin (oil of oregano capsules), Beta Sitosterol.

Tried SCD, didn't work, now avoiding gluten and dairy.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/23/2008 10:42 PM (GMT -7)   
The SCD is just about the same as Atkins only a bit more restricted to begin with. That's why the weight drops off. You might want to have a look at http://www.pecanbread.com/new/begindiet1.html for more info on the timing and variety of foods that you can add to the diet. It also has more info on common problems encountered when starting up the diet. For some other experiences with SCD, there's a thread here: http://www.healingwell.com/community/default.aspx?f=17&m=1262312&p=4. Just wondering about your yogurt - are you buying it or do you make your own? Commercial yogurt is not completely lactose free, so it should be avoided.

sully
Regular Member


Date Joined Oct 2008
Total Posts : 27
   Posted 10/23/2008 11:19 PM (GMT -7)   
different diets work different for all of us...no one thing will work for any two people with crohn's.....
 
if you want to eat brown rice pasta and it makes you feel good, then by all means eat it....if it doesn't bring on the instant stomach pains and diarrhea, then your all set...hell, have another plate....you need the calories...we have a hard enough time as it is getting calories, stressing yourself out about whether a food is allowed from someone else's perpsective is ridiculous, only you will know if something is going to work for you....just my opinion
 
also my opinion, and according to chinese medicine, brown rice is the very best thing we can eat, it is the most centered and balanced of all foods, it is especially beneficial prepared in a gruel/porridge/congee/soup  all words for the same thing i think, lol,  cook one part rice to 4 to 6 parts water on very low for about 4 to 6 hours, crockpot works nice for this, add whatever herbs and spices or veggies, or chicken broth or whatever if you feel like it....get a rice cooker, makes life easy, have brown rice on hand all the time, i try to eat it every day, it helps, add some garlic or other herbs you like and some butter, or whatever.....

Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 10/24/2008 7:25 PM (GMT -7)   
Lack of sugars is probably what causes much of the weight to come off, in conjunction with orthorexia- an excessive fixation on consuming healthy foods. ("Orthorexia" may be a bad term here, as while the diet is extreme, it must be adhered to stringently to achieve the desired effect.) Ingesting sugar results in a release of insulin, which in turn is an anabolic compound- it builds things, including fat. In the short run, consuming honey may help as it is comprised almost entirely of fructose and glucose, which are absorbed quickly, and do little (if anything) to feed the organisms responsible for this disease. Therefore, yogurt with fruit and honey is good, as is SCD-compliant custard- lots of egg, lots of cheese, lots of fat and protein with enough honey to make it palatable.

I never tried rice while on the SCD; I started only 2-3 months ago having a bol from "Chipotle" with a small amount of rice, along with chicken, cheese, sour cream, and guacamole. The first couple of times, it didn't go so well, but now I find I can have half of a bol with absolutely no discomfort at all. I used to consume one ECPO (enteric-coated peppermint oil) capsule with each meal, but recently have been consuming capsules with amylase- an enzyme that breaks up starch. Although we secrete amylase to digest our food, maybe a bit more pushes the enzymatic hydrolysis of starch a little faster? I don't know.

A few observations:

If you find you can't stick to the SCD- that's fine. Don't kill yourself trying. If it's not working for you, you can always try again later. If you are comfortable with trying, the approach recommended by Lutz in "Life Without Bread" says you can eat whatever you want- just keep carbs to under 72 grams/day. He reported an 85% success rate going out as far as three years. Read the book, give it a whirl. The mechanism is the same as that with Gottschall- get the "bad carbs" out of the diet, or at least to a lower level. You can also take the approach as advised by Ebringer: eliminate the starch. This would be similar to gluten-free, except you can't swap out goodies like potato and cassava, etc. for wheat. Just get the starch out and keep it out. If you can maintain on one of these diets, you may also find comfort in the long run. You're trying to starve out something that likes starch and sugar; stay away from those components.

As for less D- for me, it's 72 hours. I found this out when I thought I had celiac disease. Take out the gluten, and within 72 hours, I felt great- every time. As for the end of blood- I started on 19 December, 2007, and by mid-February, bleeding had stopped. I've had 4-5 incidents since, each one of which can be tracked back to specific dietary "excursions," where I learned I was not ready for something I just ate. Each one has been less severe than the last, and the time between each event has increased. My last one was over 6 weeks ago.

Good luck.

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 10/24/2008 8:11 PM (GMT -7)   
I know most people like to but going completely cold turkey isn't always the best way to go. Don't beat yourself up. If you want to stay on the diet then by all means do BUT cheating every now and then is not the worst, and if you need the calories then definitely eat regardless of the diet. A diet isn't worth it if you're not even alive by the time it's supposed to be working :/ Putting weight on is more important right now it sounds like...
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret

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