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lil-momma
Regular Member


Date Joined Feb 2008
Total Posts : 132
   Posted 10/23/2008 8:18 PM (GMT -7)   
As you all know Sierra just had surgery. When discharged the surgeon's orders were to resume all meds except 6-mp and pentasa until I speak with her specialists. I called their office today, spoke with a nurse she called back....you all know how it goes. Anyway, the nurse calls back and says the specialist says I need to talk to the surgeon and they don't have the reports from the hospital yet. I repeat myself that the surgeon said I needed to discuss this with them. She has to call me back again. End result is to resume 6-mp and hold off on pentasa. My question is for those of you who have had surgeries do you resume meds immediately? My biggest concern is that she had blood transfusions on Sunday and when she left the hospital her levels were only up to 8.2. 6-mp breaks down white blood cells right? So it is ok for her to take? Do I resume or hold off until she has her follow ups? She sees the surgeon Monday and the specialist on Wednesday. Maybe I'm just paranoid now.
Dx w/UC in 2001 - controlled by diet.
Mother to 15 yr old daughter dx w/CD 9/07-  she had surgery for abcesses 11/07.  She is taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa  500mg-x5, prednisone 10mg-x6, 6 mp 50mg-x3, Flagyl 250mg-x3


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 10/24/2008 5:55 AM (GMT -7)   
If it were me, I would wait until I talked to somebody about your conerns. Monday and Wed. isn't that far away.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/24/2008 6:25 AM (GMT -7)   
Hi lil momma If it were me I'd go the surgeon's orders until her app. because the specialist might not know about her problems she had after surgery. How is she doing bowel wise now ? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/24/2008 7:57 AM (GMT -7)   
I would also wait until her appt. I personally believe even though she has had her resection that she should always be on some type of maintainence med, but with the complications she had afterwards, I would wait for her doctors appts.

Good luck!

Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 10/24/2008 2:18 PM (GMT -7)   
I'm with Nanners, I think some maintenance meds are for life. But a fews days missed here and there are fine. I would wait until you have confirmation from the doctors as to what they want her to be on, just to be on the safe side.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


lil-momma
Regular Member


Date Joined Feb 2008
Total Posts : 132
   Posted 10/24/2008 3:13 PM (GMT -7)   
She hasn't had any bowel movements since the clearing up of the left over blood. So her last bowel movement was on Tuesday. Should I be concerned about that?
Dx w/UC in 2001 - controlled by diet.
Mother to 15 yr old daughter dx w/CD 9/07-  she had surgery for abcesses 11/07.  She is taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa  500mg-x5, prednisone 10mg-x6, 6 mp 50mg-x3, Flagyl 250mg-x3


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/24/2008 6:13 PM (GMT -7)   
Hi I don't know if you should be concerned because I went almost everyday after my surgery. How's she eating? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 10/24/2008 6:28 PM (GMT -7)   
I had my resection surgery the first week of May and didn't resume any meds (other than painkillers) until my appt with my GI specialist in the first week of June. I suspect you could safely wait to resume meds until her appointments next week.
My surgery pathology didn't return with results for over a week, almost 10 days.
heidi
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.
2001 Dx'd with UC.  No remission.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returning after resuming 6MP.

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