How often do you get a Colonoscopy? (Or, how often does your GI recommend?)

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Julie1014
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Date Joined Oct 2005
Total Posts : 1245
   Posted 10/24/2008 2:30 AM (GMT -7)   
Good morning, everyone!  My GI likes to do a Colonoscopy every year.  Does this seem excessive?  I was wondering how often everyone here gets one.  (Or what their GI recommends.)  Thanks in advance for your time! :-)   Blessings, Julie
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 8mg/kg every 6 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


auntkay
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Date Joined Apr 2004
Total Posts : 1199
   Posted 10/24/2008 3:20 AM (GMT -7)   
My Gi has me come for scopes every three years.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/24/2008 3:38 AM (GMT -7)   
Yearly ...today



Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 10/24/2008 4:55:05 AM (GMT-6)


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 10/24/2008 4:09 AM (GMT -7)   
Good luck MMMNAVY!:)
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


aussie_male
New Member


Date Joined Oct 2008
Total Posts : 17
   Posted 10/24/2008 4:33 AM (GMT -7)   
Last one was just over 2 years ago. My specialist decided that I did not need one on my last appointment. I think most like to have a check up every 12 months or so but it depends on the doctor, if there are symptoms or complications etc.
35 yo male. Diagnosed in 1988.
Daily Medication - 5mg Prednisolone (7 - 8 years), 200mg Azathioprine, 20mg Pariet.
1 major bowel resection, fistula surgery (Sept 1990)
B12 supplements.


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 10/24/2008 10:40 AM (GMT -7)   
Thank you!:)
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 10/24/2008 10:47 AM (GMT -7)   
Every 5 years. I actually waited 8 years last time.
Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. Udo's Choice Probiotics (30 billion).


Betaine, digestive enzymes, Candicin (oil of oregano capsules), Beta Sitosterol.

Tried SCD, didn't work, now avoiding gluten and dairy.


mj8dokken
Regular Member


Date Joined Dec 2006
Total Posts : 149
   Posted 10/24/2008 10:54 AM (GMT -7)   
I haven't had one since I was dx 2 1/2 yrs ago and my GI has not brought it up since.

Bad flare May '06 resulted in CD diagnosis
 
Asacol: 2400 mg/day; Prednisone: 1.25 mg/day; Entocort: 9mg/day; Metronidazol
Started seeing a Naturopath-Castor Oil Packs, Liquid B Complex, Floragen, Ribes Nigrum, Herbal GI, Chlorella
 
"Life isn't about how to survive the storm, but how to dance in the rain"


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 10/24/2008 11:05 AM (GMT -7)   
My last one was also 2 1/2 years ago. My old GI wanted to do one over the summer, since I flared in May. But I didn't see the point in doing it after a couple months on pred. I also don't believe in doing it just because I flare. We already know what's causing it, we don't need to do such an intrusive test all the time. But then again I dropped that GI for other reasons as well.

My GP said at my last visit that he didn't feel I needed another one yet, so I'm good! LOL
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!


EruditePaul
Regular Member


Date Joined Jan 2006
Total Posts : 266
   Posted 10/24/2008 11:19 AM (GMT -7)   

I am thinking about having a colonoscopy these days.  My last one was about 5 years ago and it was normal.  My GI wants me to have another colonoscopy now, as it will be fully covered by my insurance.

The goal is to detect early sign of colon cancer.  But how about "false positive".  Eight years ago, my former GI ordered blood work for me (at a renowned hospital in Boston).  They said the results showed I had hepatitis B, which later turned out to be "false positive".  I was very shocked and angry at that time, but I did not file a law suit against the doctor, since he apologized to me. 

The thing I do not like it is because of the colon preparation procedure and the possibility of a "false positive".  Hey, congratulations, they found "dysplasia" in your colon!


Diagnosed with CD in 1994;

In 1994 I was treated with Pentasa of no avail.  Have being treated with Chinese herbal medicines for over 10 years.


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 10/24/2008 11:33 AM (GMT -7)   
I think the standard is that after 18 years of disease activity, you should have a scope every 2-3 years to check for dysplasia and colon cancer, especially with colonoic inflammation. Before that, most GIs like to scope Crohns patients about every 5 years to track damage and disease activity, but they also do them "as needed" when there are signs of strictures, fistula, excessive bleeding or a whole range of situations. Like the disease itself, every one's scope needs are different. Overall, the more serous and active the disease, the more frequent the need for scopes. Conversely, the more stable the disease, the less often they are usually suggested. Finally, if you have a history of polyps or first degree relatives with colon cancer you should probably be on a 2-3 year interval anyway, separate and aside from any CD needs.

Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 10/24/2008 11:49 AM (GMT -7)   
This is some very good advice from everyone. My GI wants me to have one every year, which I have. I tend to think it's "overkill."
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


TeacherBetsy
Regular Member


Date Joined Mar 2006
Total Posts : 310
   Posted 10/28/2008 11:34 AM (GMT -7)   
My GI asked me to start having one every other year when I reached my mid 30s, saying that it's important to be screened more often as middle age approaches. My disease is mild but I don't mind having the test that often for peace of mind.

Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 10/30/2008 9:29 AM (GMT -7)   
I'm going for mine on Monday, after 4 years.  I have put it off every year.....the first one I was unable to clean out my colon enough.  So I have my doubts this time as well.  Anyone have any tips re the dreaded colon prep? I already asked for the tablets, but the Kaiser doc said no.
Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf, adverse reactions to Remicade, Forteo Injections, Actonel, Calcium and Vitamin D, B12 injections.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/30/2008 9:49 AM (GMT -7)   
Jenn,
I would ask why not the pills. I would pull the my body my call number.

Next time I am going to ask for a yearly pill cam.

 


Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 10/30/2008 9:51 AM (GMT -7)   
HE just flat out refused. The nurse told me Kaiser won't get them until December and he said that gallon of crap works better? I told him how can something be effective if you can't take it? I bought the fleet stuff from the drugstore instead and a laxative. Any ideas which is easier? Then he tells me to do clear liquids for TWO Days?! Sure he's not doing it!
Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf, adverse reactions to Remicade, Forteo Injections, Actonel, Calcium and Vitamin D, B12 injections.


Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 10/30/2008 9:52 AM (GMT -7)   
Oh and I was diagnosed with the pill cam, but that was in LA, they don't have such procedures out here in Northern California.......
Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf, adverse reactions to Remicade, Forteo Injections, Actonel, Calcium and Vitamin D, B12 injections.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 10/30/2008 12:05 PM (GMT -7)   
They do the pill cam I'm sure in Northern CA, there are a lot of leading hospitals and doctors out there. Not sure about Kaiser, and if they do it though. I grew up in No. CA, never been a fan of Kaiser, family members had a lot of horror stories.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!


Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 10/30/2008 12:09 PM (GMT -7)   
I had what I thought were great doctors, but am still paying for unecessary tests from UC Davis.....and I had insurance, so because of the economy I'm with Kaiser. UC Davis is huge and they didn't even have the pill cam......
I had it originally done at Cedar Sinai in Beverly Hills, CA.
Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf, adverse reactions to Remicade, Forteo Injections, Actonel, Calcium and Vitamin D, B12 injections.

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