how to explain??

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chelsea_doll
Regular Member


Date Joined May 2006
Total Posts : 229
   Posted 10/24/2008 8:41 AM (GMT -6)   
does anyone have any ideas on a simple yet clear way to explain crohns to someone? i want to leave out the gorry details ( ie. diarrhea)

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/24/2008 8:49 AM (GMT -6)   
Hi Is this explaining to a boy ,co workers ,family? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


chelsea_doll
Regular Member


Date Joined May 2006
Total Posts : 229
   Posted 10/24/2008 9:10 AM (GMT -6)   
coworker

mj8dokken
Regular Member


Date Joined Dec 2006
Total Posts : 145
   Posted 10/24/2008 9:14 AM (GMT -6)   
I would tell them it's like having extended bouts of the flu (or continuous depending on the severity of your disease) I'm sure they'll get it from that.

Bad flare May '06 resulted in CD diagnosis
 
Asacol: 2400 mg/day; Prednisone: 1.25 mg/day; Entocort: 9mg/day; Metronidazol
Started seeing a Naturopath-Castor Oil Packs, Liquid B Complex, Floragen, Ribes Nigrum, Herbal GI, Chlorella
 
"Life isn't about how to survive the storm, but how to dance in the rain"


sully
Regular Member


Date Joined Oct 2008
Total Posts : 27
   Posted 10/24/2008 9:26 AM (GMT -6)   
i usually say something along the lines of:
 
its a condition where very little of the vitamins/minerals/nutrients of the food i ate are being absorbed into my body....
 
you can add whatever symptoms your comfortable with sharing....fatigue, nausea, diarrhea, etc....

chelsea_doll
Regular Member


Date Joined May 2006
Total Posts : 229
   Posted 10/24/2008 9:26 AM (GMT -6)   
I was trying to explain what it actually is lol

tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 10/24/2008 9:41 AM (GMT -6)   
This is a situation that most of us have on a daily basis. I always ask them if they know what an auto-immune disease is and then go from there. Usually, I just explain to them that my immune system is really active all the time thinking that my intestinal track is sick and causes it to be come inflamed. Because it always thinks that it is under attack, the inflammation keeps going causing ulcers throughout everything, which in turn eventually cause scar tissue and other digestive problems. I also just explain to them that because the immune system is overly active, it also can cause inflammation through out my other parts of my body, mainly my joints causing arthritis.
The most important thing that you can do is inform them in a way that your are not seeking sympathy, but just educating them. This will be a big benefit to you down the road if you ever need to call in sick or need to ask for some help. Just like other chronic conditions and diseases, educating the public about our disease is a huge thing. All too often people get a little to gross or in depth in their description about their disease and eventually come across as a hypochondriac or whiner. If we stay positive when we talk about our disease, then we you are really sick or in a flare, people will realize how that you are really having bad day or flare.
If the person has other questions, do not be afraid to answer them if you feel comfortable sharing that information with that person. I made the mistake with sharing a little too much information about why I am on SSDI, and that person and his wife started spreading rumors about how lazy I was and that I was addicted to pain medication. The truth is, I have never been addicted to anything in my life( I have never even drank a drop of alcohol or tried a smoking), but I told him or bad days I had to use pain medication so that I could function.
So, to make this long post end, I will just sum it up and say to keep it simple and not to try to make it sound too rough, even though this disease is the hardest thing that most of us will ever go through. Even though there most days we need to just cowboy up and take the pain and other symptoms just live a little, not everyone needs to know that you have D several times a day.

RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 10/24/2008 9:43 AM (GMT -6)   
I have too many antibodies and they are attacking my digestive track. Then I mention that it is like having a stomach flu all the time. But you can also give them a copy of the Spoon Therory from butyoudontlooksick.com, it helps explain the tiredness.
Red (Lee Ann)
    'Be who you are and say what you feel...
     Because those that matter...don't mind...
     and those that mind...don't matter.'


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17849
   Posted 10/24/2008 1:50 PM (GMT -6)   
When you want to keep it simple I say it's like having a stomach flu everyday.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


chelsea_doll
Regular Member


Date Joined May 2006
Total Posts : 229
   Posted 10/28/2008 6:56 AM (GMT -6)   
thanks

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 10/28/2008 5:38 PM (GMT -6)   
I find its hard to expain this illness to ppl. I just tell as little as possible.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 10/28/2008 7:25 PM (GMT -6)   
I'll usually say that I get ulcers throughout my intestines, since most people know what a stomach ulcer does to a person.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 10/28/2008 7:36 PM (GMT -6)   
I read an explanation once that isn't quite right but helps a bit.

The average persons intestine is like a rubber band, very stretchy and thin. A Crohn's person's intestine is like a rubber tire, very thick and not very stretchy. So you can imagine food trying to pass through and the way it would feel going through each one.

Then add the ulcers and the having the flu everyday to that and you pretty much have it.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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