Never ending fevers - new member - any advice?

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jill in ca
New Member


Date Joined Oct 2008
Total Posts : 19
   Posted 10/25/2008 10:37 PM (GMT -7)   
I am so glad I found this to hear the real life frustrations of others with this annoying disease.  I was DX in 2004, and have progessively getting worse.  My flare ups used to be 3 weeks and now its seems just as one is ending (currently finishing almost 7 months).  Right now, I have completely changed my diet over three months, my sed rate and WBC are normal for the first time since I have been tracking them, I am not on any prednisone, only pentasa and entocort, BUT I HAVE A FEVER EVERYDAY!  And the days it doesn't actually show I have a fever I still feel like I do and get the chills and hot flash feeling.
 
I have tried Remicade during a flare up and got pneumonia.  The 6MP gave me such joint pain I couldn't walk.  Haven't tried Humira...interested in that.  However all of these are too aggressive for something as petty as a fever!!  But I am really not functioning.  It is becoming stressful on my family, and because I am in sales it is affecting my income. 
 
Does anyone have any success with natural remedies or anything to help with fevers?????  My dr sending me to their herbalist next week which I have never done. 
 
HELP!
 
Jill in CA cry

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 10/26/2008 1:52 AM (GMT -7)   
hi jill and welcome to our place of knowledge. well for starters, a low fever is pretty dang normal it seems for us. all part of the disease. as for the seeming long flare, that happens too. unfortunately. i myself dont think i have EVER been in a non flare time, just differant levels. you say you had pnumonia after the remicade, is it possible you may have contracted a slight case of TB also? did you travel outside the US? someplace with malaria etc..? all should be considered before chalking it up to CD. have you ben given Imuran before? this may be an alternative for you. just some thoughts to ponder. fel free to ask anything here we have seen it all or done it all so sombody has either had your problem or does now and will give there 2 cents. oh and the TB can be checked with just a skin test and the malaria with a blood test.
randynoguts 



     http://www.geocities.com/randynogutsweb/


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/26/2008 6:20 AM (GMT -7)   
Hi Welcome to Healing Well glad you joined us. Not sure what to do about the fevers but as Randy said maybe another med. My temp. is usually low . I am sure others will be along to help. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Squattie
Veteran Member


Date Joined Jul 2005
Total Posts : 669
   Posted 10/26/2008 7:01 AM (GMT -7)   
I don't know about never ending fevers, but at times I get never ending hot flashes that give me the sweats and the chills. How old are you? I'm doing the menopause thing (oh, and absolutely love it let me tell ya). I do find if I'm a good girl with my omega 3's, I don't flash as much.
.....Squattie


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 10/26/2008 12:34 PM (GMT -7)   
Greetings, Jill.

When my WBC is high, I get a low-grade fever. I, like squattie, am at that age where I tend to run a little hot from time to time. wink

As for natural stuff, I take acidolophilus, omega3 and B12 daily in addition to a muli-vitamin.

-Leslie

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 10/26/2008 1:43 PM (GMT -7)   
jill in ca said...
My dr sending me to their herbalist next week which I have never done.[/img]


Wait...hold it... back up! You doctor is sending you to an herbalist?!?!? Wow..... :-) Is this a GI doctor, a family doctor or something else?

Welcome to the forum, by the way! Hope something helps you! As for natural stuff, we use what's listed in my signature at the bottom! You aren't taking ibuprophen for your fevers, are you?

I know fever can be a sign of active Crohn's, but I'm with Randy. You might want to have some blood work to rule out what he mentioned and I would add mono and/or Epstein Barr virus (similar to mono). You said your WBC and sed rate are better, but have your flares subsided along with the better blood tests?
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more Specific Carbohydrate Diet (SCD) recipes, too! (cooking challenged)

Post Edited (EMom) : 10/26/2008 3:23:38 PM (GMT-6)


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 10/26/2008 4:41 PM (GMT -7)   
I have constant hot flashes. Supposedly, I'm not pre menopause. I finally decided it runs with the territory. I am on Humira. I dress very cool for the climate and make myself comfortable. Air in the car everyone else is freezing. My mom visited and couldn't believe how hot I am all the time. I would talk to your doctor about it, I have come to feel for me it's par for the course. Best wishes.

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 10/26/2008 6:27 PM (GMT -7)   
Hi Jill,

This isn’t a long-term remedy, but I suffer from chills A LOT and often in situations (like work environments) where I can’t just run to the Dr or get medical attention. If I am FREEEZING my bottom off, and feeling really awful and chilled to the bone, to warm up again I boil some water and drink it as hot as I possibly can… holding something warm (the cup) helps too…. I’ve found that this sometimes works to warm me up momentarily. It doesn’t always work but when you’re as cold as you feel with a fever chill, it can make all the difference.

P

BuzyBum
Regular Member


Date Joined Feb 2004
Total Posts : 122
   Posted 10/26/2008 10:24 PM (GMT -7)   
Just before I went into hospital I was getting fevers and chills really bad to the point my teeth were chattering.

My consultant took me off Azathioprine (and humira) and said I might have a low while cell count and that could be causing it.

Don't know if you might have a low white cell count? Might be worth getting it looked at. Turns out I did have a low white cell count but I also had some sort of throat/chest infection as well.
37yr old woman UK. Diagnosed with crohns in 95. Currently on 2400mg asacol, 100mg Azathioprine, 35mg pred (tapering one a week, then finish). Been on Remicade once which worked well for me, but they took me off it. Flared up again. Took Humira but it didn't seem to agree with me, but thinking it was now an infection rather than side effects from Humira. Now back on Remicade, had 2 infusions so far and no reactions as yet. Consultant wants me to have a colostomy bag fitted, I've refused and want to try as many options as possible. On Elemental 028 extra diet for 6 weeks. Man I want some foooooood!!!!


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 10/27/2008 1:25 AM (GMT -7)   
about 20 years ago when I first came down with Crohn's, I started running a low-grade fever that lasted about a year. The fever wasn't cured until I had a bowel resection. As it turned out, the fever was the result of fistulas, which are a common occurance in Crohn's patients. My fever was cured by surgically removing the diseased tissue, but that wasn't the main reason for the surgery (the obstruction was what inspired the surgery).
 
I don't know if your fever is caused by fistulas, but it's certainly possible. I'm not sure what can be done about that other than surgery. Again, you wouldn't want to have surgery just to get rid of the fevers. Also, surgery doesn't cure Crohn's, but for someone seriously obstructed it's sometimes the only way to get your life back. It has helped me, but I've been through 3 surgeries in 20 years and I'm starting to develop symptoms again recently.
 
My understanding is that some of the drugs that Crohnies often take (Remicade, prednisone, 6MP, etc) can heal fistulas, but the side-effects from the drugs are no picnic either.
 
best regards,
Robert
 
Crohn's since 1988
3 resections


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/27/2008 5:03 AM (GMT -7)   
Low grade fevers are very common with crohns. But I am with everyone else please get it checked out.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


jill in ca
New Member


Date Joined Oct 2008
Total Posts : 19
   Posted 10/28/2008 11:27 AM (GMT -7)   
Thank you so much for all of your quick responses. My WBC is the lowest it has ever been. I do not have any other symptoms and nothing is showing up in any blood work. Usually my liver enzymes are elevated and even they are normal for the first time ever. This is my fourth doctor in five yrs and no one seems to have an answer about the fevers. They have not done an MRI looking for fistulas, I have never had that. What other symptoms would indicate a fistula?? The same as a flare up?
Diagnosed with CD in 2004.  Currently taking Pentasa, Entocort, probiotics, fish oil, ultra inflamx powder.  Dairy and wheat free diet.  Only struggling now with fevers, everyday!

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