Is there any place for spousal support for this disease?

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jill in ca
New Member


Date Joined Oct 2008
Total Posts : 19
   Posted 10/25/2008 10:46 PM (GMT -7)   
I think my husband would benefit from having a place to ask questions and vent his frustrations with this too.  Anyone know of a place they support significant others???
 
Jill in CA

randynoguts
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Date Joined Jan 2003
Total Posts : 6050
   Posted 10/26/2008 1:43 AM (GMT -7)   
we do that at our ccfa meetings.. he might give the local chapter a call.. sometimes when spouses come to our meets, they realize that the sick one is not making it all up and actually has pain and such.. this may give him some reasurance. to meet others in his situation.
randynoguts 



     http://www.geocities.com/randynogutsweb/


LBJ
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Date Joined May 2005
Total Posts : 511
   Posted 10/26/2008 6:17 AM (GMT -7)   
randynoguts said...
we do that at our ccfa meetings.. he might give the local chapter a call.. sometimes when spouses come to our meets, they realize that the sick one is not making it all up and actually has pain and such.. this may give him some reasurance. to meet others in his situation.

I have to agree...  I have taken my husband with me to ours and he learned so much!!  It really did make a difference.
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone-  I am off of it!!   YAAHH!!! :-)   
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg every day
                           Wellbutrin twice a day
No Surgeries
 


FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 10/26/2008 8:03 AM (GMT -7)   
Some spouses or parents post on here too but I dont know of a board just for spouses. I know the dragonpack board is for parents.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


randynoguts
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Date Joined Jan 2003
Total Posts : 6050
   Posted 10/27/2008 3:02 AM (GMT -7)   
yeah like i said my wife goes occaisonaly and so does my mom.
randynoguts 



     http://www.geocities.com/randynogutsweb/


jill in ca
New Member


Date Joined Oct 2008
Total Posts : 19
   Posted 10/28/2008 12:28 PM (GMT -7)   
Forgive my ignorance-what is the CCFA meeting? Is that something that happens locally to where you are? How do I find out where these meetings are?
Diagnosed with CD in 2004.  Currently taking Pentasa, Entocort, probiotics, fish oil, ultra inflamx powder.  Dairy and wheat free diet.  Only struggling now with fevers, everyday!


RedAdmin
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Date Joined Aug 2003
Total Posts : 1017
   Posted 10/28/2008 12:58 PM (GMT -7)   
The CCFA is the Crohn's & Colitis Foundation of America. On this site they are listed under Resource Directory - organizations. It is a very useful group.

http://www.ccfa.org/
Red (Lee Ann)
    'Be who you are and say what you feel...
     Because those that matter...don't mind...
     and those that mind...don't matter.'

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