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Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 10/26/2008 10:10 AM (GMT -7)   
I'm not doing well at all. Friday, something happened to my elbow. It hurts so bad that I can feel it through percocet (which makes me not feel the agony living in my hips and knee). I went to the ER since I don't have a PC doc yet. I knew it wasn't broken but I never cry from pain. I spent about four hours crying. I considered suicide which is crazy and I know it. The ER doc did the X-ray which I knew and told them I didn't require. I figured it was a torn ligament or something similar. He came in for two minutes. Touched my wrists, felt along my arm and then never returned. I got a script for more pain meds (Vicodin). I almost started crying even harder then. I don't WANT pain meds. I want someone to take a second to figure it out. Take a blood test, anything. It hasn't stopped hurting. I've iced it, I've kept it immobile, I've rotated my shoulder, and it won't stop. The pain radiates up to the back of my shoulder blade and down to my fingertips. I never go to the ER lightly. I figure why? They never figure out what a problem is (I learned this when my organs started shutting down when I was suffering from a massive infection caused by abscesses and fistulas). I am fighting for my life now I think. Not from an outside source by from myself. I've learned to deal with my depression but the constant never ending pain is starting to make me lose my mind. I'm pretty certain of it. I got maybe four hours of sleep last night because any time I moved, I woke up gasping from the pain of my arm, my hips, my back, my knee. I'm afraid of myself in a way I haven't been since I was sick five years ago. Back then, I was afraid that the ERs were going to let me die. They would send me home with a shot in the butt for the nausea that made me vomit for 8 hours straight and the pain in my back (from the swollen disc in my spine). I'm there again. I keep wondering if my family would forgive me. I'm afraid of myself. I'm trying to distract myself by going to an anniversary party today. And tomorrow, I go to work and I'm so scared. I threw up from the pain twice on Friday (that or the four hour crying jag). I don't know how I'm going to do my job. I'm only a sub so I could lose my job b/c I'm only in the first three months and not past my six month probationary period but I don't know how I'm going to work. I already took Saturday off. All I can feel is tired. Tired of hurting every minute, every second, all the time. I don't want pain meds. I want someone to take at least ten minutes looking at what hurts and come back to tell me what's wrong. They said its myalgias. Except I told the doc I think it was both the muscle and the joint. Not that they listen. They never listen. I just don't think I can keep it up. I will, I'm not stupid but I'm waking that line. The pain may make me crazy. I'm trying but I'm so tired.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/26/2008 10:46 AM (GMT -7)   
Please Joie, please talk to someone about your thoughts... I know pain can make you very depressed, and believe me I've been down that
road, but I've never considered taking my own life. I think if you could talk with a councilor or someone completely unattached to you, you
may benefit..
As for your on going pain, maybe a visit to the ER might be in order. I don't think anyone should suffer that kind of pain....
You need to get some help hon!!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis
B12 Shots bi-weekl

Positivity, while not a cure, is positively far better than negativity.
"Mental attitude can move mountains" A message from my son.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/26/2008 10:54 AM (GMT -7)   
Hi Joie Did they say what kind of myalgia they think you have. You should get a GP and then see a rhuemmie. Sorry things are so bad for you right now and hang in there till you get some better help. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/26/2008 11:00 AM (GMT -7)   
Ok first thing... you need a primary. Do you have insurance? What happened to your last primary? Can someone from that office get you in on an emergency basis? What about a walk in clinic. I have no personal experience with this but have worked with many many people considering self harm. It is one thing ER's don't take lightly. You may need to return and tell them about your thoughts. They may admit you but at least you would be getting some treatment, hopefully for both of your problems. Do you have a therapist of psychiatrist? Now is the time to use that emergency phone number they gave you and talk to someone.

Call the Samaritans and just have a sympathetic ear to listen to you. 877-870-HOPE. Here is their website: http://www.samaritansofboston.org/

Your job is important but you have to take care of you first. You said you are a sub right? A sub teacher? Is it a job where there is always work and if you lose this one another will be around the corner? Put YOU first.

I hope you feel better soon.

By the way, please ask a friend or a relative to come hang with you until you get over this hump. And try to check in with us as much as possible. We are here for you.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 10/26/2008 12:24 PM (GMT -7)   
Joie -

First, I wholeheartedly agree that you need a primary care physician. With the radiating pain that you are describing, you need to see a neurologist (specializes in nervous system) in the event that you have a pinched/severed a nerve. They can help with this OR point you in the right direction - reumy doc, etc.

Now about the thoughts you are having due to the pain, posting here is a good start. The folks here are wonderful and extremely supportive. You can vent and speak openly about what's going on with your mind and body. BUT please, if you continue like this seek out someone, a counselor or whatever, to sit down and talk with. Dealing with excruciating and continuous pain is difficult, we all realize this... but the thoughts you are having will make coping/healing more difficult. Stress is the enemy.

We are here to support you through this, so stick around and sound off when you need to. :-) BUT please get help. We ALL need help from time to time in our lives. Nothing wrong with this. It's just a part of this long ride called life.

{{{{{BIG HUGS}}}}}}

-Leslie

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 10/26/2008 6:21 PM (GMT -7)   
Joie,
Im so sorry you are going through this, this DD is insidious.
I know each day I wake up and think, ok what's it going to throw at me today, everyday there is something else or so it seems.
Please do not think you are alone. You sound like a strong person from what you have already gone through, you can get through this too. I agree with the above posters, get a good pcp to monitor all the extra intestinal things this DD is doing to you. (((HUGS))) and keep us posted.
Jo

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 10/30/2008 1:31 PM (GMT -7)   
Sorry I haven't posted more. I'm still awful. I called the hospital admin to deal with that doc. I don't think a doc can diagnose something in two minutes without even giving my arm a full motion turn. Added to all that: I called the county health place. I don't have insurance yet. Hubby's job hasn't put it through yet. Meanwhile, the pain spread. It's up to my shoulder and its hard to bend my pointer finger. My arm's gotten weaker. I'm dealing with the emotions alright. The worst of today: my grandfather died today. I only was able to get four hours of sleep with the pain in my arm, and I've thrown up three-four times today. I'm doing okay. I've dealt with my harmful emotions before but its so hard. The pain's never let up on me. It's in my armpit and behind my shoulder blade. I think there's a knot in the muscle there or something. It knocks every time I rotate the shoulder. I'm waiting for the insurance to kick in to get a really good doc. This doc was the one I knew when I was a kid. He was our family physician. I'm hoping to get in with him. I know him. I always trusted him. I know he won't treat me like crap. Until then, I'm just going to try to deal even though it hurts like crazy no matter what I do. I'm a substitute library assistant. It took me six months to get the job. I can't afford to lose it. I went to college for an A.S. with a certificate in library technology. I want to be able to at least do this work. I don't want to waste my education plus I like the work. Today, I'm just concentrating on nothing. Every thought circles around to the sadness of losing my grandpa and the anger at the medical community for not caring enough to listen to me. At least I complained. I don't think paying 300 bucks for a two minute look-see is worth it.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/30/2008 1:48 PM (GMT -7)   
Hi Any chance it could be a frozen shoulder? This will require you to go for therapy if it is . I had one not nice at all. Can yo ubend your arm around to your back , if it doesn't bend well it could be that I suffered for months and the therapist was the one that told me what was wrong. She gave me proper exercises to do . That is what helped and it took about a month to 6 weeks to get it coming around. Very painful the shoulder doesn't move to well at all .
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 10/30/2008 2:02 PM (GMT -7)   
I've been working it as soon as the pain stuff kicks in but even then, the wrong move and I could scream from how much it hurts. I'm trying to improve the motion. I had a pulled muscle in my upper shoulder once and it didn't hurt like this. Occasionally, my top forearm kinda burns. My neck's been super sore too. I'm going to a doc on Thursday so who knows. If it needs specialized care, its gonna cost me.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/30/2008 3:06 PM (GMT -7)   
That kind of radiating pain resulting from an elbow injury sounds like nerve involvement due to swelling. You should try to get some kind of COX 2 inhibitor, or failing that, you might try Boswellia serrata and green tea extract. COX 2 inhibitors are a variety of NSAID and those are associated with Crohn's relapse. However, recent research has shown that Celebrex did not cause relapse greater than placebo when taken for up to two weeks. You really need to see a specialist for proper treatment. How long will it be before you are insured?

You don't talk about your Crohn's, but that could be the root cause of this. You may be deficient in vitamins K and D. Vitamin K deficiency is associated with bone pain (osteopenia) and both K and D are needed for bone building.

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 10/30/2008 5:00 PM (GMT -7)   
Been takin' my prenatal vitamin and my pentasa. What's to say about the Crohns? It is what it is. Been feelin' okay with the Crohns...as in, not much tummy anything until last friday and today.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 10/30/2008 5:14 PM (GMT -7)   
shocked  Prenatal Vitamins!!!  Are you pregnant?  Do you have an OB GYN?  If so...call him immediately.  If he can't help the situation he sure as heck can get you a super fast referral to a Rheumatologist.  Did you see the doctor you wanted today?  I'm sooo very sorry about your grandfather.  It's just horrible to be hit with the loss of a love one when your own reserves are down.  Please check back in with us and let us know you are okay!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 11/11/2008 1:24 AM (GMT -7)   
I'm 27 which is why I take the prenatal. It's OTC, and its basically a good multi-vitamin (so says every doctor I've asked about it). Visited a doc and here's the update on it: she was an RN who listened. She put me on steroids and tramadol for pain. She took blood before I left so she could check for all kinds of ANA levels and such. She told me that the ER doc shouldn't have said I had myalgia in my arm without having taken blood to verify it since an X-ray isn't conclusive. I've noticed that the lower the dosage of prednisolone (or whatever its called) the more pain I've had in my arm. My thumb is basically continually numb in a sort of sore way. I can get it to tingle and I work that so that I know blood flow is good. I have to go back to the RN soon. She was really good. She listened to me for a half hour...and she spent time working my arm, feeling for what is and isn't movable, workable, touchable on it. It was a great visit. Haven't had someone listen to my concerns and give me answers in over five years. Since my first few surgeries.

Just giving you all an update on it. Oh, she also wanted to put me on antidepressants but I want to see if working with the pain management can help. And it does to an extent. I'm supposed to go back in a few weeks and when I do, we'll see where I am mentally from there. Although, I may have to ask to be put back on the steroids because my arm does better on the 'roids. It helps with mobility and sensation. The lower the dose, the worst the pain can't be controlled and the number my thumb and pointer finger get. So, I'm in a safer mental area as well. The flare's gone down to nothing but I'm still "Ensure"ing two of my small meals a day to help keep things easy in my gut (I eat usually four or five).

My grandpa's been gone for over a week now. It's surreal still. It was very sad, they gave him a 3 shot salute. I made cupcakes. I tend to deal with stress by baking. It's a precise sort of science. I haven't meant to be so absent...I've just been sleeping a lot and working and it can be weird to type with a few numb fingers. I have been feeling my hips and knee a bit (apparently not hurting in the arm means I can feel the owies everywhere else). We'll just have to see where it all goes. It hurts a lot when I realized my mom (we're all sure she's paranoid schizophrenic and no joke) believes that I'm cured. She won't listen when I say the word "chronic". She calls me a miracle when I'm not flared. When I was sick all the last two weeks, she was saying she couldn't understand it. Its just another way that she takes something that has nothing to do with her or her religious beliefs and makes them all about her world. Makes me hate her...a lot. Then, I'm always trying to deal with how I feel about my mother. I pity my father, wish he'd divorce her and leave her to try to survive. Then she'd at least try to pretend that she gives a hoot about him. That's all neither here nor there.

So, there's an update. Oh, as a pick me up, I bought two loverly (yes, I spelled that right :-P) Victoria's Secret sweaters (gift certificate). I needed to have something nice for work and warm. Since I can't find any of my really warm sweaters and I just moved from L.A. to K.C...YAY. I'm overly excited about them, but hey, its getting cold as heck here and I have two sweaters in two separate shades of green. I'm trying to be positive and I'm excited about sweaters...you take the little things and smile about them.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/11/2008 12:23 PM (GMT -7)   
Hi Joie glad you got to see someone who listened to you and tried to be helpfull. Are you living with your parents? Buying yourself something that is comfortable is a nice way to pamper yourself and we all need that at times. I am hoping your RN can help you and that you will improve in the next couple of weeks . Keep in touch. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 11/14/2008 4:06 PM (GMT -7)   
Okay so I don't live with my folks. I live with my brother. We rent from him a room. Reality, we live here and he lives here and we live near our folks. Now, I got the call about my bloodwork. It isn't arthritis. I don't know what the hell I'm going to do now. I'm trying to be chill about it but man, I don't know what to think or feel. My arm is better but not gone. My pointer and thumb are completely numb. My back and hips are starting to come back in pain...my knee is slightly swollen again. I don't know what to think about my future. I may be going to get on those antidepressants.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 11/14/2008 4:15 PM (GMT -7)   
Joie, Sorry to hear you are still being troubled with the body pains. Did anyone suggest Fibromyalgia? Not sure if your symptoms are the same but thought I picked up on other peoples posts those symptoms.
Hope you find results and painfree days soon. Sorry Im not much help, just really wanted to wish you well :)
Jo

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/14/2008 4:38 PM (GMT -7)   
Hi glad to see your post and to know you are having some improvement .I guess you will have to talk it over with your nurse and see where you go from there. Hope your Brother is good company I would think he must be wooried about you. Do you think that loosing your Grandpa might have brought some of these symptoms on? I lost mine when I was young and it was hard? Good that you do something when you are stressed like cooking. I always used to go into a cleaning mode. Let us know when you have your next app. and keep in touch. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Easier2Run
Regular Member


Date Joined Nov 2008
Total Posts : 62
   Posted 11/14/2008 5:52 PM (GMT -7)   
Hey! Your feelings remind me so much of mine. I went to the ER for severe abdominal pain.. like to the point where I couldn't even move.. i knew it was from my Crohns. After being medicated with morphine and bentyl, it finally calmed down. Here's the kicker... the doc diagnosed me with an oviarian cyst. Yeah Right. I think I know my own body. thanks. Its frusterating, but don't let anybody tell you how your supposed to feel. You know your self best. I'm worried that your shoulder might have something to do with your spinal cord. Usually when you have numbness or tingling down your arm, thats where its from. You could have slipped a disc. I would look into a neurologist when your get that insurance coverage. Good Luck with everything!

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 11/16/2008 2:28 PM (GMT -7)   
Thanks everyone. I'm doing my best and some folks have mentioned fibromyalgia. The thing is...the doc said it was myalgias in my arm. Who knows. At this point, I don't know. I'm tired a lot and been napping a lot but I also see that I don't hurt when I'm unconscious. So that's a plus. Plus I'm just plain tired. I know it wasn't my grandpa for the arm and the hips/knee thing. They'd been happening for awhile before he died. He just died and I'm kinda sure the stress of that activated the Crohns flare. I'm better in the gut and arm but I still can't feel my fingers. The excruciating pain is gone from the arm though which is a plus. I had planned to see a neuro when I can afford it. I'm wondering if its not the ankylosing thing or fibromyalgia or who the heck knows. I mean, I knew the arm was neuro just because I realized I wasn't sleeping because of muscle jerks and spasms. I'd start relaxing and be almost asleep when my head would nod kinda violently or my leg jerked or hell, some muscle just went nuts and kept tensing and relaxing. I also felt it near my spine one night. Freaked the heck out of me. I'm just going to do what I got to til then...and take to the battlefield. :-P Read somewhere about this phrase a writer wrote about a character who was poisoned. She turned to the battlefield her body had become. Wonder how many of us can relate LOL.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)


cindywchrones
Veteran Member


Date Joined Mar 2005
Total Posts : 1115
   Posted 11/16/2008 4:56 PM (GMT -7)   

Dealing with a chronic illness is hard especially when something else starts to just add to it..I suffer from myalgia symptoms when I am flaring..I know alot of people that suffer from more than one autoimmune disease..This board and other cd support groups if you live in a larger city can be helpful..I had to just accept the fact there would be times I would not be well for a period of time and, it may not just be intestinal, but when I am having a good day get myself out there, and there are alot more people out there like me than I thought.

Cindy

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