Biologics & Joint Pain

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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/26/2008 10:13 AM (GMT -7)   
My Crohns right now is in remission and I only use Asacol to control it.  My main complaints these days is the joint pain.  My feet feel like I am walking on the bones instead of the pads.  I do have osteoarthris & Fibro. My hands & hips give me alot of grief too.  I am about to contact my Rheumy again and I am thinking of asking for a handicap pass because walking as much as I do is just aggravating it all.
 
Last time I saw her she was wanting me to take one of the biologics.   I am really not ready to go on these strong meds.  By the way, my GI doesn't really want me to use these meds either (save them for if the Crohns gets worse).  I am concerned with the side effects and as I have read on this board too many times how the Remicade, Humira, MTX etc really haven't helped that many folks with Crohns joint problems anyways.  And they just wind up picking up every virus out there.  I can't afford to be out of work because some med has caused me to be sick either from the med or some random virus.  I already use all my sick days every year for bad days related to the Crohns.
 
Right now I take 1/2 Percoset 3 x's a day for the pain.  And am blessed with a husband who massages some part of my body every single night.  Which helps me to fall asleep.
 
What I am looking for is for anyone's thoughts on this.  Does anyone get any relief from the biologics for their joint pain?  I would like to get everyones thoughts and opinions on this matter. 
 
Thanks,
Gail *Nanners*
 
 
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/26/2008 10:38 AM (GMT -7)   
Gail, what are biologics??
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis
B12 Shots bi-weekl

Positivity, while not a cure, is positively far better than negativity.
"Mental attitude can move mountains" A message from my son.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 10/26/2008 10:46 AM (GMT -7)   
Sweet friend
'
I know notta bout the bilogics either but
I do know the pain you are feeling
I too have fibro and not fun at all

Please do fill us in on the other will ya
Loves
LYN
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
 
Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
 
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest
 
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chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 10/26/2008 11:02 AM (GMT -7)   
Dec. will be my 4 yr. anniversary with remicade. I didn't have much of a choice when I started because I was so sick. My joint pain was so bad, that I could hardly get out of bed in the morning, and actually the only reason I would get up was because I had a 2 and 4 yr. old....what choice did I have?!, I had fistulas, abscesses, 30 pound weight loss, and so on. I have not had joint pain since I've been on it. It will be a sad day when it stops working for me.

As far as side effects go....it is NOT true that you pick up everything and are more sick on the bioligics. I am the healthiest one in my house and I have 2 grade school children. I also teach in 4 different schools, so I am around all the bugs! Last winter, everybody in my house had the stomach flu. I did not get it. My one child actually got it twice. I am very anal about hand washing! My friends call me a germaphob! :) My kids and hubby, and friends can have colds, and I won't get it.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 10/26/2008 11:50 AM (GMT -7)   
Hey my CD twin,

My Rhuemy would like my GI to start me on one of the Biologics because my joints are so bad but my CD isn't active enough for the GI to do it. I have been going for acupuncture. My Rhuemy actually had the acupuncturist in his office for awhile until he found his own space. I was really hesitant. I don't like needles and I don't really go for alternative treatments. But, its not a medication and other than a slight dent in my wallet, it wasn't going to hurt me to give it a try. It didn't help with the first treatment, but after a few, it really did make a difference. It isn't a cure by any means, but like your husbands massage, it helps. I do notice if I don't go regularly. Which kind of stinks, because it can be hard to make time to fit it in. But, as long as I go every week or so, I can keep things under control.

I go to a community acupuncture clinic. They charge a sliding scale, $15 - $35 depending on how often you go. They would like to make it affordable so that you go more often, so that it is more beneficial.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/26/2008 12:14 PM (GMT -7)   
Ah, Jedi Master, this is a term to cover drugs such as remi, humira, and so on. How I'd never heard of this terminolgy is beyond me....

Well Lyn ya live and learn, I guess we're not so smart!!

Gail I've been on both Remicade and Humira, whilst I didn't feel more open to other infections, they unfortunately didn't suit my body, but who
knows in your case it might work wonders.

I do understand it's a hard decision to make. Research until you feel happy with it all. Best of luck my friend...

Biologics who woulda thunk!!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis
B12 Shots bi-weekl

Positivity, while not a cure, is positively far better than negativity.
"Mental attitude can move mountains" A message from my son.


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 10/26/2008 4:14 PM (GMT -7)   
Nanners,  I have horrible hip pain, lower back and knees.  I am on Humira, after Remicade quit working.  However, I have a friend who has had great relief from her pain of just Rheumatoid Arthritis from Remicade.  Hard decision.  Good luck.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/26/2008 4:48 PM (GMT -7)   
The biologics help with my join pain. They don't cure the pain, but it's certainly worse when I'm not on Humira.

Good luck to you,

I.
Co-Moderator Crohn's Forum.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/27/2008 6:36 AM (GMT -7)   
Thanks for your thoughts guys. I am just really nervous because I see so many on the boards who haven't gotten any relief joint pain wise on these types of meds and I have also read recent articles that say that the side effects of these meds (Humira, Remicade, Enbrel) are higher than the benefits. Its all so confusing.

My biggest complaint is walking. And I do walk alot at work and getting to work. By the end of the day my feet hurt so bad. But I am thankful that my husband is there to massage them everyday. That helps alot.

I know many don't catch every bug around with the Remicade, but I have heard more bad than good about Humira and Enbrel. I won't do Remicade that is for sure, just because my veins are so bad. But the other meds are a possibility.

Geez, what to do, what to do???
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/27/2008 9:46 AM (GMT -7)   
Gail, I would give Humira a try.... You never know hon, it might make a world of difference. Good luck.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis
B12 Shots bi-weekl

Positivity, while not a cure, is positively far better than negativity.
"Mental attitude can move mountains" A message from my son.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/27/2008 10:26 AM (GMT -7)   
There is a possibility that bupropion might be useful. It is an anti-depressant, but there is research to indicate that it might be as good as the biologics at reducing TNF levels. Presumably that is what helps joint pain when taking the biologics. See: http://cat.inist.fr/?aModele=afficheN&cpsidt=17748850 You would have to take this to your GI or PCP for their opinion.

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/27/2008 10:41 AM (GMT -7)   
Then there is Cat's Claw (Uncaria Guianensis) which also has a good anti-TNF action. It is also anti-inflammatory and used to help arthritic problems.

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 10/27/2008 11:09 AM (GMT -7)   
My rheumy told me that she is seeing more response in regards to arthritis to Enbrel than to any of the the other biologicals, but I know you said you've heard more bad than good.  She said it won't help any with the Crohn's, but if you don't need a biological for Crohn's anyway, than it might help.  I've been on Remicade, Cimzia and Humira and, while they all have helped the arthritis, none of them helped enough to keep me from having to take other stuff for arthritis.  I would say that Cimzia helped the most, in my case.  I do get more frequent upper respiratory infections and still need pain meds and cortisone shots, but I still would rather take the biologicals than not, as they do all help some with the arthritis.   
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


porkysgal
Regular Member


Date Joined Jan 2008
Total Posts : 94
   Posted 10/27/2008 1:07 PM (GMT -7)   
I have been on Humira for about 15 months and have been thinking about quitting it as I dont seem to get much relief for the Crohns.  Even with taking that and Imuran I obstructed in May.  But after talking to my doc he wants me to stay on it and I only agreed because it does give me great relief from joint pain.  I forgot to order last week so I am going to be a week late and I am already feeling extreme joint pain.  I also do not get any more colds or anything but I had a major abcess on my tooth that was really hard to heal and my doc thought it was probably the Humira, finally did with a real strong antibiotic.  Good luck on whatever you decide, can be a real hard decision.
 
Deb
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