In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
I sure hope you start feeling better soon!
I honestly do not understand how someone can be diagnosed with Crohn's and then have a doctor change it to IBS...I can see having both, but once you have Crohn's, I think you always have it (sadly). I personally would be annoyed with the doctor that told you that! I hope you are able to find a GREAT GI doctor soon!
I have a 9 year old son who has also seen me sick. It breaks your heart, really!
My son has also had problems with constipation. He is a very picky eater...I don't know if maybe your daughter is, but I hope and pray she does not get Crohn's!
I have had others tell me "it is all in my head" and "gee you look just fine, you cannot possibly have Crohn's" and I find that sooo irritating! I am a big believer in "don't judge someone till you have been in their shoes."
Best of luck with everything and keep us posted!
A little bit into my diagnosis when meds starting helping my kids were starting to sit on my lap and one asked if he was hurting my tummy. then i realized how many times I made them get off my lap cause it just hurt too bad. Now I am more under control and they can cuddle with me more. it will get better. I did not realize how much my disease had an effect on them until that moment. There were many times I asked one to run upstairs and get my shoes cause I was so nauseous I could not stand the thought of climbing stairs again.
I hope you get some relief soon... just treasure the good days. I know I have learned to!
Diagnosed w/ Crohn’s Disease March 2007 Started Humira June 2008 (have been on other cd meds)
Diagnosed w/ Fibromyalgia May 2007 on Soma and Lyrica