I just gave birth to my remicade baby a week ago. I took the remicade every 6 weeks until about 25 weeks and then stopped until the day I gave birth (got the infusion within about 2 hours of having her). It is early, but she seems perfect to us and the docs. I researched everything and talked to all the specialists, etc, and they all say it's fine to nurse, and was fine to take remicade while I was pregnant. Well, the GI didn't want me to nurse, but since this is a digestive disease there was no way I was going to feed her junk in formula and take the chance it would increase her chances of developing this. I did all the research before getting pregnant to be sure I could nurse if I had to stay on the remicade. Again, it's only been a week, but she seems fine. She did spit up a lot for the first few days, and my other kids never spit up, but each baby is different...and she was having a lot of trouble burping. She is calm and sweet otherwise, so I think she's fine on all counts.
I didn't see a specialist per say while I was pregnant. I DID go to a specialist each month after 20w to get ultrasounds since I figured if there was something wrong on the inside, we couldn't see it when she came out. And the ins paid for it. :) It wasn't the specialist that came in though, it was the u/s tech. I only spoke with the specialist once for a moment and he said it wasn't an issue that I was on remicade, and could take it all the way to the end, and that she looked perfect.
Also, it only took me only a month to get pregnant once I got well.
Hope all goes well for you!
dx 4/05 with pancolitis UC after birth of my second child...
18 months of vit e enema and scd remission
Flare since 7/07...almost to surgery, now almost well through mostly natural stuff
Remicade every 7w or so
Been there, tried that....
Pregnant for the last time, due 11/18/08