Was reading again and thought I'd ask. ..

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/27/2008 2:35 PM (GMT -7)   
Has anyone got or had TB in there intestines or bones plan to do more reading about it . Or even there lungs ? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/27/2008 4:32 PM (GMT -7)   
Well I did go off and do some more reading about it and again wandering when they do the scopes do they check for that? Wow it is a little scary to say the least . I found quite a few sites about it . Sure makes a person wander. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/27/2008 4:47 PM (GMT -7)   
You should have a skin test for it about every 3 years.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/27/2008 4:48 PM (GMT -7)   
Thanks Navy it is a good thing to do I think I don't remember anyone mentioning it before. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/27/2008 5:07 PM (GMT -7)   
Has most of us here had a TB test the symnptoms are very much like crohn's . lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 10/27/2008 5:28 PM (GMT -7)   
Gail, are you referring to Tuberculosis? If so, the symptoms primarily affect the lungs, with a cough. The symptoms don't resemble Crohn's. Julie:)
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/27/2008 6:18 PM (GMT -7)   
Hey Julie there is TB of the lungs ,bones ,tonsils, intestinal .Yes that's what I'am talking about. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


kimberlayn
Regular Member


Date Joined Jul 2007
Total Posts : 239
   Posted 10/27/2008 9:24 PM (GMT -7)   
You have to get a TB test to take a biologic, like Humira, enbrel, remicade. I also have to get regular tests for my job (i'm not at increased risk but others in my agency are and its one size fits all policy). They always give a little lecture about it and I thought it can affect the entire body but its spread through the lungs. It used to be called wasting disease because people get so frail and cough so much when they are very sick with it. The nurse always says its treatable though.
diagnosed w/Crohn's 11/06. 34f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bentyl, entocort, vicodin as needed, Humira, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Active disease back, darn it 8/08. 11 year old son with IBS-C, on Bentyl.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 10/28/2008 12:45 AM (GMT -7)   
I was told that if you're taking prednisone, don't bother with the TB test. It will come back negative even if you have it. I had a similar experience with Valley Fever. I got it because the prednisone weakened my immune system, but all the tests for it came back negative. They just treated me for it anyway because they were certain I had it. Once I was off the prednisone, I tested positive for the Valley Fever antibodies.

Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 10/28/2008 3:44 AM (GMT -7)   
Gail, I never realized it could affect other parts of the body!  I learn something new every day, lol! smilewinkgrin    I have to get a TB skin test every year because I work in a hospital.  Blessings, Julie
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/28/2008 4:39 AM (GMT -7)   
Spookhurst Yes I did read about the steriod causing problems with the test. As far as I can remember I was on the pred. at the time I had mine. Julie just goggle TB intestinal I found the symnptoms in searching. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 10/28/2008 9:47 AM (GMT -7)   
Thanks, Gail! Blessings, Julie:-)
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/28/2008 10:47 PM (GMT -7)   
Intestinal TB is much more common in the third world. As an interesting side-light, the treatment for that is something called bacillus Calmette-Guerin (BCG). This has recently been proposed as a treatment for auto-immune diseases due to research that has shown a cure for diabetes in mice (Human trials ongoing). It would be a laugh if the third world has been curing Crohn's with an eighty year old medication that is really cheap by accidentally treating it as intestinal TB.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/29/2008 4:10 AM (GMT -7)   
Thanks Keeper I"ll google that med later. Just found it kinf of odd that alot of us are on steroids at the time we get our TB test. Now that's spooky. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 10/29/2008 5:38 AM (GMT -7)   
Hey Gail....I did not know about the TB either and I have done a lot of research into things for my job.  I had a TB test when I was in college for education.  You could not start student teaching without getting tested.  All that happened before I was diagnosed so I think it is sure I was not on pred when I had mine.  I was just glad I passed another test in those days!

Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 10/29/2008 12:02 PM (GMT -7)   
Doc did a TB test on me before I started Remicade. I was negative for it, I was shocked though as I could swear I have Two Bellies...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/29/2008 12:08 PM (GMT -7)   
Hi Sniper better two bellies I guess.I spent a couple hours today reading about it is is scarry how much like crohn's it is from mouth yo anus too and alot of the same symnptoms .Were you on steriods Sniper? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 2:47 PM (GMT -7)
There are a total of 2,732,230 posts in 301,002 threads.
View Active Threads


Who's Online
This forum has 151165 registered members. Please welcome our newest member, Ggrlsav.
301 Guest(s), 15 Registered Member(s) are currently online.  Details
Lyme Yes or No ?, L & T, CompositionNotebook, Wanda1225, Albannach, orchid_rain, Blumen, Todd1963, Redwing57, SuperBlanks, bdavis, BostonMarigold, HeyNoodles, sara jeane, NotQuiteAntonio


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer