surgery or not?

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savkelchr
Regular Member


Date Joined Sep 2008
Total Posts : 33
   Posted 10/28/2008 12:13 PM (GMT -7)   
I am sick of being sick. I am having surgery next week for 3 more kidney stones. Two in the left and 1 in the right. i just had lythotripsy in august for kidney stones in right kidney. This time they are goin to go thru the uretha and do what they call stone manipulation with stent replacements. OMG, the stents hurt me so bad. But gotta do what you gotta do. Now for my CD....I have been having a constant flair since May. I have been back on percocet and steroids since. I am a recovering drug addict and know my own signs of addiction. I am having a really hard time. Im getting to take more and more pain meds. I find I cant function without them. My doc knows of my drug addiction also. He still keeps me on them. I go to the ER at least once a month for a few days in the hospital. I got small kids. I cant keep doing this. I am convinced that my CD causes all my kidney problems and such. I have had 2 small bowel resections already where they have removed 4 1/2 ft of small intestines, removal of the illium, gallbladder, and appendix-for reason of future problems. I also think alot of my pain is from built of scar tissue. I just had an colonoscopy a month ago. There was active disease but not what my doc wants to do another surgery for. I have filed for social security but that can take forever. I have been on social securty for crohns before in 2005 but it lapsed because I was in remission for the last 3 years and I went back to work and exceeded the amount that I could earn so they took it away. But now, I find myself back in active disease, out of work and at the hospital more than Im home almost.
 
Others here have had surgery. What is the pro's and con's of having surgery? I dont know what else to do at this point except remove the disease and hope for remission and time for my kidneys to heal. Im facing my kidneys failing again if this keeps up. I have a rare blod type-Rh-O- and Im not a good canidate for kidney transplant. But if the CD keeps active, its gonna ruin my kidneys. Wouldnt it be better to remove the CD than to put my kidneys in more danger of failure? Any thoughts would be appreciated. Im really overwhelmed with being sick all the time.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/28/2008 3:51 PM (GMT -7)   
Hi I haven't heard of anyone saying they had kidney failure from there crohn's. I do know there are a few with stones on here to be sure. Perhaps you could try a different med to see if that helps. Hope things get better for you soon. Good luck with your kidney surgery. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


savkelchr
Regular Member


Date Joined Sep 2008
Total Posts : 33
   Posted 10/28/2008 4:00 PM (GMT -7)   
Thanks Gail. My kidneys arent failing because of the CD but I seem to think the two have been hand in hand for me. It has seemed that when CD is active in me, it some how produces more kidney stones. I cant get my docs to link the two either. But its just a thought for me. I thought if I removed the disease if only temporary then maybe it would give my kidneys time to heal. I do appreciate the thought tho too.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/28/2008 4:11 PM (GMT -7)   
I would try med changes for right now.
crohn and kidney problems seem to go with long term disease and being male.

You are not alone in debating the surgery issue. I have just been told I have about 6 feet that need to come out soon.


Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 10/28/2008 5:14:06 PM (GMT-6)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/28/2008 4:50 PM (GMT -7)   
What kind of kidney stones are they? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


savkelchr
Regular Member


Date Joined Sep 2008
Total Posts : 33
   Posted 10/28/2008 5:52 PM (GMT -7)   
I dont know. I posted a couple weeks ago and I had some really good responses in regard to others saying they knew what their stones are comprised of. It made me think that my kidney doc isnt doing his job very well since I dont know what my stones are comprised of. They said that certain stones are made of certain things and that is how they control theirs. My doc just does the lytho and just lets it go at that. Well next week when he does the stone manipulation, I am goin to have them sent to a lab to see what they are comprised of and go from there to make a better decision on my treatment. This just goes to say dont just follow what the docs have to say like some mindless cow being herded. Be more agressive cause if you dont fight for your health no one else will. I just thought the docs would make me better cause they knew what was best. Now I find that if read up and educate myself, then it gives me a better understanding of what is going on with me and it prompts me to ask questions and possibly find better solutions.

So maybe after my surgery next week I will know more of what my kidneys are producing and take preventative steps to insure that I dont keep getting them.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/28/2008 6:00 PM (GMT -7)   
Ouch! Good Luck!
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

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