May be of some interest here...

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pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/29/2008 12:23 PM (GMT -7)   
http://www.ccfc.ca/English/images/proclamations/BIBDC%20FINAL%20October%2029th%20EN.pdf

:)


***************
I just tried to activate it for you. Hope it worked - Ivy.

Post Edited By Moderator (ivy6) : 10/29/2008 5:20:45 PM (GMT-6)


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 10/29/2008 4:09 PM (GMT -7)   
pb4, is there a way to "activate" the link? Thanks! Julie
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/29/2008 4:12 PM (GMT -7)   
Hi I didn't get anywhere either. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/29/2008 4:21 PM (GMT -7)   
PB posted a similar link on the UC forum and that one *does* work, so perhaps you could access the site from there, gail.
Co-Moderator Crohn's Forum.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/29/2008 6:47 PM (GMT -7)   
Thanks Ivy for activating it...ever since I took my puter in whenever I post links they don't automatically activate anymore no matter how I post them, such a pain...Just a note to all, when the link is not activated you just have to copy and paste it into your search engine to get to it...another pain.


:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/29/2008 10:00 PM (GMT -7)   
There's something wrong with the link - clicking it didn't work, but copy and paste into the browser address bar did.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/29/2008 10:30 PM (GMT -7)   
Hey ya, I just clicked the link and it's "not found", weird...well at least like Keeper says, copy and paste works, there's lots of info there besides all the stats, which as a Canadian I found pretty interesting.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/29/2008 10:35 PM (GMT -7)   
It takes forever to load on my poor, slow computer, pb. Would you be able to give a very brief summary of what you found most interesting, please?

Ivy, stuck on slow dialup...
Co-Moderator Crohn's Forum.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/29/2008 10:57 PM (GMT -7)   
There is sooooooo much info Ivy but I'll do my best...

Both CD and UC have significant impacts on the person‟s quality of life through symptoms such as abdominal pain, bleeding, fatigue, vomiting, diarrhea, itchiness or irritation around the anus, flatulence and bloating. Weight loss and anemia also pose significant problems. IBD is a lifelong disease, usually starting in early adulthood in otherwise healthy, active individuals. IBD has a substantial personal burden: it can impact career choices, lead to reduced work hours, impact family planning decisions, and lead to disparity and depression. IBD poses unique issues with intimate relationships, contributing to a divorce rate several times higher than the Canadian average. There are also the concerns which surround ongoing drug treatment, recurrent hospitalizations and surgeries. It can complicate travel, life and working arrangements due to the need for toilet access. People with IBD can lead generally normal lives most of the time, but with ongoing medication needs and occasional flares that may require hospitalization with surgery. The unpredictability of symptoms and the prospect of eventual surgery burden daily life. Finally, there can be a lack of support from family, friends and work due to the intimate nature of symptoms.
My bum is broken....there's a big crack down the middle of it! LOL :)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/29/2008 10:58 PM (GMT -7)   
FAST FACTS – The Burden of IBD in Canada
about Inflammatory Bowel Disease (IBD) IBD is a group of disorders that cause the intestines to become inflamed and ulcerated. This is caused by an abnormal response of the body‟s immune system. The main forms of IBD are Crohn‟s disease (CD) and ulcerative colitis (UC). There is no cure for IBD; therapy is directed at achieving and maintaining freedom from symptoms. Most people require ongoing medication; when this fails, surgery is often required. IBD is a lifelong disease, usually starting in early adulthood in otherwise healthy, active individuals. IBD imposes a significant impact on quality of life through ongoing symptoms, reduced ability to work, social stigma, management of toilet access issues, difficulty with physical intimacy and restriction in career choices.
IBD in Canada There are nearly 201,000 Canadians living with IBD: 112,000 with CD and 88,500 with UC. Over 9,200 new cases are diagnosed every year – 5,100 with CD and 4,100 with UC. Canada has among the highest reported prevalence (number of people with CD or UC) and incidence (number of new cases per year) of IBD in the world. IBD can be diagnosed at any age, but has a typical age of onset in the twenties. People with CD and UC have elevated risk of developing colorectal cancer. People with CD face a significantly elevated risk of premature death (47% higher) than the general public.
Comparisons IBD is about three times more common than multiple sclerosis or HIV; about as common as Type I diabetes or epilepsy; and somewhat less common than schizophrenia or rheumatoid arthritis. Compared to the general population, quality of life in IBD is low across all dimensions of health; even people with normalized symptoms have a quality of life below average, due to fears and concerns about disease progression.
Economic Costs of IBD Economic costs for IBD are conservatively estimated at $1.8 billion per year in Canada in 2008 (over $9,000 per person with IBD every year). Direct medical costs totaled over $700 million per year. They are dominated by hospitalizations ($345 million), followed by medications ($162 million) and physician visits ($134 million). Costs are higher for CD than for UC, due to more frequent hospitalizations and greater use of newer, expensive drugs. Indirect costs (to society and to the patient, including loss of productivity) are greater than direct medical costs: over $1 billion per year. Indirect costs are dominated by lower labor participation rates (long term work loss: $746 million per year), followed by patient out of pocket expenses ($239 million) and then short-term work absences ($138 million). These costs are similar between CD and UC.
My bum is broken....there's a big crack down the middle of it! LOL :)

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