I am in a similar boat. My husband was just diagnosed. At first it didn't hit me how big a deal this was but after spending 5 days in the hospital for an abcess draining, and then scheduling the upcoming surgery to remove part of his colon - it hit me.... our lives were going to change.
It is hard for me, like I am sure it is for you, because I always want to FIX everything. And this is something I can't fix so I spent a long time feeling powerless.
I have been on this forum A LOT lately and it has helped incredibly! I have learned SOOOO much and am now MUCH more educated then my husband. I take everything with a grain of salt because there are so many opinions, resources, articles, etc.... and know that this is a place where people vent (which is important) so try not to scare yourself by reading. My husband is not one to reach out for support, but I think it is comforting to him that I am now armed with so much information and can advocate for him. I also found info about the local ccfa chapter and am hoping to drag him to one of those meetings. Woman are much more likely to reach out for support then men, so sometimes we have to do it for them!!
I think what you and I can do is just try to find out everything we can. I've been doing my best to truly understand how awful, painful, scary, and dangerous this disease can be WITHOUT losing hope, and always remaining positive. I am going to be strong for him... no matter what I read.... We WILL find a treatment plan that works for him... I am confident about that. (but I am also realistic... I know what we are dealing with)
I think it can be underestimated how difficult this is for people in our situation. And, while we are - by ALL means - the lucky ones who are not inflicted with this horrible disease, we still live with it. Stay strong and stick by his side. There is SO much information out there, that you have to weed through a lot... but it's worth it to know what you are dealing with.
Advocate for him, support him, listen to him, and understand him. And know that he's stuggling right now, and the future is uncertain, but that it will be okay and you are lucky to have each other... Together you can find the best way to move forward...