1 Week Out of the Hospital

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Regular Member

Date Joined Oct 2008
Total Posts : 27
   Posted 10/30/2008 9:07 AM (GMT -6)   
So life has been very good the past week.....I got out of the hospital, after a 16 day stay, last friday, it was rough in there, lots of ups and downs, 2 surgeries...but since i took my first remicade, i've just been on a miracle road of recovery, Its been almost 2 weeks since that remicade dose, and i have my next one tomorrow....
I went into the hospital in very rough shape, big time flare, i was down to 119 pounds, i'm 5'11'' and male, so not very healthy....going to the bathroom all the time, weak, tired, and feverish....fistulas and abscesses make it impossible to sit, and near impossible to stand and walk....so i was bedridden, had been for weeks...........
after 16 days of hospital, amazing doctors and nurses helping me and coming up with a plan of attack for my crohns...diet and drugs, and all that........I left the hospital at about 124 pounds and feeling good, re-energized and ready to start my new life, and start down the road to recovery.....things have been almost unreal.....as of this morning i weigh 135 pounds, i'm gaining weight and gaining strength everyday, everything i ate seems to be staying in just fine.....no stomach pains ever anymore, seems like i can eat whatever i want, but i'm keeping it healthy, well i've snuck some snacks here and there....can't kick my crackers and popsicle habit i developed in the hospital, lol....
the only issues i'm having that i'm sure will resolve themselves over time, is my weakness, especially in my legs, my legs feel like the have no muscle at all, probably from being in bed for so long at the hospital and before the hospital, but going up stairs is not easy, serious rubber legs, lol.....other than that i feel like a normal person, just 1 or 2 bowel movements a day, sometimes formed!  even my night sweats have drastically reduced to the point where i no longer have to sleep with a towel, or change my clothes in the middle of the night, meaning i can actually get a good nights sleep, without interruption, so nice, feel so fresh in the morning.....
So i guess this must be what remission feels like, its amazing, i never thought i'd feel like this again, like a normal person again, not worried about bathrooms so much when i go out in public...i still have a drainage issue due to the abscess/fistula surgeries, but i where depends, which are surprisingly comfortable, just like normal underwear, with some padding, no one can tell i'm wearing them, and i don't really care if they do, what these depends are doing for me psychologically is amazing....it makes it so i feel safe, i know if i do have an accident, i'll be ok, which makes me not worry so much about bathroom locations and such, which i think reduces my bodies urges to go to the bathroom, since i don't think about it or dwell on it.....i almost want to suggest it to all of you out there, try wearing depends for a few days, see if it affects you too, i think it will, just having that safety there relieves so much stress for me......
anyway, life is good.....i pray that all of you can experience what i've been experiencing this past week.....remission is possible, and its beautiful, i'm just enjoying every single moment of everyday, can't stop smiling... 
peace and love
29 years old, crohn's since december 07, fresh out of the hospital for 2 fistula/abscess surgeries, feeling much better, could it be remission???
currently taking:
asacol, prednisone, purinethol, vicodin, remicade
acidophilus/bifudus probiotic, organic whole food multi-vitamins
"Flow with whatever may happen and let your mind be free. Stay centered by accepting whatever you are doing" -Chuang Tzu

Regular Member

Date Joined Oct 2008
Total Posts : 245
   Posted 10/30/2008 9:20 AM (GMT -6)   
Hi Scully,

I am really please that you are starting to get yourself back on track. I love hearing a good news story. With regards to your Strenght, it will come back to you in time. If your legs have been wasting away and not being used, it will always take time to rebuild. Keep up the giood work mate.

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 10/30/2008 9:42 AM (GMT -6)   
Scully that is wonderful!
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 10/30/2008 9:45 AM (GMT -6)   
Great to hear your doing so welll Sully. Stay on that road. about your legs, I find that just two or three days in bed and I have weak legs so yours are no suprise. Walk a little more each day and youll get stronger..keep us up to date too..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Regular Member

Date Joined Apr 2008
Total Posts : 289
   Posted 10/30/2008 11:28 AM (GMT -6)   
What wonderful news!
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.
2001 Dx'd with UC.  No remission.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returning after resuming 6MP.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 10/30/2008 3:34 PM (GMT -6)   
Yes thanks for some good news sounds like your doing amazing. I still get weak in the legs and I haven't had surgery since Jan. But I guess I need to walk up and down the trailer more. Great the depends are helping you with the confidence. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail

Veteran Member

Date Joined Jun 2008
Total Posts : 1058
   Posted 10/30/2008 5:41 PM (GMT -6)   
Keep on smiling! Good news for you and it's good to hear it.
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