BITING THE BULLET

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stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 10/30/2008 10:28 AM (GMT -7)   
 Hi, everyone I'm back. After being offline for a little over a week, just trying to get some final thoughts and comfort going into my first surgery wednesday. It's supposed to be an ilecolectomy which is the doc is supposed to remove the last portion of my small intestine that connects to my large, I think about three inches of the large is going too. I've been doing pretty good the last couple of days, I'm getting the jitters as the day grows nearer. I would greatly appreciate anyone's experience input on how their surgery went, I'm really nervous, but I got a confidence boost when I saw little sierra pull through, and hope and pray that mine goes well also. Just keep me in ya'lls prayers. I would greatly appreciate it. Remember share your stories, it boosts my confidence. I really want to know about how much pain is associated with it, and what to look out for. Thanks smilewinkgrin sad   ~Stephon

Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 10/30/2008 11:23 AM (GMT -7)   
Stephon - I don't have a surgery story to share, but I just want you to know that I'll be thinking of you and I hope that all goes well. I know so many people here have had great success with their surgeries and I'm sure you will too! Keep your chin up kid!

Stef

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/30/2008 1:00 PM (GMT -7)   
Hi Yes Sierra came threw. All you have to do mostly is let the hospital do the work. They will tell you what to do .If your in pain tell them. Wishing little Sierra would drop you a line . lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 10/30/2008 1:26 PM (GMT -7)   
A couple of things. No being a hero. If you are in pain, take the medicine. If you keep the pain in check it is soooooo much easier. I actually got yelled at by the night nurse the first night after my last surgery because I was pushing the pain button too much. But I was asleep and every time I woke up, I pushed it. I didn't know if it was an hour or two minutes, well it must have been two minutes!!!!

The other thing is to take a few comfort items. Things that smell like home. I always take my pillow and pillowcases. I also have my own hospital gowns, but thats unusual. But the pillowcases make it so nice. If you bring a few, you can have a visitor change them a few times a day. You will be spending most of your time in bed and to have a fresh pillowcase is just a small comfort. Also, handcream, chapstick, warm socks, and those kind of things.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 10/30/2008 1:35 PM (GMT -7)   
This is gonna sound weird. Pillows work. Bring something mind-numbing like a crossword puzzle book. Don't be a hero as stated. And bring baby powder or something like that. Ask if the cleaning lady could sprinkle it on the bed. When I'd been in the hospital for awhile, there's only sponge-baths and my IVs would get ruined in showers so it was always sponge-baths. So the baby powder on the bed linen can be very nice on your skin.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 10/30/2008 2:11 PM (GMT -7)   
Check out this video on youtube. It has pictures of someone after their ileum resection surgery.

http://www.youtube.com/watch?v=5000pyXlJJo&NR=1
____________
just activated link

Post Edited By Moderator (MMMNAVY) : 10/30/2008 4:29:51 PM (GMT-6)


stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 10/30/2008 2:25 PM (GMT -7)   
I know spookyhurst, I watched that video about twenty times. It relieves my anxiety a bit. I think its the one with the girl who was on TPN for awhile then she had hers done lapro but mine is supposed to be open. This concerns me a bit.

kimberlayn
Regular Member


Date Joined Jul 2007
Total Posts : 239
   Posted 10/30/2008 2:33 PM (GMT -7)   
Lip balm, socks or slip on shoes (i wore flip flops), ipod, kleenex (the hospital kind is pretty rough!), cellphone and charger. When you're bored and in pain and just want out! remember that this too shall pass! It's been a year for me, and honestly it is something I would do again! Good luck!
diagnosed w/Crohn's 11/06. 34f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bentyl, entocort, vicodin as needed, Humira, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Active disease back, darn it 8/08. 11 year old son with IBS-C, on Bentyl.


stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 10/30/2008 3:08 PM (GMT -7)   
Yeah, I'm really thinking about what can occupy my time for five days, cross my fingers its not any longer. I was thinking about bringing my ds, and stop by gamestop the day before pick up a new game and gaming magazines, I'm really into video games. I'm just really nervous right now I'm trying to avoid preperation for the stay as long as possible but I know its the inevitable. I'm just really nervous about being put to sleep, I hate anasteshia, just the thought of something putting me to sleep freaks me out, makes me fee like I won't wake back up. Just nervous. My first colonoscopy I went completely out, but then I thought I woke up in excrutiating pain, then I was held down by the nurse and went out again. I guess this is what scares me. My second colonscopy I thought I was supposed to go completely out again but, I heard the doc say "Okay Stephon, I'm going to start now. I was like wait I'm not sleep in my mind, Couldn't say nothing really but a mrmur like okyyy. Then I was in pain not unberable pain, but barely bearable, it felt like there was a lot of pressure in my stomach and the soreness of crohn's, really freaked me out. But I was barely conscious, but I could understand everything the doc and nurse was saying to me, like look up at the screen. I was like uhh yeah. All I remember is everyhting in a twilight slow motion type thingy. All in all I'm really afraid of being put to sleep, if the doc could do it while I am conscious I would do it in a heart beat. I'm just the type to like to know what's going on with me at all times.

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 10/30/2008 3:30 PM (GMT -7)   
It's probably a little late (you have to order these online), but I'd recommend a CycloDS, or some other slot 1 card for the ds. I have a 8GB card in mine, which allows me to put all my games on it, some tv shows and movies, some books, and some comics. That way you don't have to worry about switching cards or losing them. I was so glad I had this with me when I was in the hospital this summer. The only problem was that one of the staff members moved a table where my DS was plugged in. The DS crashed to the floor, but luckily it didn't break.

stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 10/30/2008 5:19 PM (GMT -7)   
Sppokyhurst do you have a 360, I do maybe sometimes we can chat and play some video games. I love fps's like halo etc. Yeah the memeory for the DS sounds good, was thinking about trading in some stuff to gamestop to get me a psp which plays UMD movies. How about the sleepiness after surgery how long does it take to get out of the sleepy mode, anyone? Becuase my doc said he wants me to walk the next day. What about these SCD stocking thingies, what are there purpose?

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 10/30/2008 6:06 PM (GMT -7)   
The PSP would be pretty cool for movies. The DS does okay with animation, but I doubt it would be too hot for anything live action.

I do have a 360! Right now I'm playing the completely crappy Hail to the Chimp. I hate it, but I'm a bit of an achievement *****, so I'll stick it out as long as I can. I don't have any FPS's right now, but I have some games like Saints Row and GTA4, and some music games (I'm not real good at those though). My gamertag is...wait for it...spookyhurst ;). You can see my xbox blog about me at http://www.360voice.com/tag/spookyhurst

I've only had my gallbladder removed by laparoscope, and was up a few hours after surgery. I'd imagine you would be in sleepy mode most of the day with a bigger incision.

EDIT:
LOL, it censored me!

GL
New Member


Date Joined Oct 2008
Total Posts : 2
   Posted 10/30/2008 8:40 PM (GMT -7)   
Steph - I just had my first surgery in September. It was an open surgery like yours is going to be, and it hasn't been that bad. Yes, I was in some pain after surgery, and yes I've got a scar where the incision was - I don't think you can avoid those things. However, after a couple weeks of healing, I'm able to eat anything I want and am generally doing much better than I have been for the past few years. Also, I was out of pain after a couple weeks.. my surgeon gave me a Rx for a painkiller when I left the hospital, but I didn't even need to fill it.

I did have two complications. First, I got an abscess under my incision, so I've had to go to a nurse daily/every other day for the past months for wound care. Apparently this sort of thing is more likely to occur with open surgery versus laparoscopy, but it hasn't really been that difficult to deal with. Second, I had pretty bad D because I lost some ability to digest biliary salts, but this was fixed by Cholestyramine twice a day.

The best thing you can do is to stay positive and try to avoid worrying the best you can. A good attitude will help you heal up well.

As far as hospital tips, I think everyone else has provided some very good ones. You'll be there for a little bit, so try to make it like home and try to enjoy things as best you can. Be social with those around you and try to make friends with the nice ones.

Zanne - I also got yelled at by a nurse for pushing the pain button too much during the first night after my surgery!! hahaha.. very glad to hear someone else got in trouble too!
26 Year Old Male. Dx September 2006, Surgery September 2008. Currently taking Imuran, Mesalamine, Cholestyramine.


stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 10/30/2008 10:17 PM (GMT -7)   
GL did you have an ileocolectomy, which is part of the smal and large which I am going to have. Where was your incision located on your belly? I'm just really nervous, on a scale from one to ten, how bad was the pain afterwards? Anyone
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