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Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 10/30/2008 8:11 PM (GMT -7)   
Can you tell me if anyone who had a colonscopy with the twilight med/sleep was painful? I'm prepping for one this weekend and have heard some horror stories, I'm so scared!  I don't know what to expect, the last one I had I had anestesia.........this time not having it.  Thanks.
Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf, adverse reactions to Remicade, Forteo Injections, Actonel, Calcium and Vitamin D, B12 injections.


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 10/30/2008 9:08 PM (GMT -7)   
The c'oscopies I've had with my new GI specialist since 2005 have all been with twilight sedation. No pain. Very interesting to watch the screen and be able to make comments about what we are seeing. When she would take the biopsies (it looks like little 'jaws' taking a bite of the lining) I would only feel a slight tug inside.

I think the people who felt pain had other problems going on, like strictures or scar tissue. Your Dr should be able to see, feel and go by what you are saying (if it hurts) and stop the procedure if it becomes painful. You can also request to be put completely out if they feel they must go past any painful spots and they are too painful for you to deal with.
Heidi
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.
2001 Dx'd with UC.  No remission.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returning after resuming 6MP.


Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 10/30/2008 9:19 PM (GMT -7)   
Oh thank you very much, that makes me feel better. I read one thing on the net where this guy was begging the doctor to stop and you have no choice, they have that scope in you and they just keep going....stuff like that scares the hell out of me! Thanks.
Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf, adverse reactions to Remicade, Forteo Injections, Actonel, Calcium and Vitamin D, B12 injections.


TeacherBetsy
Regular Member


Date Joined Mar 2006
Total Posts : 310
   Posted 10/31/2008 6:03 AM (GMT -7)   
I had demerol for the first couple of procedures, including the one they did when I was diagnosed, before they starting using anesthesia for procedures. I didn't have any trouble, but my disease is mild. Like you, the horror stories scare me and I can only imagine how brave someone has to be to get through a procedure under more difficult circumstances.

78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 10/31/2008 9:03 AM (GMT -7)   
You could always speak with your Doctor and ask what their protocol is; do they stop or continue if the patient complains of pain? If you don't agree with what they say, tell them what you want them to do (stop at pain) or you can find a different Doctor to do the procedure.
Heidi
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.
2001 Dx'd with UC.  No remission.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returning after resuming 6MP.


basil
Regular Member


Date Joined Oct 2008
Total Posts : 78
   Posted 10/31/2008 3:49 PM (GMT -7)   
I had one with twilight and it totally knocked me out. It was just like I had been under general anesthesia-- i had no memory of anything, didn't feel a think, wasn't able to watch the procedure on the screen. I came too soon after the procedure was done. Now i'm starting to wonder if they did in fact use general anesthesia ?????

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 10/31/2008 4:01 PM (GMT -7)   
I have had all of mine using "conscious sedation," another term for twilight sedation. I always laugh when I hear the conscious sedation term because I go out like a light with it. I have never experienced any pain during the colonoscopy.

Word of caution - while you might feel completely fine and "with it" afterward, there is a reason they tell you not to drive or sign legal documents. After my last colonoscopy that finished about noon, I awoke easily, talked to the doctor, carried on a conversation at length with my friend that drove me, got home, ate lunch, talked to my mother and another friend. about 4 pm, I suddenly had this odd feeling. How the heck did I get here? [I was standing in my kitchen]. I then recalled the colonoscopy and wondered what the doctor found. Saw papers giving a summary including a prescription for Cipro. Had NO clue why I was to take Cipro. Call my driver friend and she was stunned that I had ZERO recall of talking to my doctor. I had absolutely no memory of the drive home though I gave my driver directions throughout the entire drive! While all of this is funny now, I did tell my GI that perhaps I was a little TOO sedated "consciously."
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 10/31/2008 4:05 PM (GMT -7)   
my first scope was dne with light sedation and i didnt haf ne pain or nething i can member them taking the biopsies,thou i wld check wit your gi if they wld stop if u sed u were in pain.
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


TeacherBetsy
Regular Member


Date Joined Mar 2006
Total Posts : 310
   Posted 10/31/2008 4:40 PM (GMT -7)   
Jennifer - just want to stop back in to say good luck with your prep and scope. Thinking of you.

Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 11/1/2008 9:34 AM (GMT -7)   
Thank you, I'm not so scared anymore!
Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf, adverse reactions to Remicade, Forteo Injections, Actonel, Calcium and Vitamin D, B12 injections.


Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 11/4/2008 10:43 AM (GMT -7)   
Well I'm done with my colonoscopy, had it yesterday and you guys were right, I felt NOHTING! Nor did I remember much! I didn't even remember my boyfriend when he woke me up in bed after I got home! The prep i used was Miralax.......and Ducolax. TOTALLY tasteless if anyone needs directions, give me a hollar. The easiest prep ever. The worst reaction I had to prep and fasting was the headache the next day.........my head felt like it was going to explode.......but the drugs at the hospital took care of that.
Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf, adverse reactions to Remicade, Forteo Injections, Actonel, Calcium and Vitamin D, B12 injections.


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/4/2008 10:51 AM (GMT -7)   
Hi Jenn4dex,

Well done you. How did it turn out for you? I hope you got the result that you where after.

Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 11/4/2008 10:52 AM (GMT -7)   
I don't remember much, doc said he found inflammation and took some biopsies.........guess I was hoping disease had gone inactive, but i guess not.
Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf, adverse reactions to Remicade, Forteo Injections, Actonel, Calcium and Vitamin D, B12 injections.


Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 11/4/2008 11:17 AM (GMT -7)   
So the nurse just called and advised me in my cecum, moderate inflammation and found a stricture which they had to balloon to open. Doctor should follow up with me in the next few days. Does anyone have any idea what this means?
Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf, adverse reactions to Remicade, Forteo Injections, Actonel, Calcium and Vitamin D, B12 injections.


TeacherBetsy
Regular Member


Date Joined Mar 2006
Total Posts : 310
   Posted 11/4/2008 5:58 PM (GMT -7)   
Hey Jenn, well, moderate inflammation is not so bad... as for the stricture, I believe that is a narrowing in the intestinal tract, so the balloon procedure would be to try to stretch it some so that digested material can pass through. Those here who have had strictures can say more about that; so far I have not had one but have read about it.

Also something to keep in mind... unfortunately, even when disease is inactive/in remission, usually there are patches of disease still present... Crohn's never disappears (sounds weird, I know). I've been in remission for several years officially, according to the doctor, but every time I have a colonoscopy disease is present. I am fortunate that my disease has been mild from diagnosis onward... many people have it much worse. But it's always there, and I have had flare-ups from time to time that have interrupted the remission. Strange illness, isn't it???

I'm glad that your prep and procedure went so well... it's a good feeling to have another one done and to move forward. Hope you got to eat something afterwards that you enjoy!

Take care,

Betsy (-:
Dx Crohn's Disease 1996
Have taken Prednisone, Pentasa, Rowasa, and Asacol
Currently on Asacol 2400 mg daily to manage remission
 
 


Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 11/4/2008 8:13 PM (GMT -7)   
Thanks for the information. I still haven't heard from the doctor, but I assume that this just means to go back to more meds again.....I have been on only Pentasa for over 6 months now. Thought Iwas doing a lot better. I still have right side pain though. Obviously it's not that urgent if the doctor never returned my email or called me. I thought I would be feeling great today with all of the sleep I had gotten after the procedure, but whatever they did is killing my stomach today. Not much of an appetite either.....its like I'm afraid to eat now....I'm very sore. Hopefully the soreness will pass soon....and I'll speak to the doctor. Yes Crohns is strange!
Jennifer
Diagnosed Crohns 1/06
CD of Terminal Ileum
Taking Pentasa. Adverse reactions to Remicade. Also take Forteo Injections, Actonel, Calcium and Vitamin D, B12 injections.

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