My thoughts on CD / Diet trials

How many processed foods do you buy per week?
6
1-5 - 85.7%
1
6-10 - 14.3%
0
11-15 - 0.0%
0
16-20 - 0.0%
0
21-25 - 0.0%
0
25+ - 0.0%

 
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aussie_male
New Member


Date Joined Oct 2008
Total Posts : 17
   Posted 10/31/2008 11:40 PM (GMT -7)   
Hi everyone! I am starting to become a regular on this little site and it is great hearing from other people with CD.
I have struggled of late with a minor flareup again that brought with it some depression (always nice to get something extra. :) NOT!
I have decided I have to change the way I think about this disease and the way diet may influence.
I have been doing research on this website, reading books, asking the so called specialist doctors etc.
After having a read of the website http://www.crohnsboy.com it really did start to dawn on me. I recommend having a look.
I have suffered with this disease since I was 16yo and I am now 35yo.
I have read the SCD diet, sugar eliminating diets, no bread diets etc.
What I have found is all these sources are valuable and I just take 'little things' from everywhere not just relying on one source.
I will be truthful, I have ate absolute garbage at times and have not really tried to eliminate too much from my diet because guess what 'I LIKE IT!'.
How stupid can you be?
After having a very thorough grocery shop today, I was amazed at the amount of high sugar, fat, chemical processed, food additives, colouring etc. I found in just about all products.
I know this is probably not new to anyone here but it is really worth thinking about and reminding ourselves.
Sugar is added in just about every product you by! This even goes for breads, soups, fruit products, etc.
Try and find a product that is actually what you think it is! skull skull
The only thing that was actually 100% on what the package showed was the vegies / fruit department.
I was lucky enough to find a few organic products which had natural ingredients without the sugar.
If these products have been digested most of our lives what damage are they having on us?
How much sugar has been sitting in our bowels along with the chemicals, additives and other nasties?
Caveman days did not have a convenience store for them to get their food and society now has been adding to processed foods at an alarming rate with more chemicals and colourings so it looks nice and we will eat it because its tasty enough for us.
Back to basics where you ate things from the land and picked fruit from an actual tree seems to be scarce.
I don't admit to having any answers here and I understand diet is an individual thing.
But if it means investigating further and never giving up on finding a solution I will try it.
I am going to start today and this also means exercise, yoga, speaking with other people, finding anything I can to help.
I am also happy to provide you all with updates on this site on how I go and things that may help others with CD.
Let me know your thoughts and if you would like the updates.
Sorry about the long message but thanks for reading. All the best to everyone.


smilewinkgrin smilewinkgrin
35 yo male. Diagnosed in 1988.
Daily Medication - 5mg Prednisolone (7 - 8 years), 200mg Azathioprine, 20mg Pariet.
1 major bowel resection, fistula surgery (Sept 1990)
B12 supplements.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/1/2008 12:23 AM (GMT -7)   
I'm a junk food junkie, and have been my whole life (I'm 33). In the last couple weeks, I've become a major label reader. And not just of food. Tonight, I was even reading the labels on my shampoo and conditioner. The ingredients on just about everything are horrendous. The only thing I've eaten in the past 2 days that had decent ingredients were some organic Wallaby yogurts. The day has finally come that I'm ready to change my ways. I'm getting ready to start the SC diet. I'm also getting rid of all the toxic cleansers in my house, as well as personal products like deodorant. I already have been using Grapefruit Seed Extract for cleaning around my bird (bird's are very delicate when it comes to fumes and whatnot), and really like the GSE mouthwash I've been using for the last year. They have a whole line of personal products with good ingredients, so, I'm thinking of switching to them.

Good luck on your adventure aussie! Hopefully the both of us will find something to help us.

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 11/1/2008 10:12 AM (GMT -7)   
I try to eat a very natural diet with alot of organics. I found switching to a more natural diet and reducing or eliminating sugar is extremely helpful with symptoms. I still eat unbleached white flour products, but almost always with sourdough which makes flour much more gut tolerable. I find grains still irritate me, even if they have sourdough. Sometimes I soak whole wheat and make bread or pancakes and that doesn't hurt as much either.

Unfortunately for me, switching to a complete natural diet like the Maker's Diet for several months did not put my crohn's in remission, but it sure did help and I would recommend it to anyone.

I also take probiotics and digestive enzymes which are great.

Alot of people here eat cow or goat yogurt with live cultures as well as do the SCD or the Maker's Diet or other forms of natural diets with great success. Some people have even gone into remission.

The least we chronically ill ppl can do is investigate and keep trying. I may also look into hookworms which I've heard can put people in remission for up to 15 years.

Aussie, are you in Australia? Because if you are you should look up/google an Australian Doctor Borody who has had great success in treating the crohn's patients when all else fails. He is convinced that crohn's can be put into a long remission with a special 2-3 year antiobiotic blend treatment. I'm in Canada and have heard great things about him.

Best wishes!

Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 11/1/2008 10:35 AM (GMT -7)   
The biggest problem with the Borody protocol is the high relapse rate. I suspect this is because once the undesirable flora are knocked out, the individual keeps eating the same way so they just regrow. If combined with dietary management after the fact (to keep the stuff from growing back), I suspect it would be much more successful. Specifically, restricting starch and other carbohydrates would probably help a great deal.

As for processed foods- I used to be a junkie. No more- 90% of what I eat is cooked at home from basic components, avoiding sugar and carbohydrates. I'm recovering on the SCD, and just last Tuesday my GI- who was initially not just skeptical but warned me it'd probably kill me- was asking me for more details as I'm asymptomatic and my blood values have normalized.

aussie_male
New Member


Date Joined Oct 2008
Total Posts : 17
   Posted 11/1/2008 5:26 PM (GMT -7)   
Thanks for your feedback. I have heard of Dr Borody and initially contacted them around 10 years ago about the trials. I was put in contact with a specialist who could run the trial but the cost was around $10,000 - $15,000 with no government assistance. So much for helping the sick!
I agree with the comments posted by 'Osprey101' that unless dietry changes are made we are just doing the same harmful things to are bodies and it is only a matter of time before the symptoms return.
It sounds like things are going well for your Osprey and I wish you all the best.
It is always a good thing when you can prove a doctor wrong! (They will never admit it though!)
The thing is doctors continue to think on the basis of 'immune defiency' and that it is not related to dietry factors.
But again how long have our parents been eating the wrong things and the chances of this being passed on through the genes?
A good doctor should want to work with their patient and look at all possibilities before dismissing them.
Unfortunatley specialists don't seem to have the time for this and would rather 'medicate us' and then call for the next patient' ($$$?)
There are good doctors out there and we should try all avenues to assist us.
35 yo male. Diagnosed in 1988.
Daily Medication - 5mg Prednisolone (7 - 8 years), 200mg Azathioprine, 20mg Pariet.
1 major bowel resection, fistula surgery (Sept 1990)
B12 supplements.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 11/1/2008 8:27 PM (GMT -7)   
I have read labels for years because of the junk that they put into food. Working in a meat packing plant in their lab as a summer job made me aware of the stuff that goes into bacon and sausages. I have not bought any of that stuff for decades now. Likewise, I decided that eating plastic was not a good idea, so anything that starts "poly..." goes back on the shelf as do things containing any synthetic compounds, including flavor and color. They just keep finding out more bad news about eating that stuff. I used to think that bread was OK, especially because of the fairly safe ingredient list of some of them. I found out about 6 years back that it really did not work for me and eliminating it made me feel better. I avoid a bunch of restaurants because they use stuff that gives me raging headaches - what I don't know, but I suspect that it is MSG. It was a relief to find the SCD plan because it made sense of the sources of problems. I did not mind dropping the bottled sauces, but some common items like salad dressing and mayonnaise were missed. Fortunately, I don't mind cooking and it is a challenge to find a sauce recipe that works using the restricted ingredients that I can work with. So now I make my own mayo and salad dressing and I buy mainly what others would call "ingredients".

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/1/2008 11:10 PM (GMT -7)   
aussie_male said...
Caveman days did not have a convenience store for them to get their food and society now has been adding to processed foods at an alarming rate with more chemicals and colourings so it looks nice and we will eat it because its tasty enough for us.
Back to basics where you ate things from the land and picked fruit from an actual tree seems to be scarce.

smilewinkgrin smilewinkgrin

I totally agree with you about diet, but just wanted to say that likely even in "caveman days" they probably had issues like....Dino-sores and Dino-sars, you know, their own version of course...from eating what ever dinosaurs they could LOL.
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 11/1/2008 11:16 PM (GMT -7)   
pb :-)
Co-Moderator Crohn's Forum.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/1/2008 11:23 PM (GMT -7)   
Glad you liked that ivy :)...I got a new computer tonight which is absolutel fab...22" screen and wireless to "boot", but ivy, I still have to log off HW to read your replies and posts and I have no idea why...can this be fixed from HW's end somehow?

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 11/2/2008 11:48 AM (GMT -7)   

I am trying to eat less junk foods too... I buy frozen dinners for work lunches and I know they are not the best so I now buy the more healthy ones I can find like Kashi they seem to be yummy too.  I just have trouble finding time to cook good foods I work and have kids stuff etc... it is just exhausting most days.

Luckily more and more organic and more healthy foods are making it into my grocery store.

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

 

 


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 11/2/2008 2:25 PM (GMT -7)   
I have a couple of lunches that are fast and filling.
- dry curd cottage cheese ~ 1 cup; mayonnaise (SCD legal) 2 tbsp or to taste; honey ~ 1/2 tbsp or to taste - mix and eat with tea or fruit.

- As above, but no honey. Then add tuna or salmon to taste and 1/2 -1 tbsp of lemon juice and salt and herbs to taste.

- 2 eggs, boiled, peeled and chopped; 1 apple peeled, cored and chopped; 1 - 2 tbsp SCD legal mayo - mix and enjoy. Beware of gas problems if you are prone to them.
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