I just wanted to let those of you know that posted on my thread last week while I was in a major funk that things are going better and my mood is on the rise. I started journaling about everything from my feelings to bathroom visits and so on. I look forward to my dr's visit this Friday and plan on taking my journal with me. I want him to read it all and get a feel for what I'm experiencing. I plan on taking it to his office a couple of days early so hopefully he can do some light reading at night. (haha) I feel it is important to me for him to understand just what I'm going through physically and psycologically. Maybe he will see me not just as another patient, but as a suffering human. I make lists all the time when I go, but I still feel like I don't get the whole picture across. At this point I don't have anything to loose. I hope other people can start journaling and see how it makes you feel like you're active in figuring out patterns, learning what you might not be able to eat, and just plain busy doing something. Who knows maybe one day I'll write a book, so everyone can get an understanding about our disease! (maybe in another life haha) Thanks to eveyone who gave me words of encouragement, I truly appreciate it!
love to all,
diagnosed CD '03 after suffering for 10 yrs.
re-section surgery '05, Chronic Pancreas problems, joint and muscle issues (from Remicade)
meds been on-Asacol, Pentasa, Lialda, Remicade, Humira, 6-MP, Methotrexate, Rowasa, Prednisone, to many pain meds to list
Currently on-Cimzia, Cymbalta, and Klonopin(RLS)