Cost of living and Crohn's

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gachrons
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Date Joined Mar 2007
Total Posts : 4527
   Posted 11/2/2008 11:45 AM (GMT -7)   
idea  Are you finding yourselves always struggling with the cost of living? How do you think it effects your life and how does it make you feel about life?
 
I find that when I try to cut back on one thing there is always something else that goes up in price .Weather it be food, heat, taxes,just about anything a person might put a dollar into.
 
I feel that it would be a great thing to at least not have to strecth a dollar 50 times and come out with the same old coin. Not being able to work for many years has made me feel like I'am always trying to do the impossible. Sometimes the old light bulb in my brain is a little more then worn .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


spookyh
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Date Joined Oct 2008
Total Posts : 1342
   Posted 11/2/2008 12:04 PM (GMT -7)   
I've 33, and have lived by myself for a total of 4 months. It was actually a severe illness (Valley Fever) that sent me back to live with my parents, but I wouldn't have been able to make it much longer financially. If it weren't for my parents, I'd be living in poverty.

Keeper
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Date Joined Jun 2008
Total Posts : 1058
   Posted 11/2/2008 12:19 PM (GMT -7)   
The cost of living index that they use and keep pointing out how low its increases are does not include food or fuel. Just what do they think we spend most of our money on???

conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/2/2008 12:32 PM (GMT -7)   
I hear you there Keeper. It is so bad. What is even worse is fi I take time of work for my illness, I do not get sick pay from my company but from the government under stat sick pay. It amounts to about £72a week. Amount to 208 pounds a month. They take double that on ke in tax and National Insurance a month. And they expect me to feed my family on that? But, its ok, cause when government get sick, they still get paid, so everything is right with the world.

TeacherBetsy
Regular Member


Date Joined Mar 2006
Total Posts : 310
   Posted 11/2/2008 2:01 PM (GMT -7)   
The cost of the co-pay on my prescription and my overall insurance premium are going up this year. We did not get a cost of living adjustment at work due to budgetary concerns I am grateful to have the insurance but wish that medical offices and companies would understand that it's hard for people to pay so much just to have basic care.

FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 11/2/2008 3:05 PM (GMT -7)   
I agree Gail! My husband and I just did a budget and we want to cut back but I refuse to cut back on our food budget b/c eating healthy foods keeps us healthy... but food is so expensive. We found some organic boxed dishes that make cheap meals. My favorite is spinach dal and jasmine rice. I had to stop buying fresh fruits because not only are they expensive but the quality has been so low lately. I wanted to buy some melon to dice up but they were all squishy already. gross. It is very frustrating. I will start a new thread about a book that is helping us.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 11/2/2008 3:19 PM (GMT -7)   
Oh yes, it's hard. Add in the special allergen-free foods (dairy free, gluten free, whatever), which tend to be much more expensive than regular foods.

And then there are all those extra, incidental expenses: taxis on those days when you are too sick to walk or drive; extra heating / cooling because were are sensitive to fluctuations in temperature; silly little things like you buy some food to cook for the freezer, then go into a flare and are unable to cook it, meaning that the food goes to waste, etc...
Co-Moderator Crohn's Forum.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/2/2008 3:24 PM (GMT -7)   
Ivy - I have wasted so much buying stuff and than not feeling like eating it - I have brought stuff to have at lunch and then decided to buy soup then I forget to put it in the fridge, and it is wasted. I hate it.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 11/2/2008 3:45 PM (GMT -7)   
I'm so glad to hear you say that, Fitzy. I was nervous about writing about food, and was expecting people to criticise me for being slack and wasteful. Me, I've just wasted 1.5kg of mince. I bought it, went into a fibro flare, got muddled with dates, and when I finally mustered the energy to cook it, discovered that it had gone off :-(

I have the same problem with buying food then being unable to eat it.

I was fortunate in being able to participate in a study recently that charted the amount of money that Crohn's people spent because of their illness over a 3 or 6 month period. It was quite startling to see it all on paper - some weeks I'd spend $200 on my illness alone!
Co-Moderator Crohn's Forum.


TeacherBetsy
Regular Member


Date Joined Mar 2006
Total Posts : 310
   Posted 11/2/2008 4:17 PM (GMT -7)   
I'm relieved to hear that I'm not the only one who has to throw food out occasionally... makes me sad when I buy something I've really wanted and then have a flare. If I can give it to someone else, I do, but more than a few things have had to be tossed. Ivy, you are not slack at all, it's just something we have to do sometimes, but I know how you feel about having to do it. :-(

I haven't added up what I spend on my CD and related problems yearly but plan to do so after reading this thread.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/2/2008 4:49 PM (GMT -7)   
How about we start some threads going on managing food. Low cost food tips. Cheaper viamins or at least best buy. Maybe a thread on give up something like pepper for a example or just ways to save a buck. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 11/2/2008 4:56 PM (GMT -7)   
Good idea, Gail! Sounds like we might need three, though: one for food, one for best buy, one for abstinence.
Co-Moderator Crohn's Forum.


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 11/3/2008 12:47 AM (GMT -7)   
lol i nearly cried when i forgot to put soem frozen food into the freezer.....found it like 3 days later.....it was meant to be meals for my week....like 4 days of food gone,i was so embrassed,gah it still annoys me,i find flares tend to save me muney,most of the stuff i buy dsnt go off lol,but money is my biggest stress,still learning how to balance bills im xcited bout the price of petrol has gone dwn 60c here......YAY
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/3/2008 3:15 AM (GMT -7)   
I know it is hard for us at times. We cain't get out to shop all the time and some days too sick or tired to even save the things we do have and never knowing when a bad day is going to hit well that just makes things worse. I do try to put what I can in the freezer and have some canned goods ahead but still there is some waste.I think it is of importance here because we only have so much we can spend on food and it is very expensive nowadays.With the high cost of other things always going up it takes a toll yes thank goodness something has gone down gas prices are a big issue getting medical help is pretty much a priority. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Naboo57
Regular Member


Date Joined Oct 2008
Total Posts : 23
   Posted 11/3/2008 5:35 AM (GMT -7)   
That happens to me all the time too, I finally feel good enough to go grocery shopping starting with a nearly empty kitchen.  I power shop 'cause who knows when i will get there again ( i should know better than to shop while hungry).  I totally fill the cart up, go to pay (ouch), and end up in a flare, kiss all of the fresh veggies and fruits good bye. Thats how it works for me.  I did start making soups and chillis in large amounts and freezing them.  Im vegetarian, and the cost of fresh veggies and fruits can be a strain.  I do alot of frozen veggies, i keep them on hand since they keep for a long while.  What us crohnies go thru huh?

Diagnosed with Crohns 3 years ago.
Diagnosed with RA in September.
 


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 11/3/2008 8:49 AM (GMT -7)   
Guess thats why the freezer is so good for us here. I know not everything is freezable but we do freeze most things , even bread. We can take out what we need , nuke it and freeze the rest for later. I also notice that food seems to spoil alot faster than I recall too. I am much more cautious of what I eat because I have enough trouble with good food. We cook things put it up in two serving size containers and then when we need it its there. Lots less waste. I think we save money this way and with food cost so high thats a good thing. Now I have more cash for doctor bills. Wish I could freeze those too.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 11/3/2008 12:36 PM (GMT -7)   
If I plan on doing any cooking, I'll usually go and buy the stuff I need and then go home and cook that day. Then I eat what I want, save a little in the fridge for the next couple of days, and then freeze the rest. I've got an odd collection of things in there now lol. There have been too many times that I've thrown stuff away because I bought the ingredients, and didn't do the cooking right away. It really is a shame and a wate of money to do that. I for one can't afford it, and I hate to see money go down the drain.

On the topic of budgeting, my work offers a Flexible spending account along with my regular health insurance. I was calculating what I'd think I need on the flex account next year, and it floored me how much money I spend on medications alone, on top of doctor co-pays, deductibles, supplements, and OTC meds. I knew that I had undershot my flex account this year by quite a bit. After doing the math, I ended up tripling my contribution for next year, and that was UNDERESTIMATING and hoping for the best, because what I don't spend doesn't get refunded it just disappears into someone else's pockets.


Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone, flaxseed oil, L-glutamine.

Post Edited (beartooth) : 11/3/2008 2:23:37 PM (GMT-7)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/3/2008 1:19 PM (GMT -7)   
Gee Sniper I wish I had your energy I just have no interest in cooking lately.If I was richer I'd bye it all made honestly I would and it would be a rare day that I would cook .I have cooked meat and potatoes 3 times in a week . That is coming from someone who used to have meat and potatoes every day. Now it's a store bought pizza or macroni.,somtimes rice.A small ham was 17.00 last time I priced it and turkeys 27.00. Even the cheaper meats like hamburg and weiners are coming out at a higher price. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


TeacherBetsy
Regular Member


Date Joined Mar 2006
Total Posts : 310
   Posted 11/3/2008 1:25 PM (GMT -7)   
LOL Sniper re: freezing the doctor bills... what a great idea!!

Gail, your diet sounds a lot like mine... other options are too expensive... and with at least 3 different issues going on at once (Pap test follow-ups, colonoscopy coming in spring, and needing to see dermatologist about a cyst), I can only imagine the mountain of bills... but like everything else, I guess they can only be handled one at a time.

So much for health...
Dx Crohn's Disease 1996
Have taken Prednisone, Pentasa, Rowasa, and Asacol
Currently on Asacol 2400 mg daily to manage remission
 
 


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 11/3/2008 2:25 PM (GMT -7)   
we also buy turkey when it goes on sale after a holiday and cook some and freeze the rest. You can get some good bargins on can goods around the holidays too. Guess no one likes canned pumpkin or real pumpkins after the trick or treaters are gone,,,,but I do...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/3/2008 5:27 PM (GMT -7)   
Well my hubby and I had one of our cheap Indian box meals that we love but we picked a new kind to try and it was super spicey! But he already made it and we already paid for it so I sucked it up and ate it. I am sure I will pay later for this.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


TeacherBetsy
Regular Member


Date Joined Mar 2006
Total Posts : 310
   Posted 11/3/2008 7:13 PM (GMT -7)   
Hope you're okay, Fitzy, but I understand wanting to try new foods, too... sometimes the temptation cannot be overcome. (-:

Received two more EOBs from Blue Cross today... so glad to know they haven't forgotten me *sigh*... trying to remember to be grateful that I have coverage before the statements show up.
Dx Crohn's Disease 1996
Have taken Prednisone, Pentasa, Rowasa, and Asacol
Currently on Asacol 2400 mg daily to manage remission
 
 


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 11/3/2008 10:45 PM (GMT -7)   
yeah, it is totally costing me more. now i see naturopath docs and they dont take insurance. also my food bill has tripled to quadrupled since i began the makers diet. however since the quality of my life has dramatically increased by making these two changes, i guess i cant complain too much.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

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