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Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 11/3/2008 9:04 AM (GMT -7)   
My back has been killing me the last couple of weeks.  How many of you deal with back pain and what do you do about it?  I've got hydrocodone and lidoderm patches but it is getting tiring having to deal with it.
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (27) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


EruditePaul
Regular Member


Date Joined Jan 2006
Total Posts : 266
   Posted 11/3/2008 9:16 AM (GMT -7)   
I had pretty bad back pain a couple of months ago.  I do not know if it was related to my Crohn's.  I still have some minor back pain.  My doctor gave me a back exercise diagram and asked me to exercise more.  After some exercises, I feel better.

Diagnosed with CD in 1994;

In 1994 I was treated with Pentasa of no avail.  Have being treated with Chinese herbal medicines for over 10 years.


nrthngrl
Regular Member


Date Joined Jun 2008
Total Posts : 56
   Posted 11/3/2008 9:56 AM (GMT -7)   
I have and get terrible back pain as well, I was actually hospitalized last year when it went out. My Dr feels that the inflammation in my back is probably caused by the inflammation in my intestines ( a secondary effect?) and when my tummy is under control my back should follow. Not sure how I feel about that, cuz I haven't been well for a year and a half with my intestines or my back.....so I am not sure why we haven't changed my meds to get my IBD under control, which in turn would help my back!?!

I do believe they are related tho, and I am now having some neuropathy problems that my Dr thinks is also connected. More inflammation.....go figure.

I put my heating pad on my back, take valium or other painreliever depending on severity, and the hardest one is resting flat out and NOT doing anything for a day or so. I remind myself of my last hospital stay when I feel I should be doing something instead of resting my back.

Good luck.
IBD(undetermined) 04-'07....Gastritis 04-'08....Fibro & CFS dx 06-'08....
 Asacol & Buscopan-IBDPantoloc-Gastritis, Nortriptyline-Fibro/CFS, Pramipexole-Fibro,  
Diazepam, demerol, codiene for pain
b12 inj, fish oil, folic acid, acidophilus. 


Crybaybee
Regular Member


Date Joined Oct 2008
Total Posts : 29
   Posted 11/3/2008 10:45 AM (GMT -7)   
Laying flat helps my back pain some.  I also use a heating pad.  I can't take any pain meds because I can't have my intestines slowing down, so I suffer with it and rest as much as possible.

ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 11/5/2008 8:28 AM (GMT -7)   
i have bad back pain too..i thought it was maybe me coming off the prednisone, me being in bed for a month in the hospital, or a remicade reaction.., I didn't know others had the same problem! i totally think it's related to the crohn's...just so much inflammation in the intestines can be felt right through your whole core...it got so bad the other day that i went to the doctors to check for kidney stones..they did a scan for not only stones but for cysts on my ovaries and other various things...they only found that the side i have the most pain on shows that my intestines are the most inflammed on that side...ive used heating pads, vicodine, and have my mom massage my back!...its gotten better..haven't had the sharp pain like last week...i think the massaging and strectching it helps!
 


Armbuster
New Member


Date Joined Nov 2008
Total Posts : 8
   Posted 11/5/2008 8:58 AM (GMT -7)   
Sorry to hear about the back pain but is it in the mid right back or the lower? Also have back pain for the past four weeks going to the gym helps but the sleeping is hard. Also some spots on the right front (iching) putting on some lotion it helps. Anyone else have this? i am learning obout the Crohns just found out 1 1/2 years ago. Live on Advil !!!!!!!!!!!
 
 
 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/5/2008 1:31 PM (GMT -7)   
Armbuster STOP taking the Advil. Ibruprofen is a NSAID and Crohnies are not allowed to use it because it can trigger a flare and/or cause bleeding.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 11/5/2008 2:22 PM (GMT -7)   
Thanks for all the feedback. My back pain is right at the small of my back. I already found out that I have arthritis there. It was really bad after I had been in the hospital for almost 2 weeks a couple of years ago.

One thing that is funny though. I've noticed that it hurts more when my bowels are normal. When I have "d" the pain isn't nearly so bad. It seems to get worse the longer my stools are firmer. Almost like my innards are pressing on it. Isn't the strange? Just seems to be a correlation there.

I tend to mostly have normal stools except for 1-2 days of the week.
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (27) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/5/2008 5:56 PM (GMT -7)   
about a year and a half a go, I started getting bad back pain when my crohn's acted up. The only two things that relieved it were laying completely flat (no pillow even) and pain meds. It lasted 3 or 4 months (most of which I spent flat on my back), which pretty much sucked. Then my doctor switched me from Prednisone to Entocort and it got better immediately.

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 11/5/2008 10:24 PM (GMT -7)   
If you have relief from steroids, you are probably suffering from an auto-immune arthritis derived from Crohn's. Most arthritis is auto-immune, but there are known antibodies for gut bacteria that also target collagens of different types in the body. Steroids are general immune system suppressors and that is why it helps some arthritis - it suppresses the antibodies that target the joint collagen. Usually the side effects of the steroids will eventually make continued use impossible, but some people manage without serious side effects.

Armbuster
New Member


Date Joined Nov 2008
Total Posts : 8
   Posted 11/6/2008 12:20 PM (GMT -7)   
Thank you for the information Nanners again just learning about all of this. Found out the spots on the belly and back pain is from shingels triggered by the flu shot i just recived four weeks ago and my system not being what it should. Just what to let you all know the information i read makes my feel i am not alone in this hell. I will never let it beat me !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
 
Armbuster : 52 year old , male.

Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 11/6/2008 2:46 PM (GMT -7)   
I have had mid back pain for years, had no idea I had crohns.  Once I started meds it subsided for over a year.  I was able to get off of almost all meds.....except Pentasa. Now when I sleep at my boyfriend's house I occasionally get it (different bed than my own) and I just had a colonoscopy that showed strictures.  So I'm not sure what I'm going to do now........I assume I will have to start meds again and hopefully keep the inflammation and stuff under control. I get most back pain after lying in bed too long.  I could never sleep 9-10 hours per night, my back would hurt too much. It is so annoying, I will be moving into boyfirend's house and getting married, he has a King bed we wanted to use and I have a queen.......they are the same brand too, so I don't know what to do. I was going to buy a new one, but now I have no idea what to even buy. This whole crohns can be a real pain in the butt, pardon the pun!


Jennifer
Diagnosed Crohns 1/06
CD of Terminal Ileum
Taking Pentasa. Adverse reactions to Remicade. Also take Forteo Injections, Actonel, Calcium and Vitamin D, B12 injections.


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 11/6/2008 5:35 PM (GMT -7)   
Sounds like some of you guys need to see an osteopathic medical doctor : )
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.


mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 11/6/2008 5:42 PM (GMT -7)   
Well, I have a herniated disc (I'm such an old twenty year old, ha) so I definitely know back pain. I find that the yoga position "Child's Pose" helps me (http://yoga.about.com/od/yogaposes/a/childspose.htm) get some relief. Walking also helps A LOT. I have very few issues when I'm at school (with no car) but it gets awful when I'm home and driving everywhere.

Hope you feel better soon!
19, College Student, diagnosed June 2007. Asacol made me worse, Prednisone made me crazy, Remicade for 1 year, Now controlling disease with diet (wheat-free, low dairy, low sugar) and considering Humira. Had to scrap semester abroad plans due to disease, but doing well day to day.


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 11/6/2008 6:29 PM (GMT -7)   
Yeah, that is where my Osteoarthritis is really gone to town, around my Lumbar verterbrae.
I take Celebrex, Lyrica, & Tramadol for the pain. I've also usen a T.E.N.S unit, which helps & been given some excercises plus my own fitness programs ( OK, I've been remiss on that one, always forget my stretches..). I also have a brace, but I find it is too uncomfortable to wear..

Matthew

broach
New Member


Date Joined Oct 2008
Total Posts : 19
   Posted 11/6/2008 6:56 PM (GMT -7)   
For my back pain so I can continue to work I also use them on my abdominal pain I invested in ThermaCare Heat wraps, they're discrete and oh so helpful
26 year old female Veterinary Technician. Going through the diagnosis process since August, the fun tests start when I get health insurance in Novemeber!! Currently on Asacol 3 Tablets 3 times a day. Gall bladder removed for malfunction 11-20-07


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 11/9/2008 8:41 AM (GMT -7)   
Well, I think I found out the right combo of treatments for my back. One hydrocodone, 2-3 tylenols and a lidoderm patch. Seems to be the only thing that makes my back bearable. Heating pad at night and don't stand in one place. Yesterday I went to my grandson's flag football game and was standing on the sidelines. My back would kill me so I was pacing back and forth and handled it that way.

Trent is 5 years old and one of the cutest kids in the world, along with his sister Skyler and baby brother Austin. I'm a lucky grandma. tongue
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (27) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


Armbuster
New Member


Date Joined Nov 2008
Total Posts : 8
   Posted 11/14/2008 6:05 AM (GMT -7)   
Anyone out there have the burps and back pain in the morning? poped 1/2 a steroid this morning to try to calm it down it seemed to work so far.  
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