meds right after surgery

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emrose
Regular Member


Date Joined Oct 2008
Total Posts : 63
   Posted 11/4/2008 10:59 PM (GMT -7)   
hey everyone

My husband is having surgery soon - a resection of his large intestine (sigmoid colon area) due to a stricture and what is likely scar tissue. The GI doc wants him to start meds right after surgery. Likely humira.

I was wondering:

1. Did you start taking meds after surgery?
2. How soon?
3. What meds?
4. How long was your remission?

Thanks for sharing your experiences. I am coping with my husbands diagnosis by reading your stories and educating myself about our options.

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 11/5/2008 12:44 AM (GMT -7)   
Hi Emrose,
I never stopped taking my meds even after surgery, but for me I never experienced remission. Please dont let my story turn you off cause from what I have read here it has been mostly positive results after surgery. So I wish your husband a very long remission and good luck to you both.
take care

Chasity102304
Regular Member


Date Joined Nov 2007
Total Posts : 165
   Posted 11/5/2008 7:38 AM (GMT -7)   
I started back on remicade about 3 months after my resection. I have been in remission for 15 months now. I hope your husband has a positive result from surgery - for me it was a very hard process, but in the end TOTALLY worth all the pain!!!

GOODLUCK!!
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks


Erik45
Regular Member


Date Joined Oct 2007
Total Posts : 149
   Posted 11/5/2008 7:41 AM (GMT -7)   
They loaded me on on the old crohn's drugs after surgery, Prenizone suffazalizene. Then i didn't need them anymore for about 5 years. So basically i was good for about 5 years it was nice. Almost need another resection but remicade is helping me now.
Crohns for 13 years
1 surgery so far
2 times in hospital for blockages
MEDS:
Remicade
Imuran
B12 Injections


emrose
Regular Member


Date Joined Oct 2008
Total Posts : 63
   Posted 11/5/2008 9:59 PM (GMT -7)   
thanks very much for sharing. I really appreciate it. It's so helpful to hear what others have done.

ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 11/6/2008 5:36 AM (GMT -7)   
I started taking probiotics about a week after surgery. As far as Crohn's meds, I decided to take Pentasa. My GI thought I should take Imuran or Humira (was on Humira before surgery), but I wanted to take a break from the heavy hitters. I'll have a small bowel follow through at the one year mark and we'll re-evaluate my treatment then. My surgery was in April and I feel better and better as time goes on. Good luck to your husband!
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08. Back on Pentasa as maintenance.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/6/2008 2:40 PM (GMT -7)   
Hi I was on pred for awhile then tried Imuran but was allergic. Now no meds but I follow low roughage.I had TI removed and fistula closed and cecum area. Wishing your hubby all the best and glad you found us. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


emrose
Regular Member


Date Joined Oct 2008
Total Posts : 63
   Posted 11/10/2008 12:16 AM (GMT -7)   
ski bum - it's good to hear your choice of meds. I don't know how I feel about starting with humira when there are other options. our GI doesn't like the idea of pentasa but he's very aggressive and wants to move to the "heavy hitters" right away. I'm doing all the research I can before we make a decision and your story helps.

Gail- thanks also for sharing. I have posted a few times regarding my husbands situation and always appreciate your responses. It's really nice of you to take the time and always share your perspective. It sounds like surgery was the right thing for you and it's interesting that you are now med free. Currently, a low roughage diet is also helping my husband.

Thanks again! So many options, it's very helpful to hear what you have tried after surgery!
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