Good Luck, Stephx!!

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Julie1014
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Date Joined Oct 2005
Total Posts : 1245
   Posted 11/5/2008 3:38 AM (GMT -7)   
Stephen, I don't know if you will see this today.  I believe you said you have to be at the hospital at 10:30am.  Just wanted to let you know I'm sending big hugs and prayers your way! :-)   The best of luck to you.  Be sure to check in with us when you get home.  Blessings to you!  Julie
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 11/5/2008 6:38 AM (GMT -7)   
Stephen,
Best wishes and prayers for your new begining!            wink
Julie,
Thanks, great idea starting a fresh thread to begin to celebrate a new life for a great young man.


              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/5/2008 7:03 AM (GMT -7)   
Good luck!
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Miss UK
Regular Member


Date Joined Oct 2007
Total Posts : 128
   Posted 11/6/2008 3:11 PM (GMT -7)   
All the very best!! I can't wait to hear how you got on  :-)

Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 11/6/2008 5:59 PM (GMT -7)   
Ahhhh,

Guess Stephen gathered up hes strength, and went on with it. Hope you are feeling better by the time you read this.
              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11


Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 11/6/2008 7:21 PM (GMT -7)   
Ditto! GL! :)
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/6/2008 8:05 PM (GMT -7)   
Steph,
I know you are probably in alot of pain right now, but I hope that you will feel better soon.
TC,
Navy
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


malb
Regular Member


Date Joined Oct 2008
Total Posts : 33
   Posted 11/6/2008 9:55 PM (GMT -7)   
Stephen

Hope you are on the other side of surgery and finding out that you are okay. Keep us posted about how things are going please!

Sending good thoughts your way!

Michael

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 11/7/2008 3:33 AM (GMT -7)   
Stephen, My prayers are with you.

teddybear
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/7/2008 3:45 AM (GMT -7)   
Hi Friend Just hope you are doing good and will be improving each day .I'am still watching and I am sending a little prayer your way and I did get caught up on sleep. Be thinking of you and hope your body will find new strength each day. Hope you have passed some air by now.lots of love gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 11/8/2008 6:05 AM (GMT -7)   
Steph,

Best wishes for the weekend. Hope you are going home soon. We are looking forward to hearing from you soon.


              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11

Post Edited (Margie11) : 11/8/2008 9:26:15 PM (GMT-7)


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 11/8/2008 10:20 AM (GMT -7)   
Hi, Stephen! I hope when you get home, that this thread finds you well. Please be sure to check in when you can. Blessings, Julie:-)
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Slow-FE (Iron), Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/8/2008 10:52 AM (GMT -7)   
Hope you are resting comfortably and on your way to a long long remission. Keep us posted, okay??
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 11/9/2008 9:29 AM (GMT -7)   
Bumping in case Stephen is home today. I hope it's ok to bump a thread......
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Slow-FE (Iron), Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/10/2008 12:27 PM (GMT -7)   
Hi Hope you are doing good. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 11/10/2008 10:18 PM (GMT -7)   
I feel like one of my children stayed out past midnight! Hope to hear some news soon.
              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 11/11/2008 12:40 AM (GMT -7)   
Good Luck!
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 11/12/2008 7:46 PM (GMT -7)   

Prayers and best wishes for Stephx

 


              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11


stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 11/14/2008 12:24 PM (GMT -7)   
Thanks everyone for your prayers and best wishes. Surgery went well and I am now in remission and eating mostly anything I want. Surgery really wasn't as bad as I thought it would be, right now I am home still recouping and playing a plethora of video games, I love video games.lol My surgeon took out 8 inches and truthfully it feels like a miracle to not have any pains when eating. AGAIN THANKS:) :) :) :) :) :) :) :) :) :) :)

Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 11/14/2008 12:29 PM (GMT -7)   
Party Time! I'm going to work and eating a SCD legal cookie. Told you you had an angel on your shoulder. Now you can have a life, just don't go overboard on refined foods, white flour, or sugar. Are you at your Aunt's house? How is your Grandfather?

                                                       yeah   turn yeah tongue yeah   turn yeah


              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11

Post Edited (Margie11) : 11/14/2008 12:34:59 PM (GMT-7)


stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 11/16/2008 10:03 AM (GMT -7)   
I'm home I re-analyzed my decision of going to my aunts, becuase everyone seemed to come together on the day of my surgery. My stepmom seemed really concerned and my aunts were all there to support me. They all have been contributing to my recovery, either if its groceries are purchasing me a cell phone to keep in contact at all times, I have not been doing a thing since I've been home a week ago today, but I am really getting back on my feet, I have virtually have hardly any pain, just my incision is itchy and I can't stand completley straight up, but almost there. The doc said that the terry strips he placed over my incision would fall off but they haven't as of yet and I'm trying not to tear them off but there are scabs all the way down the incision and it is really itchy. Like when you were small and you fell and scrap your knee and after about a week it got really itchy and you end up scratching the scab off, that's how it fels but I am not stupid enough to scratch the scab off my incision so reluctantly. LOL My grandfather is doing okay, my stepmom has been doing everything as of now, and she has been taking him with her when he has to go to dialysis on his days, because transportation for him comes after she leaves for work, so I haven't been lifting or doing anything. Just walking around trying to regain my strength, so in two more weeks I'll be able to go shopping and put up christmas decorations and lights, because I am recovering at a remarkable rate, but still taking it easy.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/16/2008 10:14 AM (GMT -7)   
Just be sure not to overdo okay...Remember that you have just had major surgery. Take good care of yourself and don't get too crazy with your diet just yet.

Hugs,
Gail *Nanners*
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/16/2008 10:52 AM (GMT -7)   
Hi Steph So you are still itchy .That will soon be gone too and lucky you no staples. I was thinking of Christmas today and it won't be many more weeks before I will be thinking about decorations. Hope the snow stays away for awhile here.I am hoping Santa will get me a electric snow shovel as it sure would come in handy. Glad to see you are playing some of your games as you enjoy them. I played a few with my teen today. She was asking about you. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 11/16/2008 12:34 PM (GMT -7)   
Yeah, the holidays are upon us. Two more weeks and I'll be stuffing myself with turkey and stuffing, and this year I won't have to stop and curl up from the pain of crohn's. It is so relieving to be able to eat and not have pain. Just keeping up with my ,maintenece meds and relaxing. We usually decrate I'll tree the day after Thanksgiving, I'm so thankful just to still be here, and realized for the first time that this disease is beatable and I won't give up.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 11/16/2008 2:14 PM (GMT -7)   
I'm so glad everything went well for you. But please all of you stop with the Christmas! I'm still working on Thanksgiving. I'm in the middle of making rolls, pies and sweet breads. No one on either side of my family knows how to cook so I have to do it all. I have to start weeks in advance. I can't even think Christmas until the week after Thanksgiving! Ok rant over. Back to wishing you well.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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