Surviving the SCD

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newcrohnwife
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Date Joined Nov 2008
Total Posts : 5
   Posted 11/5/2008 2:38 PM (GMT -7)   
My husband has Crohn's (or UC the doctors can't decide).  He started having problems about a year ago.  We decided that he should try SCD because the medications he's on don't seem to be working (and haven't for several months now).  So far we're on day two and he's already starting to complain that he isn't getting enough food.  I've read the book and from what I understand he's pretty much limited to chicken soup (aka chicken, water and carrots), beef paties and eggs.  Is this really all he's supposed to eat for the next 2-5 days until he starts to feel better?  I didn't find much information about the begining of the diet in the book and was hoping someone on here had more information. 
 
 
Thanks 

Miss3
Regular Member


Date Joined Sep 2008
Total Posts : 97
   Posted 11/5/2008 3:14 PM (GMT -7)   

Yes, he is only to have eggs, burgers, chicken soup, cheesecake, homemade gelatin, and cider or grape juice. It does say you can have as much as you need but that's the variety for the first five days or when symptoms subside, whichever comes first.

I wouldn't listen to whining about pain, bleeding, D, whatever his issues are if he's not willing to give it a try. It may or may not help him but I figure, if he's that uncomfortable, or in pain, he'll stick with it to see if it helps.

My husband has had trigeminal neuralgia, stabbing facial pain, for several years. TN is described as the worse pain there is known. He describes it as someone stabbing an icepick in the side of his head all the time. We narrowed it down to misdiagnosed lyme disease from seven years ago that wasn't properly treated. I took him to someone that does muscle testing, kinesiology, which seemed so bizarre. He was pretty much willing to try anything. I had already had him try alternative physical therapy and accupuncture.
 
He was just in so much excruciating pain all the time that I am certain if someone guaranteed him his pain would go away if he ate dog crap, he would have done it.
 
I think it comes down to how bad does he feel and how bad does he want to feel better.
 
Miss
 
 
 
 

Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 11/5/2008 3:22 PM (GMT -7)   
Hello...go to the websites...they have a lot of info...yes that is all he is suppose to eat...but the key is the home made yogurt! The yogurt is essential to the diet. I started with just the chicken soup and beef patti's but remmission came once I started the yogurt...I can not say it enought make him some SCD yogurt...and there are a few threads on the subject...part 1 and 2 so check them out...a ton of info...
Also youtube Crohnsboy and listen to his video blogs about the SCD and visit his website.
I started my yogurt with just the heating pad it works and its safe and the yogurt is just as good...its inexpensive to make $3.00 for a half gallon of milk and $5.00 for a package of yogermet starter. 24 hours to ferment and 8 hours in the fridge.
I know its a case by case experience with the SCD but I have broken the cycle in my gut...I can feel the difference...most energy I have had in 10 years...my bowl movements are like they were before I was diagnosed 15 years ago...I have to tell you now taking this diet is a true commitment...you will be cooking in the kitchen...you will need stock up your spice cabinet...invest in the cookbooks...I was bummed about the cooking until I read a line that said "better to spend your time in the kitchen then in the bathroom on the toilet"
It gets easier everyday...I am starting to have the staples in my pantry and fridge so I dont have to run to the store every meal. The cookbooks allow me to make a variety of food that I could never dream of...My family is enjoying the food as well...Nothing comes easy but if you stick through this and follow the diet strictly you will get through the initial phase and back to feeling better.
cooking has officially became a new hobbie of mine!

bektold
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Date Joined Jul 2007
Total Posts : 456
   Posted 11/5/2008 4:06 PM (GMT -7)   
Wow.  That's kind of harsh. 
Miss3 said...

I wouldn't listen to whining about pain, bleeding, D, whatever his issues are if he's not willing to give it a try. It may or may not help him but I figure, if he's that uncomfortable, or in pain, he'll stick with it to see if it helps. 



newcrohnwife
New Member


Date Joined Nov 2008
Total Posts : 5
   Posted 11/5/2008 4:17 PM (GMT -7)   
He is giving it a try.  And I understand it's a major adjustment so I'm more than willing to listen to his complaining about a lack of food choices.  I was just hoping there was something else I could make for him but I guess not. 
 
His Chrons isn't terrible but its getting worse.  We wanted to give this a shot before it gets to the point where it gets unbearably bad. 
 
DOC thanks for the advice about the yougurt.  He's not a big fan of yougurt and said I shouldn't bother so I wasn't going to attempt to make it.  But I guess now I'll have to give it a shot. 

BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 11/5/2008 4:23 PM (GMT -7)   
confused  Doc, why is this yogurt so great?

Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 11/5/2008 4:33 PM (GMT -7)   

Okay deep breath....The yogurt is fermented for 24 hours...destroying all the lactose in it. The yogurt has 100x the more beneficial bacteria in it than the store bought yogurt that is only fermented for 4 to 6 hours. The SCD yogurt is made without a certain bacteria strain that is found in all commercial yogurt and this strain is proven to be harmful to people with crohns. This yogurt is powerful...that is the best way to describe it...


Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 11/5/2008 4:36 PM (GMT -7)   
newcrohnwife said...
He is giving it a try.  And I understand it's a major adjustment so I'm more than willing to listen to his complaining about a lack of food choices.  I was just hoping there was something else I could make for him but I guess not. 
 
His Chrons isn't terrible but its getting worse.  We wanted to give this a shot before it gets to the point where it gets unbearably bad. 
 
DOC thanks for the advice about the yougurt.  He's not a big fan of yougurt and said I shouldn't bother so I wasn't going to attempt to make it.  But I guess now I'll have to give it a shot. 
The SCD yogurt is particularly tart because there is no sweetner added it is still delcious with fruit...What I do because I am not a huge fan of yogurt either is I make smoothies from it...I use a banana, about 5-6 strabwerries, a teaspoon of Vanilla, a tablespoon of honey... 2 or 3 ice cubes or I freeze the strawberries so I dont need ice....I drink one everymornign before I leave for work...well I drink it on my way to work...its a nurticous healthy breakfast and is healing my guy at the same time.
 
Then Ill eat eggs a few hours later..I go to work at 7 am

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 11/5/2008 4:43 PM (GMT -7)   
BeeSting said...
[img]/community/emoticons/confused.gif[/img] Doc, why is this yogurt so great?


Jumping in for Doc here... The yogurt has beneficial bacteria--LOTS of it!!! 700 billion in every cup. The beneficial bacteria competes with the bad bacteria in the gut. Think of it as war in there, but the good guys always win! To make yogurt SCD "legal", it must ferment 24 hours. During this fermentation, all the lactose is eaten up by the bacteria. This makes the SCD yogurt good for even those who are lactose intolerant. Keep in mind that if your husband doesn't like yogurt, he may like this. It's tart like sour cream, but put in a blender with bananas and honey to sweeten it, it makes an awesome smoothie! (You can use other fruit, of course)

oops...didn't see Doc's response until now... smilewinkgrin
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more Specific Carbohydrate Diet (SCD) recipes, too! (cooking challenged)


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 11/5/2008 4:50 PM (GMT -7)   
EMoM,
thanks a lot for your excellent answer! ;-) I think I have to copy the page. So much to learn about the diets.

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/5/2008 5:39 PM (GMT -7)   
I have a question about the yogurt. I just started my first batch in the Yogourmet. I'd read that these things can a run a bit hot after 4 hours because they're not really meant to run for 24 hours straight. I just checked the temp at 4 hours, and it was already at 115 degrees. Is my good bacteria dead now?

Miss3
Regular Member


Date Joined Sep 2008
Total Posts : 97
   Posted 11/5/2008 5:44 PM (GMT -7)   

I don't think that statement is harsh but that's because our family has been through total H*** with my husbands medical issues over the last few years. If you had any idea the excruciating, torturous pain my husband has gone through you wouldn't think it was harsh either. He was willing to try absolutely anything to get rid of his pain, even went to Hershey Med and let them blast his brain with radiation, which did nothing for him since his pain is from lyme disease. I even had him down to John Hopkins to discuss slicing into his brain at one point. If someone is that sick, they will try anything IMO.

 

Miss

bektold said...
Wow.  That's kind of harsh. 
Miss3 said...

I wouldn't listen to whining about pain, bleeding, D, whatever his issues are if he's not willing to give it a try. It may or may not help him but I figure, if he's that uncomfortable, or in pain, he'll stick with it to see if it helps. 



Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 11/5/2008 6:23 PM (GMT -7)   
spookyhurst said...
I have a question about the yogurt. I just started my first batch in the Yogourmet. I'd read that these things can a run a bit hot after 4 hours because they're not really meant to run for 24 hours straight. I just checked the temp at 4 hours, and it was already at 115 degrees. Is my good bacteria dead now?


The thermophilus is probably fine, but the other strains are dead, at least according to Elaine. Back when I used to do this I was going to get a device that modulates the current going to the yogurt maker. I found one on-line somewhere but I can't remember where. The SCD'ers on the list serv I used to visit had huge arguments over this topic.
Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. Udo's Choice Probiotics (30 billion).


Betaine, digestive enzymes, Candicin (oil of oregano capsules), Beta Sitosterol.

Tried SCD, didn't work, now avoiding gluten and dairy.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/5/2008 7:27 PM (GMT -7)   
Crap. I guess I might as well just put it in the fridge now rather than waiting 24 hours.

bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 11/5/2008 8:53 PM (GMT -7)   
We were just discussing here the other day how so many of us have to deal with clueless, but hopefully well-meaning, people who think that if we'd only try [insert pet treatment here] we'd be fine.  As if we're too lazy or uneducated about our disease to "cure" ourselves.  The attitude is offensive, and I'm surprised to see it from another member.  I'm sorry that your husband has such a painful health problem, but that doesn't mean that someone else is "whining" or that they don't deserve support if they're having trouble with a treatment or following a diet.
Miss3 said...

I don't think that statement is harsh but that's because our family has been through total H*** with my husbands medical issues over the last few years. If you had any idea the excruciating, torturous pain my husband has gone through you wouldn't think it was harsh either. He was willing to try absolutely anything to get rid of his pain, even went to Hershey Med and let them blast his brain with radiation, which did nothing for him since his pain is from lyme disease. I even had him down to John Hopkins to discuss slicing into his brain at one point. If someone is that sick, they will try anything IMO.

 

Miss

bektold said...
Wow.  That's kind of harsh. 
Miss3 said...

I wouldn't listen to whining about pain, bleeding, D, whatever his issues are if he's not willing to give it a try. It may or may not help him but I figure, if he's that uncomfortable, or in pain, he'll stick with it to see if it helps. 




newcrohnwife
New Member


Date Joined Nov 2008
Total Posts : 5
   Posted 11/6/2008 4:09 AM (GMT -7)   
Thanks so much for all the advice. I'll be off to the store this afternoon to buy ingredients for the yougurt.

One more quick question that I didn't find answered in the book. Is this diet supposed to help with bleeding too? That is our major concern. Does anyone have any personal experience with this? Does the diet help diarrhea and blood? My husband has blood each time he has to use the bathroom which is 3-4 times a day (we've already discussed it with his doctor who is concerned and wants to do another colonoscopy).

By the way, I love this place. I found it about a week ago and have been reading the old posts every day after work :) It's so helpful and imformative.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 11/6/2008 5:43 AM (GMT -7)   
newcrohnwife said...
Thanks so much for all the advice. I'll be off to the store this afternoon to buy ingredients for the yougurt.

One more quick question that I didn't find answered in the book. Is this diet supposed to help with bleeding too? That is our major concern. Does anyone have any personal experience with this? Does the diet help diarrhea and blood? My husband has blood each time he has to use the bathroom which is 3-4 times a day (we've already discussed it with his doctor who is concerned and wants to do another colonoscopy).

By the way, I love this place. I found it about a week ago and have been reading the old posts every day after work :) It's so helpful and imformative.


Awww, thanks, newcrohnwife! And welcome to the forum! I sure hope this helps your hubby!!! Also, have you run across all the online info about this diet?

I'm hoping someone will answer your first question who was actively bleeding when they started the diet. My son was probably near remission when we started, so I can't advise. But yes, it is *supposed* to help with bleeding. And diarrhea. Fanatical adherence, though...

Once you get him through the intro diet--providing it helps--it will ease your mind to know there are many cook books on the market that are SCD compliant, and of course loads of recipes online.

Spooky, if that happens again with your yogurt, I would let it finish its 24 hours to rid it of the lactose and just use the yogurt for recipes that call for it to be cooked (cooking kills all the good guys, anyway). I'm glad you brought up the subject, though, because my yogurt maker runs high in temp., too. I'm going to look into this!

...lastly....the point has been made about the use of the word "whining". can we let it go now?...please.... smilewinkgrin
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more Specific Carbohydrate Diet (SCD) recipes, too! (cooking challenged)


Miss3
Regular Member


Date Joined Sep 2008
Total Posts : 97
   Posted 11/6/2008 6:41 AM (GMT -7)   
newcrohnwife,

I was under the care of a GI when my D and bleeding got to the point where I was going 20-30 times a day. I finally just went to the ER myself because I was getting nowhere with the GI office.
SCD is definately worth a try. He may be more successful if you are willing to do it along with him.
I'm not sure if it has really done anything for me or not. I was sticking to it faithfully and things were going well but as soon as I got my period things were stirred up again so my issues may be hormone related.

You may want to try the yahoo group. Some of the members have been doing SCD for years and they have tons of advice. You can sign up at

http://health.groups.yahoo.com/group/BTVC-SCD/

Take care,

Miss

TeacherBetsy
Regular Member


Date Joined Mar 2006
Total Posts : 310
   Posted 11/6/2008 8:00 AM (GMT -7)   
My two cents about diet and CD is that you have to find what works for you... SCD, like other plans, works for some people and not others. That said, I do think it's important if you are a relative or friend of someone with CD to be sympathetic and understand that there are times when the person with the illness will feel bad and will need to talk it out. That certainly doesn't mean that they're whining or undeserving of support. Living with CD is very tough at times and having a support system is vital to managing the illness. I hope that your husband will find a dietary plan that works for him and will feel better soon. The plan that worked for me simply involved trial and error... if I can eat something, I eat it... if not, I don't. So far, this plan has worked for more than 12 years.

Best wishes,

Betsy
Dx Crohn's Disease 1996
Have taken Prednisone, Pentasa, Rowasa, and Asacol
Currently on Asacol 2400 mg daily to manage remission
 
 


Stef17
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Date Joined Feb 2003
Total Posts : 1811
   Posted 11/6/2008 10:17 AM (GMT -7)   
newchronwife - When I first went on the diet I was Sooooooooooooo sick, I was bleeding A LOT (with every bowel movement which was at least 10-15 times a day) - within the first week of the diet, the bleeding pretty much stopped. So did the gas, the bloating, the abdominal cramps and most of the diarrhea. It is VERY hard when you first start because you are so hungry all the time. All of those proteins and no carbs leaves you quite hungry. I know this is NOT suggested in the book, but I added some foods "early" that I thought I could handle because I needed more to eat. One of my favorites was to slice and peel an apple, bake it with butter, cinamon, and honey - very yummy and helpful in adding safe foods to the diet. I didn't have any trouble, but go cautiously if you are not sure. Also, once he starts adding in the "almond flour muffins" it should help him feel more full.

You are such a good wife. I don't know what I would have done without my husband to help me on this diet. He really went all out for me and it made THE difference. So, I'm sure your hubby will appreciate you more than you could ever know.  :) I hope he'll feel better soon!

Stef

Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 11/6/2008 10:52 AM (GMT -7)   
My bleeding stopped ~2 months after I started the SCD. However, I was "gluten-free" for about 6 months before that, under the mistaken notion I had celiac disease. I felt much better without the gluten, so the SCD was a natural extension.

Since February, every bleeding event I have had- there have been 4 or 5- can be traced to individual dietary events. One was peanut loaf with a tiny amount of chocolate; one was cherries (the skin must have pectin in it, like apples); another was VSL#3, but only the second time, and not the first.

Now it's been at least 8 weeks since my last event. I am very fortunate in that the SCD works very well for me personally.

Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 11/6/2008 10:55 AM (GMT -7)   

I pretty much had the same experience as Stef! I was bleeding very badly. Within 3-4 days on the diet it stopped completely...I added AVacodos to my diet next and good along side a beef patty! I add lemon juice salt and peppr. Also my beef patty's were seasoned with salt and pepper...and worchisiser sauce...which is illegal so I stopped using it...and my pattys were grilled medium.

The pot of chicken soup was so big and full of chiken I could eat as much as I wanted...


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 11/6/2008 12:17 PM (GMT -7)   
there should really be pinups on different treatments and SCD..these threads go up like every other day and the same answers are given lol
SCD since 01, remission since 01, occasional Arby's breaks :)


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 11/7/2008 4:33 PM (GMT -7)   
As for wheat and gluten, investigators say it's like the "chicken and the egg"...they aren't sure whether immune disorders provoke wheat and/or gluten intolerance in people who had no prior history, or if a developing intolerance provokes immune disorders (or if they both existed together all along). Either way, there is a definite correlation, & it's been proven that eliminating them from the diet of people with immune disorders brings often dramatic improvement.
Also, many people with intestinal/digestive disorders (Crohn's, IBS, ulcerative colitis, even diverticulosis) often also have LGS (Leaky Gut Syndrome). LGS can mimic or worsen many AI disorders, including MS, Crohn's, IBS, lupus, RA, FM, CFS, etc. In those cases, the SCD diet is essential for management.
Refined white processed sugar (like anything else refined & processed) is damaging to anyone & everyone.....
 
so avoid wheat with gluten and refined white sugar and you've done a lot to improve your health!

Post Edited (BeeSting) : 11/7/2008 4:36:20 PM (GMT-7)

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