Am I cured of Crohns??

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Regular Member

Date Joined Nov 2007
Total Posts : 50
   Posted 11/6/2008 9:23 AM (GMT -6)   
tongue  I'll try and make this short.  I was diagnosed in Nov. of 2007.  Had ulcerations in colon and rectum, and possible tiny anal fistula.  I had reactions to every med until Humira, which made me feel much better in February of 2008, and had no further problems.  Had to stop Humira in July because of low WBC. But still no problems with colon.
I just had a colonoscopy and everything looked totally clear with all ulceration cleared up.  The dr. said that the biopsy showed "No chronic inflammation"- No crohns.-Okay?  So he calls my first dr (he is my 2nd) who did my first colonos. and gets the biopsy and pathology report, along with my current biopsy and path report and send s them to a specialist to be read.  The specialist says that the first report was read wrong and that there was no "Chronic Infl." either.  So that when i was first diagnosed it may have a bad infection instead of crohns, because its not showing crohns now and it was misread the first time. So my dr says it was either totally cleared up or that i never had it in the first place.  Anyone have any ideas??? He said it may come back in the future-we'll just have to wait and see, but i dont' need meds or anything right now.  Anyone have an idea????

Regular Member

Date Joined Mar 2006
Total Posts : 310
   Posted 11/6/2008 9:54 AM (GMT -6)   
Congratulations on your test results! That said, I've always been told and have read that once you have Crohn's or UC, you always have it, even if you go through times like this when it isn't obvious or flaring up. Hopefully, it will be dormant for a while and you'll be able to enjoy a long remission... but the nature of chronic illness is that it is chronic and can come back. That said, if they think it was an infection that may have cleared up, so much the better. That would be wonderful news!
Dx Crohn's Disease 1996
Have taken Prednisone, Pentasa, Rowasa, and Asacol
Currently on Asacol 2400 mg daily to manage remission

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 11/6/2008 10:06 AM (GMT -6)   
There is no cure, but perhaps you were orginally misdx or you are in remission. I would be very cautious with thinking the misdx route, without have a couple of different opinions. I think vigilence is a good idea right now.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Regular Member

Date Joined Sep 2008
Total Posts : 97
   Posted 11/6/2008 12:35 PM (GMT -6)   
I had a colonoscopy done and first GI said crohn's. Second oscopy done two months later in hospital, that GI said UC. So I asked the GI that came into the hospital to see me next and he said, get this, they are the same thing! These are three GI's from the same office. Sometimes I wonder if any of them really know what they are doing. I never saw any results from biopsies stating it was definately crohns or uc. Right now I have no idea what's wrong but am going to an MD that is running tests to see what my underlying cause is. He sounds confident that once you diagnose what is causing the inflamation and treat it, symptoms go away, we'll see.


Regular Member

Date Joined Nov 2007
Total Posts : 50
   Posted 11/6/2008 1:13 PM (GMT -6)   
Good Luck Miss 3. All i know is that I had terrible ulcerations and now they are gone and the biopsy is showing no crohns. This all happened to me in the course of 1 year. I never had any bad problems before that. I can only hope that maybe i was misdiagnosed, but i'm also a realist.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/6/2008 1:32 PM (GMT -6)   
Hi Did you have symnptoms when you took the first scope. Hope they didmake a error that would be great . lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Regular Member

Date Joined Nov 2007
Total Posts : 50
   Posted 11/6/2008 1:39 PM (GMT -6)   
yes i did , and i didn't know what was wrong. I initially started with horrible rectum pain. When they did the scope they found a really bad area in the rectum and a couple in the colon. After that i went to another dr becasue i didn't like the one i had and he thought he saw a very small anal fistula. I started to get a little better, and then felt completely better with the humira. I got off it in June and have felt fine ever since. I don't know what kinf of infection could have caused all of that if it wasn't crohns (?)

Elite Member

Date Joined Feb 2004
Total Posts : 20552
   Posted 11/6/2008 1:51 PM (GMT -6)   
I think C-diff could have caused that but I'm not 100% on that...either way, it could have been CD but you found remission, especially if there was a fistula involved, important to remember as well that there are mild cases of CD (mild-moderate-severe) and hopefully if you do have CD you are and remain a mild case.

I'm just glad for you that you are well now and hope it continues for you and that you don't have CD or any other IBD for that matter.

My bum is broken....there's a big crack down the middle of it! LOL :)

Regular Member

Date Joined Nov 2007
Total Posts : 50
   Posted 11/6/2008 2:07 PM (GMT -6)   
Thanks Pb4-it is much appreciated

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 11/6/2008 8:33 PM (GMT -6)   
If you weren't misdiagnosed, then you are in a great remission, the kind we all dream of..
However, if you do have IBD, specifically CD, no you aren't cured..


Veteran Member

Date Joined Mar 2006
Total Posts : 2672
   Posted 11/7/2008 12:04 AM (GMT -6)   
That is actually a fear of mine, that they won't find anything wrong suddenly with a colonoscopy. Then take away my diagnosis. I've heard that happen to others, they get pulled off their treatments and then flare up later on.

I'm sure that it happens that some are misdiagnosed, but I think they should be more careful to realize sometimes we can just be in remission OR the inflammation is in places they can't see with that precious scope of theirs!
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 11/7/2008 10:04 AM (GMT -6)   
I think you are just in remission. I had two really bad flares during the 1st four years with this disease and then had a 20 year remission.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.

Regular Member

Date Joined Jan 2007
Total Posts : 184
   Posted 11/8/2008 1:20 PM (GMT -6)   
I came accross his video on Crohn's disease which was creaed wihthe nation's top GI doctors. I am consantly looking for stuff that my doctor (Dr. Rubin) has done. This is a great education series on Crohn's disease:

Crohn’s Disease-Patient Education-3 web casts on Crohn's Disease

Drs. Stephen B. Hanauer and David T. Rubin from the University of Chicago Medical Center, Dr. Maria T. Abreu from Mount Sinai Medical Center, and Richard J. Geswell President of the Crohn’s and Colitis Foundation participate in this 3 part video on Crohn’s disease produced by Patient Education.
Crohn's and Ostomy in 2004

Veteran Member

Date Joined Dec 2006
Total Posts : 517
   Posted 11/9/2008 3:11 AM (GMT -6)   
I hope for your sake that it was truly a misdiagnosis. If it wasn't, then enjoy your remission and I hope it lasts a good long time!
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone, flaxseed oil, L-glutamine.

Veteran Member

Date Joined Apr 2006
Total Posts : 1665
   Posted 11/10/2008 1:26 PM (GMT -6)   
a simliar thing happened to me. I was diagnosed with much ulceration, friability, inflammation through colonscopy, ctscan and sbft. a few months later all was gone and has never been seen again with many tests. my main issue was pain, and that pain continued. I had two surgeries to cut adhesions and that helped some pain and I gave up gluten and now feel fine. I have one GI consider me in remission, the other says it was never crohns. I really don't even think in terms of crohns anymore. I figure I feel great and that is enough. actually, there have been many people come thru here with similar stories. I know once you have CD you have it, but I really think there are ways for the symptoms to show and be something else. my GI agrees. glad you feel good! yp

49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.

Regular Member

Date Joined Nov 2007
Total Posts : 50
   Posted 11/10/2008 1:58 PM (GMT -6)   
Well my dr said that the ORIGINAL biopsy from my first colonoscopy last year did not show "Chronic Inflammation"  although it did show inflammation.  And my 2nd scope showed no inflammation a few weeks ago.  So i guess the key word is chronic-i guess that,  along with the damage they see determines crohns. (?) So he is saying if the first biopsy was wrong-maybe it was a bad infection instead. (?)  I can only hope.
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