Post Edited (MMMNAVY) : 11/8/2008 3:35:47 PM (GMT-7)
I am really sorry to hear about your mom. I really hope that she gets much better, very much sooner than later.
Aren't little brothers just little pains? I have one and when I ask him to do the simple we things when I am ill, it is like, what do you think I am, your nurse? LOL... Little git. I am sorry that you are getting it so hard at the minute, but you seem like such a strong willed person. From what I see, alot of people do not understand Chrons or UC. It is like it has been hidden from the world. But yet, everyone knows of IBS!
Where I you, I would sit down with the family and discuss the details of your illness, and even have them search the internet to see for themselves just how nasty this DD is. I hope that that you get some better understanding and support from them in the very near future.
Post Edited (MMMNAVY) : 11/8/2008 4:11:31 PM (GMT-7)
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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Oh, that is so hard. I too am struggling with the support of my husband and the severity of the disease. He cant seem to get his head around this is a disease you manage, not cure. He keeps telling me to try other doctors ( I have gone through about 4 in 5 yrs. I think you have to lean on those you understand, instead of educating the ones who don't.
Take care of yourself!
One more time Thank You! for always being here for us all, even when you are under such stress yourself ((((( )))))
Post Edited (Margie11) : 11/9/2008 7:23:08 PM (GMT-7)
Yes, you are right, his concern was for both of us, he loves me dearly. He is the first born male in his generation from a patriarchal society, and I go on the defensive really easily after 35 years of marrage. He was ill through much of his childhood. My first sign of a flare, is a hint of insecurity, this panics me, I hate mental symptoms most of all. He is a big baby, who went out and got himself a feminist. Go figure! In spite of my feminist attitude, I furthered much of it. I came from a family with much grieving and illness, so I fell for way too much. With Crohn's and stress, it is self preservation that requires me to expect all that someone has to give, from the whole family. They expect me to give 110%, as I always have, but some days my spoons run low, and it seems they just still don't get it. In his case, he acts as if I am not allowed...Lots of sighs and snorts. LOL.