Is it possible to have a fistula with only a fever as a symptom?

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jill in ca
New Member


Date Joined Oct 2008
Total Posts : 19
   Posted 11/8/2008 11:37 PM (GMT -7)   
I have never had any fistulas, but I cant find the answer to having chronic fevers.  I am out on disabililityfor the first time ever, and feeling very strange about it.  My husband seems to think this is a vacation for me and the time to do everything on our "someday" list just bc I am not wokring fulltime.  This is my time to get a chance to heal and find some answers.  Since no other indicators are pointing to a severe problem, is it possible to have a fistula without being in agony with pain and typical sypmtoms?  I have the chronic pain anyway, but nothing more or worse than usual.  Anyone with a fistula have any advice?
Diagnosed with CD in 2004.  Currently taking Pentasa, Entocort, probiotics, fish oil, ultra inflamx powder.  Dairy and wheat free diet.  Only struggling now with fevers, everyday!  No surgeries yet.  Tried Mp6-gave me joint pain/tried remicade-gave me pneumonia


straydog
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Date Joined Feb 2003
Total Posts : 13473
   Posted 11/9/2008 12:36 AM (GMT -7)   
I had an abdominal fistula that opened up on my old hysterectomy scar. Other than the low grade fevers I had no pain there. How I found the fistula was I kept smelling this fowl odor and could not for the life of me figure out where it was coming from. Then I spotted this small opening on my old scar and got a good look at what was going on there. I was started back on Remicade and Flagyl and got it cleared up. I am getting ready to try Cimzia and I am very excited. The Remicade is making me pretty sick for several days after the infusion and running a fever as high as 101. Susie


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/9/2008 5:57 AM (GMT -7)   
Hi Jill have you had any test to check for abcess and fistula's? What is your Dr. saying about your fevers and how high are they. Whether it's from fighting off a abcess or pointing to another problem is hard to guess at. Have you had any test to determine that there isn't anything going on there? Hope you do get some rest but if your out on disability for the first time you might have some problem that has sprung up on you .Hoping that's not the case. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Mormor Vicky
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Date Joined Mar 2007
Total Posts : 684
   Posted 11/9/2008 8:32 AM (GMT -7)   
Hi Jill, I had a fistula but it was to my bladder. I never felt pain and from what I understand is that you won't feel it until it lets itself me known. Either by it popping through your skin or causes an abcess. I would assume that a fever would be an indicator of it.

I was running a low grade fever for about 5 months earlier this year but felt okay other then that. I don't know it I had something brewing and just chaulked it up to the ebbs and flows of this DD. Good luck and let me know what you find out.
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (27) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 11/9/2008 2:29 PM (GMT -7)   
I've only had a rectal fistula, and those pretty much let themselves be known! But I can certainly see where an abdominal one may only have fever as an only symptom, especially at first.

Fever is a symptom in Crohn's from everything that I've read. When I was released from the hospital a few years ago I was running a really low low grade fever.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!


jill in ca
New Member


Date Joined Oct 2008
Total Posts : 19
   Posted 11/9/2008 9:46 PM (GMT -7)   
What test do they do to rule out a fistula?  I dont have anything obvious anywhere.  My fever hangs between 99.8-100.8  all the time.  It never peaks or seems to break.  It has been 9 weeks and I am going crazy.  My other typical symptoms are as good as they can get, so this is my last mystery.  There only comment is that this could just be the way its going to be, and the result of having an autoimmune disease, or to go up a level higher to methotrexate.  Seems dramatic just for a fever with the side effect risks.  The others in that family all gave me reactions, Pneumonia with Remicade, and severe joint pain with 6mp, so I am hesitant to go that route again.  I just feel like I am missing something.  I have eliminated wheat and dairy, rarely ever drink soda, working on eliminating coffee and moving to teas, and I drink so much water I spend the day in the bathroom.  I added Monavie (for the glucosamine) to my regular routine.  Anyone taking that or ever have any problems from that?  Its just jiuce fromt he acai berry, but I can't imagine it could cause anything, its just an antioxidant.  But with my luck, if there is a side effect, i will get it.  Since I still have pain and cramping, I still take vicodin to control it, and that seems to be the only thing to allow me to function with the fevers, but I don't want to rely on that.  All its doing is masking the symptom.  HELP!

Diagnosed with CD in 2004.  Currently taking Pentasa, Entocort, probiotics, fish oil, ultra inflamx powder.  Dairy and wheat free diet.  Only struggling now with fevers, everyday!  No surgeries yet.  Tried Mp6-gave me joint pain/tried remicade-gave me pneumonia


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/10/2008 6:21 PM (GMT -7)   
Hi Jill to rule out fistula's they can do CT's and SBFT.I had an ultra sound when I had
my abdominal abcess and then got a fistula to surface from surgery ,I also had a fistula from small to large bowel. Latey a little abcess or something in the surrouding rectal area which got painful and I could feel that one. Like others said it could just be the CD. I think it would depend on how big a abcess gets as to how much pain is there. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 11/11/2008 1:50 AM (GMT -7)   
Well...what I can tell you of my fistulas...I didn't know they were there. I knew I was sick (didn't know I had Crohns back then). I was down to eating a piece of bread with honey on it at night (I was still working). I noticed some stuff in my urine and tried to explain it to my doctor who didn't listen. He put me through a billion and one tests that showed all sorts of abnormalities but nothing definitive. My gyno sent me to a GI who had me get two tests done. A CT with contrast (gag) and a SBFT. The CT was so bad they didn't even bother with the SBFT. I went home from that CT and got called two hours later to come to the hospital as an emergent case. My internal organs were slowing to dangerous rates or something b/c of the massive infection (never did learn which caused it...either a perforation of the appendix or a burst abscess) that was eating holes in my intestines. I was peeing fecal matter (fistula from intestine to bladder). I had two other abscesses that were found later during exploratory surgery. Get the CT scan. It tastes like crap but I swear...if they had done something as simple as that when I first started explaining what was wrong with me...I wouldn't have the issues with fertility I have now. The infection ate my R fallopian tube. The Crohns set up two more abscesses behind my uterus (required draining). My other fistulas went from a JP drain to intestine and from L to S intestine, with one other fistula that led from intestine to what I call innerspace. It was just unconnected to anything and whatever went through it went into the empty cavity of my lower abdomen. It's worth the irritating of CT scans...it was the only thing that showed the massive infection. Who cares about hot flashes when your internal organs are shutting down? :-P
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)

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