Coming off Entocort

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Regular Member

Date Joined Jul 2007
Total Posts : 188
   Posted 11/9/2008 3:42 PM (GMT -6)   
I have been on Enocort since October 2007. (one year)  I started on 9 mg-Went down to 6.  I never wnet down to 3mg; However,I went to a new Gastro this past week.  He told me that usually three months is the maximum time that anyone is one Entocort-  Well, I was already out of my prescription and had been about a wee.  So-When he told me that I just used it as an excuse to go spend the $ on the medicine.  So, long story short, I have not had Entocort in about two to three weeks.  Does anyone know if this is the reason that I amso tired and irritable??  Any advice is appreciated.

Forum Moderator

Date Joined Nov 2003
Total Posts : 7054
   Posted 11/9/2008 6:04 PM (GMT -6)   
You might have been getting some systemic benefit from the Entocort. Some people do absorb a small amt of the steroid component into their body. So it could account for you being tired and irritable.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 11/10/2008 8:31 AM (GMT -6)   
I had to do a very slow taper. I was on it 3 months but withdrew badly coming off. Be careful! My blood pressure dropped, I was exhausted, my joints hurt, etc.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

Forum Moderator

Date Joined Feb 2003
Total Posts : 13361
   Posted 11/10/2008 10:11 AM (GMT -6)   
Wow, I have been on Entocort I think since 05 or 06. My gi has no intention of taking me off. I ran out one time and started flaring badly, that taught me a lesson right there. Good luck Susie

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