Peri anal Crohn's

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BitBit
Regular Member


Date Joined Oct 2007
Total Posts : 44
   Posted 11/9/2008 4:21 PM (GMT -6)   
What has been your experience with Crohn's in this area? Symptoms? Anyone ever get a virus down there b/c ther immune system has been compromised by Remicade or antoher immunosuppressant?

conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/9/2008 4:35 PM (GMT -6)   
Sorry I cannot help, but I have never heard of this. Did you try to google it?

Angela101
Regular Member


Date Joined Mar 2005
Total Posts : 79
   Posted 11/9/2008 4:57 PM (GMT -6)   

Hi Bitbit,

  I had perianal disease which manifested itself via abcesses.  They were very very painful and did not respond well to Remicade and were made worse by treatments of prednisone.  I had a drain inserted into my perienium and was put on a long course of antibiotics.  This was very painful and uncomfortable as the antibiotics cause diarhea and the placement of the drain made it almost impossible to keep the area clean.

I had the drain for 5 months when the doctor's suggested they disconnect me giving me an ileostomy so that the perianal abcess would have a chance to heal.  I just had reversal surgery for the ileostomy after having it for 18 months.  The abcess still has not healed completely but my intestinal Crohn's is in remission.  I was told I have a 50/50 chance that the abcess will come back again but since I have a lot of intestine left and am only 31 I did not want to live with the bag forever and decided to take the risk.

Now, I am waiting to see.  I hope the disease will not come back in this area and the doctors feel Remicade is the answer.

Are you having symptoms?


October 2003 - Dx/ed with Crohn's disease
April 2004 - 2ft of small bowel removed plus complications due to abdominal abcesses - 6 weeks in hopsital
October 2006 - perianal abcess, surgery to have drain inserted
February 2007 - abcess wont heal surgery for temporary ileostomy, started Remicade
Oct 16th, 2008 - Surgery to reverse Ileostomy - in Remission first time ever!!
 
 
 
 


BitBit
Regular Member


Date Joined Oct 2007
Total Posts : 44
   Posted 11/9/2008 5:52 PM (GMT -6)   
I have had an abscess that burst, fistula, and skin tags. Now, they think I have a virus down there. I have bumps on my skin and they want to remove them. they think it is from being on the Remicade and not having a strong immune system to fight off a virus that might have been dormant in my system. I am trying to find out if anyone has had this or something similar.

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2739
   Posted 11/9/2008 6:53 PM (GMT -6)   
My symptoms were an abscess, fistula, chronic fissure, and skin tags. Never heard of a virus there though.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/9/2008 9:43 PM (GMT -6)   

I've only had issues with perianal crohn's skin tags...this link shows pictures of them

http://www.emedmag.com/html/pre/fea/features/011504.asp

It's the second set of pics under the pics of hemmies that are perianal croh'n skin tags (aka; elephant ears)

 

:)


My bum is broken....there's a big crack down the middle of it! LOL :)

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