HPV treatment and Crohn's... help!

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patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 11/10/2008 2:03 PM (GMT -7)   
Ok, so I debated making up an "alternate identity" for this post, but then decided that I shouldn't be imbarrassed because 50% of adults in the US have this same stupid problem, so...here goes.

I have recently been diagnosed with HPV in the form of genital warts. I thought they were skin tags until I became pregnant and I went from having 2 weird bumps to having 20. Upon diagnosis, I was given Aldara creame to apply to the affected areas. The Aldara gave me immediate D after only one treatment, which is listed as a possible side effect. I stopped the Aldara after the initial application on October 1st. I did some research, and found a homeopathic remedy called Wartrol that got excellent reviews. I tried it for the first time last night, and I am NOT in good shape today... more D, etc. While being "homeopathic" in nature, the Wartrol still works via "boosting the immune response" to the HPV virus. I'm going to give the Wartrol a few more days to see if this continues, but I'm quite scared.

This is so frustrating because I have been doing so well with the gluten free diet and the LDN. Now these HPV treatments seem to be throwing a wrench in the works. Also, these treatments are supposed to go on for MONTHS... 6-8 being a ball-park estimate. I CANNOT tollerate the D and frequency for that long, but I also need to be rid of these stupid bumps!!!

Has anyone else had to deal with this? Any tips or suggestions? I know this is a HIGHLY personal question, and that you may not want to post responses onto this forum, so please... if you can help... feel free to e-mail me. Thanks in advance guys.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 11/10/2008 2:06 PM (GMT -7)   
Sorry - I thought the little Yahoo logo under my name listed my address. The e-mail is patientspiders (at) yahoo (dot) com.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/10/2008 2:40 PM (GMT -7)   
I haven't been through this and really feel for you. I'm wondering if pregnancy is complicating matters as well. Besides being unsightly are the bumps bothering you? Rather than going through months of treatment could you wait until after you give birth and see if they just go away? I'm sorry I can't be of more assistance.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 11/10/2008 2:57 PM (GMT -7)   
Being pregnant definitely made things worse... but that was earlier this summer. I'm not pregnant now, so I really want to try to get rid of these things, partly because they are contagious and make me feel like a lepper, and partly because my husband and I want to try to get preggo again. He, by the way, has gotten out of this whole ordeal without any sign of the stupid things. Stupid messed up immune system of mine!
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/10/2008 5:21 PM (GMT -7)   
My roommate had HPV and she said that the guy is usually a carrier w/ no symptoms. The only way to truly test for them in men involves sticking something into their penis. Most men don't go for the invasive STD tests and only do blood tests, and then they don't realize they are an HPV carrier. You are at a much greater risk of ovarian or uterine cancer. I can't remember which. So you usually have to be tested every 6 months.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 11/10/2008 10:11 PM (GMT -7)   
Thanks for the info and support Fitzy... and to the others who e-mailed. Every little bit helps.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


mr
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 3/18/2009 8:42 PM (GMT -7)   
Hi anyone help me pls. My Dr. called me today that I have abdnormal paps mere result I have precancerous cells the Dr. told me that I"m middle level I didn't understand what is middle level means I have cancer?
or I may have cancer? My appt is on monday I need anyone to help plsssssssssssss.

donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 3/18/2009 11:18 PM (GMT -7)   
No, it does not. It means that they have to biopsy them and if they really exist, remove them in very minor surgery. No real need to panic.

Take pain meds before the biopsy.

Donnaeil

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 3/19/2009 2:00 AM (GMT -7)   
are you taking pills for HPV ?

i just got something to put straight on to the warts.

I only got them this one time, 3 years ago and have not had any problems since then, HPV virus is really common because you cant protect yourself by using condoms.

But please stay safe and have yourself checked for cervical cancer every year..
HPV virus can cause cervical cancer.

I had to have minor surgery 3 years ago due to precancerous cells on my cervix but that is not a big deal. So if you go every year they should catch it early, if you ever get it and may save you from getting cancer..

This is nothing to worry about, but just something you need to be aware of :)

Good luck..
24 year old female
Diagonsed with Crohns disease in December 2008..
Medication - Asacol, Remicade, Entocort


orngie
Regular Member


Date Joined Feb 2009
Total Posts : 161
   Posted 3/19/2009 6:03 AM (GMT -7)   
A friend of mine who had genital warts had them removed with a laser in her Dr's office. She has not had any further problems with them.

mr
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 3/19/2009 7:09 AM (GMT -7)   

but the dr told me i have precancerous cell and im in the middle level can i be saved?

does middle level mean that I have cancer now?

donnaeil said...
No, it does not. It means that they have to biopsy them and if they really exist, remove them in very minor surgery. No real need to panic.

Take pain meds before the biopsy.

Donnaeil

mr
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 3/19/2009 7:12 AM (GMT -7)   

hi i got hpv from my husband and i'm scared which level was your friend?

what did they do to her? i'm scared of getting or probably have a cancer

orngie said...
A friend of mine who had genital warts had them removed with a laser in her Dr's office. She has not had any further problems with them.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/19/2009 7:38 AM (GMT -7)   
Plz email me Patientspiderts
If you would like

LYN
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
              CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            Keep The Fight Going..Or YOu Will Lose
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
                                     LYN


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 3/19/2009 10:47 AM (GMT -7)   
Am surprised to see this thread brought back to life...

Mr - you need to call your doctor and ask what "middle level" means. NEVER be satisfied with results that you don't understand. And there is no reason on earth you should have to wait until Monday to figure it out. That's ridiculous. Call your doctor's office immediately.

In the mean time -
PREcancerous means - PRE= BEFORE = THEREFORE YOU don't technically have cancer. Lots of people have precancercous cells removed and never get cancer. Take a deep breath.

As far as the HPV part of the original post - for anyone following up - try Apple Cider Vinegar. Soak cottonballs and then smack 'em on the warts with medical tape. A couple nights with this wicked treatment and the warts die.

Now, if my immune system would just decide to fight the stupid HPV so that they would quit appearing I will be happy as a clam.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds
Noticing a real difference with a Gluten-Free diet.
Currently on:
Cimzia (loading doses 2-12-09)
Probiotics, Digestive Enzymes, and Prednisone


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 3/19/2009 10:56 AM (GMT -7)   
Bank in the "old days" prior to the making of anti-viral medications we treated genital warts by freezing the warts with liquid nitrogen. I was just reading that this type of treatment is still being used and has a pretty good success rate. Is there some reason that they prescribed the topical treatment instead of trying cryotherapy [freezing]? No need to respond here, you can email me if you wish.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 3/19/2009 12:46 PM (GMT -7)   
Very good point, Ides, but unfortunately, wart removal is not considered "medically necessary" and thus won't be covered by insurance. The cryo and laser therapies offered are very expensive from what I've researched, and my dermatologist says that they often return within the year.

It sounds like most people's immune systems fight it off and the HPV goes away. I'm hoping my body will catch up eventually!
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds
Noticing a real difference with a Gluten-Free diet.
Currently on:
Cimzia (loading doses 2-12-09)
Probiotics, Digestive Enzymes, and Prednisone


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/19/2009 1:56 PM (GMT -7)   
Will keep you in thoughts and prayers
Hoping this for you as well PS

LYN
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
              CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            Keep The Fight Going..Or YOu Will Lose
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
                                     LYN


mr
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 3/19/2009 6:54 PM (GMT -7)   
I tried my best to take appt from my Dr. this week it was impossible they told me they are going to do colposcopy and then start treatment.I have heard that Once we exposed to HPV, we will have it in our body forever. Is there away to get rid of this virus forever and not have it in our body? Most women get abdnormal paps mere even after they get treated from HPV. So I might get it back years later after the Dr. treats me on monday.
 
patientspiders said...
Am surprised to see this thread brought back to life...

Mr - you need to call your doctor and ask what "middle level" means. NEVER be satisfied with results that you don't understand. And there is no reason on earth you should have to wait until Monday to figure it out. That's ridiculous. Call your doctor's office immediately.

In the mean time -
PREcancerous means - PRE= BEFORE = THEREFORE YOU don't technically have cancer. Lots of people have precancercous cells removed and never get cancer. Take a deep breath.

As far as the HPV part of the original post - for anyone following up - try Apple Cider Vinegar. Soak cottonballs and then smack 'em on the warts with medical tape. A couple nights with this wicked treatment and the warts die.

Now, if my immune system would just decide to fight the stupid HPV so that they would quit appearing I will be happy as a clam.


caroline_r
Regular Member


Date Joined Apr 2004
Total Posts : 94
   Posted 3/21/2009 5:55 AM (GMT -7)   
mr said...
I tried my best to take appt from my Dr. this week it was impossible they told me they are going to do colposcopy and then start treatment.I have heard that Once we exposed to HPV, we will have it in our body forever. Is there away to get rid of this virus forever and not have it in our body? Most women get abdnormal paps mere even after they get treated from HPV. So I might get it back years later after the Dr. treats me on monday.


That's true, you do have it in your body forever and the thing is that a lot of people aren't aware that HPV also causes breast cancer, so keep that in mind too.

There are different types of HPV and they say 80% of the world population has been in contact with it. Men are mostly the carriers of this virus so if you've ever been diagnosed with it you need to make your boyfriend/husband/lover get tested and treated for it. The funny thing is that sometimes it's really hard to discover it in men so if the test gets back negative, do it again in a couple of months or weeks or whatever because if you have it, they have it 100%...

Another thing that's really bad about HPV is that it has even been found in women who have never had sex. So keep in mind that whenever you're in a hotel you can get it if you don't disinfect the whole shower cabin, and it'd be good if you did it in your own home too, before and after taking a shower because if you have it, your kids can get it too if they for example take baths and the tub hasn't been disinfected first.

A lot of women get in touch with this virus but nothing happens to them because their immune system protects them but when their immune system gets so to say a little shaken by a stressful situation or something like that, the number of the virus (did I say this right?) starts multiplying and then they develop a cancer. Us Crohnies have to be careful because we're on immunosuppression.

It's also important to say that when you get rid of the warts you still have the virus and the warts come back every once in a while. A lot of gynecologists treat their patients with Podophilin. So maybe you could try that? It's pretty expensive but effective. You should do the HPV test of your vagina, so inside and out to make sure you won't get cervical cancer. And
**I edited out that part a we are not Professionals and I also did not find anything that states that this is fact**...........LYN
An questions plz email me ..........addy is at the side.........In envelope


Ladies, make your husbands/boyfriends/lovers wash their hand before going to the bathroom because they put a lot of bacteria/viruses on them by not doing so...and then that give them to you. It does nothing to them, but it sure gives women a lot of problems. Another lovely thing is that they can have anything and I mean anything, from HPV to streptococcus B on their penis, in their sperm, on their balls and on their leg hairs...isn't that something? Make your men get tested...they ALWAYS carry something on them. Always. Scientifically proved.

I'm scared of HPV as heck...I really am.

** All sexes should be washing hands not just the men IMHO**

Post Edited By Moderator (Howlyncat) : 3/23/2009 4:50:57 AM (GMT-6)


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 3/21/2009 10:06 AM (GMT -7)   
The type of HPV that causes warts is NOT the same that causes cancer.

Straight from the Centers for Disease Control:
http://www.cdc.gov/STD/HPV/STDFact-HPV.htm
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds
Noticing a real difference with a Gluten-Free diet.
Currently on:
Cimzia (loading doses 2-12-09)
Probiotics, Digestive Enzymes, and Prednisone


caroline_r
Regular Member


Date Joined Apr 2004
Total Posts : 94
   Posted 3/21/2009 11:36 AM (GMT -7)   
patientspiders said...
The type of HPV that causes warts is NOT the same that causes cancer.

Straight from the Centers for Disease Control:
http://www.cdc.gov/STD/HPV/STDFact-HPV.htm


Definitely true! But that doesn't mean that you can't have both at the same time...you should do the HPV test, if you haven't already.

I wish you good luck with everything!
21 yr. old with crohn colitis. Diagnosed in March 2004. No surgeries so far.


Chasity102304
Regular Member


Date Joined Nov 2007
Total Posts : 165
   Posted 3/22/2009 6:28 PM (GMT -7)   
I was dx'd with HPV in 2004, treated and have NOT tested positive for it again. I gave birth to 2 children naturally with no issues. Both Ob/Gyn's were very aware that I had tested positive for HPV in the past and made NO mention of not being able to have a vaginal delivery with either of my girls. I have never heard this before...you would think the c-section rate would sky rocket considering so many people have this virus now-a-days.

**Updated/Edited**

I just did a few searches online to see what I could find about this and everything that I read said that natural/vaginal deliveries are fine in women with HPV. IF a baby contracts the virus, they generally fight it off themselves without medication/treatment unless genital warts are passed to them and that condition can be more serious. I also read that HPV HAS been detected in amniotic fluid therefore c-section is not suggested as it can be passed that way as well. Interesting facts considering neither of my Ob/Gyn's or any other drs who were aware of my history ever mentioned any need for alarm during pregnancies.


Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks

Post Edited (Chasity102304) : 3/22/2009 7:36:59 PM (GMT-6)


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/23/2009 3:49 AM (GMT -7)   
Thank you

I am so glad you took the time to look this up again and find out what was needed for own peace of mind not only for self but hopefully for others

Again thank you

WE do have to watch how things are typed as it can be definitely a anxiety /stress inducer and also perhaps wrong info.........
WE do have to be our own best Advocate IMHO
Just a thought fo this early monday morning
Thanks again

LYN
Not saying this is .......lol
Okay it is early
Am I making sense yet .......


 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
              CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            Keep The Fight Going..Or YOu Will Lose
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
                                     LYN

Post Edited (Howlyncat) : 3/23/2009 8:55:07 AM (GMT-6)


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 3/23/2009 6:00 AM (GMT -7)   
Hi there. I don't have any experience with genital warts, but my husband who has crohn's, has always had trouble with warts in general. Common warts on his hands, plantar warts on his feet. . . they just keep popping up one after another. In fact, he's been in for laser treatment of one plantar wart on his foot now for over 2 years, it just won't go away!

I think it's actually gotten worse since he got on the remicade about a year ago. But the remicade is what helps his crohn's, so what else can we do? I think people with crohn's are more susceptible to HPV. Somehow I think the immune system doesn't recognize the wart virus as a foreign body, and keeps thinking of it as regular skin.

Because he is so susceptible to warts, we've had to set up a home gym, and cancel our gym membership, because the moment the uses the gym locker, or the weight machines, he's got a whole new crop of warts!

But I think in general, if you can get the necessary treatment for it, it's very very treatable. But in my experience, at least based on my husband, with crohn's you may be more susceptible to new infections with HPV.

Ladybugs
Regular Member


Date Joined Jan 2006
Total Posts : 158
   Posted 3/23/2009 5:57 PM (GMT -7)   

Mr,

I had the same thing happen.  I had an abnormal pap smear.  Then the doctor did a colposcopy.  The result was moderate dysplasia, which is PRE cancerous.  Not cancer.  Then I had a procedure called cryosurgery or cryotherapy.  It was pretty painless.  The doctor inserts a smallish instrument and "freezes" your cervix for a few minutes.  The she let it thaw a bit then freezed it again.  The only symptom after was that there was a watery discharge for a few weeks.  Now I just have to go back for regular pap smears every three months.  I'm hoping all will be normal with my next pap.

Good luck - I'm sure you'll be fine :)

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