I was diagnosed in 1977 with Crohn's disease. I have been VERY fortunate and blessed! I have been hospitalized only twice - once when I was diagnosed. I have only taken prednisone twice. I have never had any surgery. Only regular meds I have taken are Azulfadine - every since I was diagnosed.
Well, my luck has run out! During my colonoscopy in Aug. 08, a stricture was discovered. A few tests later, it was determined that removing just the stricture is not an option.
I am scheduled for a colectomy Nov. 18 at the Cleveland Clinic. It will be done laporscopicly.
I have lots of questions and looking for those who have had this - please share with me your experiences.
What can expect in regards to diet? What should I avoid?
What about weight? I have actually gained weight the last several years - thanks to the change of life :)
How long did it take you to adjust to the 'new system'? My surgeon has told me I will have additional BMs per day and they will be looser, but my body would eventually figure it out and things would get better.
I would appreciate anything you would not mind sharing.
I have Crohn's, but Crohn's doesn't have me
Sherri--welcome to the forum! Sorry to hear of your upcoming surgery. I, too, had my surgery at the Cleveland Clinic. Actually, I have been treated there for the last 11 years (luckily my husband was transferred to Ohio for work!!). I had a proctocolectomy, due to Crohn's in my rectum and many strictures, last February, and don't regret it a bit. Although I have a permanent ileo, like Cecelia, my life is so much better now.
Laproscopic surgery will help to shorten your recovery...lucky you! Definately check out the ostomy board...there are some great posts regarding your type of surgery/diet/recovery. Good luck and keep us posted on how things go.
Oh, don't forget to get up and walk, walk, walk and then walk some more...it will get your system up and working sooner so you can get home quicker!