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Bob58
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 11/11/2008 7:01 PM (GMT -7)   
Hi, my name is Mark, I'm 19 and I may or may not have Crohn's Disease. I have an appointment set up in a few weeks with a gastro doc. Tell me what you think however.

High school was alright, but i started noticing that I would start to have severe lower abdominal pains, diarrhea, and occasionally being forced to go to the bathroom.

After graduation, I had intended go to college, however, during the summer my symptoms increased. Therefore at the start of college, I spent most of my days in the bathroom, and never actually attended a class. Try moving in to a 4th floor dorm room, to drop out in a week. I let my room mate keep the couch. ><

Now I'm sitting in limbo with my parents, hoping that I'll be able to take up next year's classes, but my symptoms are worsening.

I don't really know too much about the treatment options, but I have been looking at Crohn's disease after my father mentioned the possibility to me, and my symptoms are dead on.

I have a hard time socializing with my old friends because of this disease and have stopped exercising, still smoke often, and my lifestyle is becoming more and more sedentary.

Cheers, sounds like i have a great life ahead of me. yeah

MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 11/11/2008 7:11 PM (GMT -7)   

Hey Mark/Bob haha

Hopefully you figure out whats going on real soon...Crohns is def not a fun disease to have, but can be kept under control with the right meds. Goodluck to you, and welcome to healingwell.

 

Melissa =)


Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Humira (bi-weekly), 10mg Pred (tapering), Nexium, B12 injections.
 

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 11/11/2008 9:03 PM (GMT -7)   
hey bob.. well either you do or you dont, right? you stiil want to do things right? dont let crohns stop you.. work hard , take things as they come , dont dtrees about what might happen only what does happen.. hope you can find some relief soon.. randy
randynoguts 



     http://www.geocities.com/randynogutsweb/


mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 11/11/2008 9:46 PM (GMT -7)   
Hey Mark,

I was diagnosed with Crohn's right after my freshman year in college, so I have a similar idea of what you're going through, though thankfully I haven't had to miss any quarters (though I left school early one quarter). With the timing of the diagnosis I was able to have the summer to get into a routine of dealing with the disease.

Anyway, there are some great treatment options out there in case you are diagnosed. For me, I started off taking several pills a day (Asacol and Prednisone) but the Asacol made me worse (only happens in like 2% of people). I then started on Remicade which put me into full on remission for almost a year. It was almost like I didn't have the disease and felt totally like a normal college student. Well things have gone down hill a bit, had to switch meds, had to drop out of my study abroad program, etc etc. Guess I took on too much too fast.

There are great options out there and the best thing you can do for yourself is not stress--it'll only make it worse. I'll be honest--my social relationships have suffered a bit. If your friends are true friends they'll understand and let you do things on your own time. And definitely be up front with professors when you do go back to classes (which you will soon I'm sure)--unlike students most professors are aware of the disease and on the whole are very understanding.

Also, do examine your diet. Everyone is different, so keeping a food journal that lists what you eat and the symptoms you experience is a big help. Diet has done wonders for me.

Hope this wasn't too preachy or anything, but I definitely feel for anyone, especially our age, who is just starting with this disease.

Best of luck!
20 y/o, diagnosed 6/2007. On Humira, no wheat or corn syrup, low sugar, low dairy.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/12/2008 6:07 AM (GMT -7)   
Hi Bob and Welcome to Healing Well .Not all of us are the same crohn's can be mild to moderate to severe. At least you are taking steps to see if you do have it and that's a place to start looking after yourself. There is a thread on here that has info on meds. Keep in touch and let us know how things go. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 11/12/2008 7:50 AM (GMT -7)   
Hi Mark...i was just diagnosed with crohn's over the summer...im a senior in college and this was the summer that i turned 21...unfortunately i really didn't live it up much because i was so sick all the time so i know how it is..i felt like a jerk telling my friends i couldn't go out because i didnt want to explain to them what was wrong with me..i had to drop out this semester of college because i got hospitalized 2 weeks after my diagnosis and was there for over a month..my diarrea was all blood all the time so my situation is a little different!...i couldnt eat solid food for weeks and got a clot in my lung..it sucked lol..but im out now and stronger and determined not to let this take over my life..i plan on going to grad school still, even tho im a year behind now because enrollment is only in the fall...my advice to u is to make sure ur doctor isn't doing things the old school way...if he/she wants to put u on prednisone and gives u no other options if it doesnt work after a couple of weeks get a new doctor! prednisone didn't help me one bit! i was on it for 2 weeks at 40mg and got worse..if it's going to help u it will work within a few days! and the side effects r really crappy..im on remicade now where u get an iv infusion of it every month or so..im on a 6 week schedule now..just make sure u educate yourself about the disease and ur options..and dont let these forums scare u...some people have it alot worse so dont think ur going to suffer for the rest of ur life because there r alot of great meds out there that will put u into remission for a long time..if not forever :) thats what i'm aiming for :) good luck..i promise it gets better at some point!


21 year old female
Diagnosed with Crohn's August 2008 (hospitalized for over a month right after)
Taking...canasa, rowasa, 6mp, and Remicade every 6 weeks
As needed...zofran, lortab, tylenol 3, bentyl
Weaning off of Prednisone!


Bob58
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 11/12/2008 4:08 PM (GMT -7)   
Thanks for all the replies!
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