member tired-of-aching has a question

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MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/11/2008 8:19 PM (GMT -7)   
Is there male middle age members who have had surgery on their TI?
Thanks!
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 11/11/2008 8:44 PM (GMT -7)   
I assume TI is terminal ileum - if so, then yes, I "qualify" (56 year-old male with 3 bowel resections).

I can tell you that the surgeries mostly worked, but they are not fun, and obviously not a permanent cure. But they improved my quality of life. There seems to be a law of diminishing returns though. My first surgery bought me 9 years of feeling OK, second time only 7 years. It's been 3 years since the last surgery and I'm showing symptoms again recently.

best regards,
Robert
Crohn's since 1988
3 resections


tired-of-aching
New Member


Date Joined Nov 2008
Total Posts : 3
   Posted 11/11/2008 8:55 PM (GMT -7)   
Hi - I'm the "middle-aged"male (54 and still feel mentally young, but my body betrays me!) and am new to this forum (or any online forum for that matter). I'm considering surgery of TI but can't seem to find any males of roughly same age who have had this surgery. trying to find out if I could get 5-10 years of good quality life before Crohn's symptoms reappear.

Young at heart 54 year old male who has wonderfully understanding and supportive wife. Diagnosed 6 yrs ago; never in remission; constantly fatigued despite massive vitamin regimen; regular acquaintance with toilet; aches in all joints getting worse; tried pentasa, entocort, 6mp, and prednisone. first two did nothing, had quick and severe reaction to 6mp; prednisone helped but don't think taking it for long time is a good thing. Just started methotrexate on advice of rheumotologist. Too afraid of side effect/cancer with remicade. Considering surgery. any help/suggestions would be much appreciated

tired-of-aching
New Member


Date Joined Nov 2008
Total Posts : 3
   Posted 11/11/2008 8:57 PM (GMT -7)   
Robert - Thanks for response. When you say "okay" do you mean good, or okay?

tired-of-aching
New Member


Date Joined Nov 2008
Total Posts : 3
   Posted 11/11/2008 9:01 PM (GMT -7)   
Also, one of the problems I have is lack of absorption of iron, B, and protein (and probably other things). Did this get better with surgery?

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/12/2008 5:38 AM (GMT -7)   
I would say no, because the areas that absorb those thinging in your intestine would be cut out.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/12/2008 5:52 PM (GMT -7)   
Hi Has your Dr' brought up the possibility that you need surgery? I had it done in Jan. I take b-12 shots and a 50 + vitamin. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 11/12/2008 11:25 PM (GMT -7)   
You might try adding a supplement of N-acetyl glucosamine. It is fairly safe - avoid it if you have shellfish allergies. If you are diabetic, you would have to closely monitor blood glucose and it may cause stomach upset or D in some people. That said, it was used in a trial for children with Crohn's and UC with good results over a two+ year period. For details, see: http://www3.interscience.wiley.com/cgi-bin/fulltext/120708799/HTMLSTART
It may be an alternative to surgery, but you would have to have your doctor monitor your progress in case surgery becomes unavoidable. Show him the paper and ask for his help in evaluating it.
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