OMG!!!! I tooo had the worst fatigue of my life!!!! In fact, I decided that its not the way I want to live.... As of Friday I am OFF humira (I talked it over with doc)
Now the Humira did do wonders for my chrons.... But for me, I didnt want to sleep my life away.
I am soooo glad I found your post! I am not loosing it, there are others out there with the same effect!
Thank you, Thank you, Thank you! I can't believe you brought up the feet! I didn't want to whine too much in my first post, so I didn't mention that fact. I stagger around like I'm walking on broken ankles anytime I first get up. Then, once I've been on my feet for a minute or so I can look normal but if I verbalized the experience of walking it would be: ow, ow, ow, ow, ow, ow, ow. They feel bruised. It affects my hands somewhat also. I've been told it's enteropathic arthritis, fybromyalgia, etc.
And I also have to agree with the lack of energy before 2:00pm. I get my son up and off to school in the mornings, and then I'm basically out of commission until the afternoon. I just thought it was because I knew I had to get moving and appear somewhat normal for him, sort of a mind over matter thing, but I really do have more energy after say 5 in the evening. Problem is, by then I'm so behind on everything I'm overwhelmed.
However, I do have to say that I am doing much better 2+ months after stopping the Humira. I've caught up on some errant errands and actually had a few dates with my hubby! The feet though are still a problem. I realize that life without meds is not a long term solution (I have less than 188cm small bowel left - I need to keep it), so I'm researching Cimzia. Would love opinions on this new med if anyone has any.