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becellea74
Regular Member


Date Joined Apr 2008
Total Posts : 90
   Posted 11/12/2008 4:01 AM (GMT -7)   
Hi everyone sorry its been awhile but i have found out some news on what was making me so sick all this time ,and it wasnt kidney stones ,had a ct scane that reviled thickened sml bowel loops and a fistular track between the loops,enlarged mesentric lymph nodes.Also have somthing called pelvic venous congestion syndrome dose anyone understand all this have i alot to worrie about and dose anyone have this pelvic  disorder to. Love some input worried . confused

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/12/2008 6:01 AM (GMT -7)   
Hi At a lost here to answer some of your things going on. I did have the fistula from small to large intestine though.Hope others will know more ,when do you go to discuss this with your Dr.? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/12/2008 7:24 AM (GMT -7)   
Hi becellea,

I had congested pelvis during my last two pregnancies. It caused major swelling "down there". It was very painful. LOL . . . my sister once asked me "why are you wearing a pad when you are pregnant?" . . . I told her "its not a pad, I am very swollen" I couldn't believe it was so bad that it was noticeable with clothes on.

I'm not sure if your swelling is in the same location . . . but my doctor said that it was vericose veins. In my case the extreme of it disappeared at the birth of my babies. *phewwwww* I always had pressure and pain around my cycle and when I was standing too long.

But I've never ever heard of anyone else dx'd with it. I'm also not sure if mine was crohn's related as I had no dx of crohn's back then (27 years ago).

I'm sorry you are dealing with this . . . I hope it is short-lived.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/12/2008 7:24 AM (GMT -7)   
Wow I am sorry you are going thru all of this. I have never heard of pelvic venous congestion syndrome. I am at a loss at what to say other then I am so sorry you are going thru this pain.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/12/2008 12:06 PM (GMT -7)   

Here's a link about PVC (pelvic venous congestion syndrome)....

 

http://www.veindirectory.org/content/pelvic-congestion-syndrome.asp

 

So sorry you're in so much pain, I hope you find relief soon.

 

:)


My bum is broken....there's a big crack down the middle of it! LOL :)

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