Gi appointment

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mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 11/12/2008 5:46 AM (GMT -7)   
Hi there everyone,
I received a letter in the mail the other day, for a gi appointment in april, omg, wow, that is a long time. Can anybody tell me what is going to happen in this appointment? What I can expect, or what procedures if any will be done? I also go see a gyno on december 4th, hopefully I will get some answers, does anybody know what I can expect in this appointment? Or if there are any procedures? Im thinking that maybe he will suggest a laparascopy, I dunno, I just wish this pain would go away, its horrible.
Thanks again in advance
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3110
   Posted 11/12/2008 10:06 AM (GMT -7)   
kelly--is the April appt a follow up? It sounds like you are in pain and should have it addressed now, not in April! I would give the doc a call.

mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 11/12/2008 10:12 AM (GMT -7)   
OHIO, no it isnt a follow up appointment, its my first, and I am quite nervous about it actually, my doctor is sending me there to reassure me that I do not have crohns, because he said because the tests show nothing, that I couldnt possibly have crohns, so now is leaning towards endometriosis.
I am in pain in deed, especially the last couple of days, im getting ready to move, so packing,cleaning, lifting, and its taking its toll, omg im hurting, everywhere. thank you again
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/12/2008 10:52 AM (GMT -7)   
Blood tests do not always show what the use as markers for chrons. It is more symptom based and through the use of Colonoscopy or Upper gi tests. Is the pain the only symptom that you have? Or, do you have other symptoms like Dierrha blood from the anus or any thing else going on?

mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 11/12/2008 11:15 AM (GMT -7)   
i have diarrhea, loss of weight, im not absorbing anything, im now on liquid supplements, the pain isnt only in my stomach, but in my joints and muscles as well as I do have fibromyalgia, i have had a colonoscopy and a smbt, but they didnt show anything so my doctor got snarky and said that he would send me to a gi to reassure me that all that i had was ibs, but then gave me a referral to a gynocologist with suspected endometriosis, i have done a lot of reading, as far as I can tell, endo, and crohns, have a lot of the same symptoms, and i have all of them, i have had some blood, but not for a few weeks now, in my bowel movements that is. Sorry, i was on a rant
thanks
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/12/2008 12:11 PM (GMT -7)   
Hi kelly,
 
It does sound like chrons, but I am surprised the scope did not show it up. Have there been any suggestion of inflammation in the colon? I know how you feel, I am going through the same process as yourself. I am of the the GI tommorow. Just stay with it mate and do not let it get the better of you. I did that oday and ended up in an argument over how she made my sons toast. LOL...

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/12/2008 1:50 PM (GMT -7)   
Hi Kelly it does sound like a long time to find out that's for sure,so what is your Dr. going to do to help you till then? Good luck with the moving .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 11/12/2008 7:50 PM (GMT -7)   
My doctor has not done anything for me, just says that its ibs, he really does not have time, and now that im moving to a new city, 2 hours away, Im going to have to find anothe doctor, thats going to be a challenge,
My dietician however, is in belief that I do indeed have something that is definetly hurting my intestines, she says im not absorbing anything and that I should be on liquid supplements, lactose free because I am lactose intolerant, she says that im losing inches and not pounds, and that my abdomen is very distended, and she saw me on 3 different occasions, and she noticed more and more of a change in my appearance from the first time I went there til the last time I went there, over a course of 2 months i guess, maybe less, so she wrote this in a letter and sent it to my doctor. She did say in the letter that, she believes that I would have less pounds on me, if it werent for my distended abdomen.
I do go to my family doctor on the 24th, any suggestions on what to say to him?
thanks again, all
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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malb
Regular Member


Date Joined Oct 2008
Total Posts : 33
   Posted 11/12/2008 8:49 PM (GMT -7)   
mom1978
I'm not a doctor but what you are describing is definitely not IBS! Sounds to me like you need a second opinion. A colonoscopy will not always show active disease if the scope doesn't get in far enough...Crohn's can attack anywhere from the mouth to the anus. Blood tests and xrays in and of themselves are often not enough to make a proper diagnosis of Crohn's.... not everyone has the genetic markers or severely elevated SED rate, which is the marker for inflammation. Remember that ordinary gps are not specialists, and you are in control of your medical treatment. Doctors serve us, not the other way around. I wouldn't wait until April if I were in your situation. It took me nearly two years to get a diagnosis and I had to be my own advocate and not be intimidated by the fact that doctors supposedly know best.
Your first GI appointment will likely not involve any tests; you're more likely to only be giving him a rehash of you symptoms. Don't wait around in pain and discomfort! Camp out in your doctor's office if you have to in order to get satisfactory treatment. Joint pain is often associated with active Crohn's disease.While it is possible that you don't have Crohn's, you are in obvious distress and your doctor shoud be doing more than paying lip service to your concerns! Don't wait until April!
Good luck!
Michael

Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 11/13/2008 3:35 AM (GMT -7)   
Kelly, I would call the GI and ask to be put on their "cancellation" list. This way, if there is a cancellation, they will call you to get in sooner. I had a Rheumatologist appointment that wasn't for 2 months. I didn't feel like I could wait. So, I called every other day to see if there were any cancellations. After being persistant, I got in 2 weeks later! The best of luck to you. Blessings, Julie:-)
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Slow-FE (Iron), Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 11/13/2008 5:07 AM (GMT -7)   
mom1978 -

I agree. Look up another GI that you can get into sooner. Now understand that Crohn's does NOT show up all the time. This ugly little bugger can hide from tests, including colonosopy. There's a pill cam that can see the inside of your intestines... BUT you want to be sure you don't have diverticulum first. I say this because I had a small bowel follow through (you drink this barium stuff and they watch it on a screen) and it showed diverticulum (little pockets that poke out of the intestines). I too have issues with diagnosis and am bounced around on this. Blood tests come back negative, scope negative but I have pain, D, nausea all the time. I go on and off liquid diets frequently. At times I will be off food for a week.

Moral of the story - don't listen to one doctor. They sometimes get lazy if it's not quick and obvious. Crohn's is not always quick and obvious.

-Leslie

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/13/2008 5:32 AM (GMT -7)   
Hi When you get moved in to the new place I would try to hook up with a new Dr. as soon as you can and just keep that ap. till you find another one. Ask your Dr. if he can book you in for a app. with a GI in the place your moving to .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


sully
Regular Member


Date Joined Oct 2008
Total Posts : 27
   Posted 11/13/2008 10:07 AM (GMT -7)   
April????? thats bulls**t.......not to alarm you, but you could be dead by then, you need to get on them or find a new doctor, i don't understand how some doctors just don't see the seriousness of our disease....i've been lucky lately, my 3 doctors all take this very seriously, and have extensive knowledge and experience treating crohn's and other IBDs.....whenever i need something, they get me in ASAP, usually within a week, or that very day....

I went almost a year with my symptoms before i started seeing docs about it, basically because i was more of a naturalist, thinking i could heal myself, with diet and other methods, while i was having some success, in other areas i wasn't making it.....I lost over 90 pounds in 10 months, about 10 inches off my waist, when my new doctors saw me, they were surprised i could even function at all, i was wasting away to nothing....they got things moving very quickly at that point, and have turned this thing around.....don't let yourself get to that point, take action now
29 years old, crohn's since december 07, fresh out of the hospital for 2 fistula/abscess surgeries, feeling much better, could it be remission???
currently taking:
asacol, prednisone, purinethol, vicodin, remicade
acidophilus/bifudus probiotic, organic whole food multi-vitamins
 
"Flow with whatever may happen and let your mind be free. Stay centered by accepting whatever you are doing" -Chuang Tzu


mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 11/13/2008 10:45 AM (GMT -7)   
I will be getting a new doctor when I move anyways, so he will have a history of whats wrong with me and all of my symptoms, and then I will ask him for another referral, Im moving december 1st to a new city so hopefully with a new doctor I will get some answers, I might also get some answers on december 4th where I am going to see a gynocologist, my doctor thinks I may have endometriosis, not sure if i wrote this already,
thank you in advance
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 11/13/2008 10:55 AM (GMT -7)   
Definitely get all your test results and every other notes by the physician in the past whatever amount of time. Get them before the move so you can find a doctor quickly and get down to finding the cause. It also lets you get a reading of what your doctor is seeing in you...maybe he isn't clear on the details of the disease and how it shows...who knows what doctors think? I hate them but they sure are a part of us Crohnnies' lives.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)


mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 11/13/2008 10:57 AM (GMT -7)   
Yes I plan on doing all of this for sure, thank you again
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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