My Colonoscopy Results

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catpower
Regular Member


Date Joined Nov 2008
Total Posts : 192
   Posted 11/12/2008 12:39 PM (GMT -7)   
Thanks for all of your advice/support about the colonoscopy prep/procedure. I have to say, the OsmoPrep pills worked well for me and I had minimal nausea.

Since I am sensitive to sedatives and painkillers, I actually went through the colonoscopy without any drugs. There were a few minutes of excruciating pain while the doc took a sharp turn through my colon, but for me, it was worth it to suffer for a few minutes since I was able to walk right out of there fine. It was also interesting to watch the screen.

The bad news is that the doctor is 98% sure I have Crohn's. I had scattered ulcers and inflammation throughout the colon, mostly in my distal ileum. My doc wants to biopsy the ulcers/inflamed area before saying it is definitely Crohn's, but given my symptoms and the ulcers, he is pretty confident that is what it is. I have to go for a small bowel follow through in a month.

Is it possible for there to be ulcers and inflammation and it not be Crohn's?

Thanks again for your support.

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 11/12/2008 1:44 PM (GMT -7)   
Well, nothing is impossible, only highly improbable. I assume that you mean your gastro doesn't want to commit himself until the RESULTS of the biopsies he TOOK during your scope come back. He would have been sorely remiss if he had NOT taken biopsies during this colonoscopy.
 
Did you find watching the monitor quite fascinating? I LOVE watching the monitor. You have a gastro who's pretty darn good w/that scope if you had only the one episode of pain!!! "They" say that the sigmoid colon is the trickiest area to maneuver w/the scope and the most likely area for discomfort. My gastro is slick as snot on a doorknob w/that colonoscope and she breezes thru the sigmoid w/o a twinge. Its that doggone transverse colon that gives us grief. I swear mine dips down to my pubic bone and beyond! Women have a slightly longer colon than men, usually. I suppose to make for more flexibility during late pregnancy. Whatever, we do have "fun" usually towards the last half of the transverse colon approaching that hepatic flexure. Other than that my scopes are a breeze.
 
The news doesn't sound good in that it sure sounds like you do have Crohn's and that its spread thru quite a bit of your distal ileum and the colon. Dang it!  It would have been nicer if there has just been one teeny tiny Crohn's ulceration or whatever, just enough to give you a Dx, but mild enough that given proper medication you could knock it into remission fast and KEEP it in remission indefinitely.
 
Ah well, if wishes were horses, right? Good luck and God bless. We are glad that your prep wasn't so bad!! Guess we gotta learn to be grateful for small favors. *sigh*


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 11/12/2008 1:54:58 PM (GMT-7)


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 11/12/2008 2:21 PM (GMT -7)   
That sounds very like the scope report from my first scope when I was first diagnosed. The bad news it is likely Crohns, to be confirmed by pathology. The good news is no apparent fistulas or narrowings, and that you can now proceed to treatment. Basically he has probably found untreated Crohns disease and can now begin attacking it with medications until he finds the right one for you. So take heart . . . it may well be all up from here. And yes, doing a scope withuot meds is both feasible and interesting.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/13/2008 2:12 PM (GMT -7)   
Hi Glad you got your scope done .Keep in touch and let us know how things go. Have they put you on any new meds? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


staceylynn2008
New Member


Date Joined Nov 2008
Total Posts : 4
   Posted 11/13/2008 2:54 PM (GMT -7)   
Hi everyone
 
         Im knew to this site,I just found out my 11 year old daughter has crohn's disease i have ruled and well still trying to come to the conclusion that she has it.I have been through so many test with her and the doctor tolled me ,well i asked him are you sure she has crohn's he said he thinks she does but theres still apart of me that feels she has something else too,they put her on patasa two times a day three pills.it started two years ago ,her stomach always hurting not feeling good especially when she ate and well recently over the summer she started having blood in her stool then we got that controlled and then came mucus stuff in her stool and took her to the physcian and i finally said refer me to a gastro doctor we did an upper gi and egd and gastro empty scan and so but the doctor said i dont need to put her on a diet ,do you think i should get a second oppinion.
                          
 
                                                   Thank you
                 Mother of Three

conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/13/2008 4:20 PM (GMT -7)   
Staceylynn2008,

I am so sorry that your young daughter is having to go through this. I offer my thought nd prayers for you and your family at this time.

Staceylynn, I have learned so much from the good people here regarding this Disease. It does sound like he symptoms would be chrons related. The doctor has ruled out other possible causes such as IBS. With IBS, you do not pass any blood with it.

I have discovered throught the use of this site that Diet does play a major role in this disease. What I would suggest is when her symptoms are at their worst, put her on a liquid diet, this will give the stomach some time to heal (it works, the folk here advised me to do this and it does work).

I would not wait for the gastro doc to confirm the disease. I would prehaps speak with someone who can put your daughter on the path to a correct diet?

StacyLynn, I know you have had a hard time with this and getting a DX, but stick with it. Ask any question you need, folk here are brilliant at given answers and support.

God Bless.

Conor

catpower
Regular Member


Date Joined Nov 2008
Total Posts : 192
   Posted 11/13/2008 4:35 PM (GMT -7)   
They put me on Entocort to start with. I don't know much about the drug except that it is a milder steroid (according to my doc), so I'll be looking through this forum for info on the drug. I hope it works!

Staceylynn - Sorry to hear about your daughter. Diet is really important to Crohn's, especially eliminating foods that irritate her. Some people are really bothered by tomato sauce and seeds, others by fatty foods. It's a process of elimination, but it's worth trying. Good luck!

staceylynn2008
New Member


Date Joined Nov 2008
Total Posts : 4
   Posted 11/13/2008 6:12 PM (GMT -7)   
Thank you for helping me understand this disease more better and i will look into a diet program for her.Thank Yall, and also my youngest son has been having problems they both have had problems but different symptoms and my oldest son is fine,my son devin im taking him to get test now and it was like a double wammy for me first my daughter less then two weeks ago diagnosed and now i started running test on my son he always and has been for two years now vominting and tired alot him and my daughter are the only ones in the house hold been having problems,now its time to see whats wrong with my son we ,just got through running a egd on devin last week,today we done a gastro empty scan on him he is 9years old and when we done the egd we seen some red specs on i think it was is stomach or intestines the doctor said hes not going to comment on it but ,that it shouldnt be there ,so im so tired i have been going and fighting this ,about whats going on with my two babys and i find out the results from his on monday and im scared to find out what the doctor is going to tell me about him,but im scared hes going to tell me something similar to what my daughter has ,he put devin on proselic for the time being so i dont know what that is telling me ,


Sincerly stacey

conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/14/2008 2:22 AM (GMT -7)   
Stacey,

chrons disease does run in familys. I think it is 20% of people that have it have a family member who has it. Just stay strong for your baby's. I know that it is hard seeing your children hurt like this but it will work out for you in the end. Regardless of the results, they have a mother who really care about them. So much so that she is on her worrying about them and trying to get abswer.

Stacey, please feel free to answer any questions that you need. Stacey, with regards to the diet, try to avoid to many raw fruits, they really upset the stomach in a chrons patient. Also, the likes of cabbage are not good for you with chrons, it really plays games with ones stomach.

Keep us updated on their progress.

staceylynn2008
New Member


Date Joined Nov 2008
Total Posts : 4
   Posted 11/14/2008 5:17 AM (GMT -7)   

Thank you I will Keep you upto date On them Im glad you tolled me about fruit i didnt know that,thank you alot

 

 

stacey


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/14/2008 12:21 PM (GMT -7)   
Patchy inflammation (with or without polyps/ulcers) is crohn's...if the entire area was inflamed (with or without ulcers as well) that would be ulcerative colitis....if your colon is being affected with crohn's it's referred to as crohn's colitis...colitis means inflammation of the colon (whether it be from UC or CD).

Do your own trial and error with foods, some foods bother some people but not all, the only way you'll know for sure is by doing your own food diary, afterall there's no point in eliminating healthy foods (fruits and veggies) that can often be healthy for our system, if they are not bothering you. If anything, it's processed foods, fast-foods, caffeine, refined sugars, artificial sweetners and animal fats that you should be avoiding, those are known by research, to exacerbate symptoms.

I've never had issues with any fruits or veggies of any kind, regardless of the state of my flares.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/14/2008 1:52 PM (GMT -7)   
Sorry guy's, that has come across wrong. I mean with your fruit ang veg, do not eat them raw. The have a shocking effect on your stomach at times. Also, if flaring, avoid them altoghter until the flare is under control. Also, if constipation is an issue, avoid them also, as they are high in natural fiber which act as a tickner and if your constipated, the last thing you need is ticker firmer stools.

Or so I have been advised by other members of the board.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/14/2008 7:29 PM (GMT -7)   
Ya, but bottom line is everyone is different and the only way a person will know what affects them and how is by trial and error, I eat tons of raw fruit and veggies with no problems even while flaring.

Actually eating fruits and veggies won't cause constipation, the fibre from fruits and veggies would aid with D or C because basically most all fruits and veggies contain soluble and insoluble fibre...

Solube fibre becomes sticky when it combines with water and forms a gel-like substance (found in fruits, veggies, seeds, brown rice, barley, oats and oatbran.

Insoluble fibre acts as a sponge as it passes through the digestive tract and aborbs moisture many times it's weight in water, by doing so it increases the bulk of stools and softens it...these characteristics facilitate the transit of food through the intestines thereby preventing constipation (found mainly in wholegrains, legumes; peas, beans, lentils and the skins of many fruits and veggies.

Balance is key when it comes to fibre.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 11/15/2008 9:00 PM (GMT -7)   
my doc ordered a blood test to differentiate between Crohn's and UC. I think it is through Prometheus Labs in SD, CA. Also you guys are really brave to stay awake the whole time...I make sure I'm out cold!!

staceylynn2008
New Member


Date Joined Nov 2008
Total Posts : 4
   Posted 11/16/2008 4:51 PM (GMT -7)   
How can they tell the difference between chron's and UC ,I thought there wasnt a test to know the difference.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/16/2008 5:14 PM (GMT -7)   
staceylynn2008 said...
How can they tell the difference between chron's and UC ,I thought there wasnt a test to know the difference.

 

 

Crohn's can affect the entire GI tract from mouth to anus, UC is limited to the colon/rectom only.
 
Crohn's has skipped patterns of inflammation (with healthy tissue in between), UC will have the entire area inflamed.
 
Crohn's inflammation can go through the many layers of the intestinal lining (often what leads to a fistula), UC inflammation is limited to the surface of the lining only (reason why fistulas are not related to UC).
 
crohn's in the colon is refered to as crohn's colitis.
 
 
discusses the 5 subtypes of crohn's disease, the terms for each common area that CD affects in the GI tract.
 
:)


My bum is broken....there's a big crack down the middle of it! LOL :)


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 11/16/2008 7:34 PM (GMT -7)   

from www.prometheuslabs.com

PROMETHEUS® IBD Serology 7 helps identify IBD and differentiates between ulcerative colitis and Crohn’s disease. This test includes the proprietary and patented markers anti-CBir1, anti-OmpC and DNAse-sensitive pANCA process that helps identify patients with IBD and utilizes Smart Diagnostic Algorithm* technology to improve predictive accuracy. While most other labs only offer assay values, PROMETHEUS IBD Serology 7 provides a diagnostic prediction on every test and prognostic information that may guide treatment decisions. For references please see Product Information Brochure.

 

it's expensive, but my ins. covered it.

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